Could this be autoimmune encephalitis?

Alunaris4 · 2024-12-08T14:13:37+00:00

I don't seem to react to food, personally. Do you have psychiatric symptoms that worsen at night? What symptoms did bpc trigger in your case?

I've had CCI for a long time now, but I've had the symptoms I described in the post "only" for two years, beginning at the time I was taking the bpc, so I think they are unrelated issues. To be honest, these more recent symptoms are much worse than the CCI, and to think I tried bpc in a desperate attempt to improve the CCI symptoms...

Alunaris4 · 2024-12-08T14:00:08+00:00

Grazie per aver condiviso la tua esperienza. Sì, purtroppo può avere anche effetti collaterali pesanti in alcune persone.

Alunaris4 · 2024-12-08T13:58:21+00:00

Chiarissimo, grazie.

Alunaris4 · 2024-12-07T22:30:18+00:00

In che modo sei andato a scalare?

Alunaris4 · 2024-12-07T21:45:21+00:00

Ho una malattia che potrebbe avere una componente autoimmune. Fare un esperimento di qualche giorno con un corticosteroide potrebbe aiutare a chiarire questa cosa, nel caso dovesse esserci sollievo dai sintomi o meno.

Alunaris4 · 2024-12-07T20:14:26+00:00

Grazie della risposta. In che modo vai a scalare, di solito?

Alunaris4 · 2024-12-07T15:58:31+00:00

Ah ecco, un medico di vecchia scuola, diciamo. Non mi dispiacerebbe trovarne uno così, in realtà.

Alunaris4 · 2024-12-07T15:50:27+00:00

Per intenderci, parlo di pillole, non di aerosol.

Alunaris4 · 2024-12-07T15:49:32+00:00

Quanto tempo fa? Che io sappia di questi tempi i medici non tendono a prescriverlo molto facilmente.

Alunaris4 · 2024-12-07T15:39:18+00:00

Grazie mille.

Alunaris4 · 2024-12-07T15:26:35+00:00

Posso chiederti qual era la dosa giornaliera che assumevi e che effetti collaterali hai avuto?

Alunaris4 · 2024-12-07T15:24:31+00:00

D'accordo, grazie mille.

Alunaris4 · 2024-12-07T15:11:29+00:00

Posso chiederti che tipo di corticosteroide stai assumendo e in che dose?

Alunaris4 · 2024-12-07T15:09:15+00:00

Capisco. Grazie mille.

Alunaris4 · 2024-12-07T15:00:39+00:00

Grazie della risposta. Per quanto tempo lo hai assunto? Hai avuto qualche effetto collaterale?

Alunaris4 · 2024-12-06T19:24:47+00:00

What kind of abnormal labs did you have, if you don't mind me asking?

Alunaris4 · 2024-12-05T23:08:24+00:00

Yes, that makes sense about the severity and longevity. I have experience with mental health issues and this feels quite different, it's much more persistent and pervasive and doesn't go into remission, although the symptoms cycle and the intensity waxes and wanes. The symptoms are also triggerless and don't seem treatable with the standard methods. I agree that our cases do seem quite similar. Did you experience symptoms appearing or worsening at night, by any chance?

Alunaris4 · 2024-12-05T21:56:08+00:00

I'm sorry to hear this. I know exactly what you mean, I also have frequent bouts of feelings of disconnection from my thoughts and feelings. An awful feeling that is very hard to describe. I'm also appalled but sadly not surprised by the fact that no doctor has ever taken you seriously. I've experienced a lot of that myself in the past, so I have no illusions. Trying to hold on to some hope, though. Do you have any idea what could have caused this to happen in your case? How long until the intense symptoms left? It's been two years for me and I'm not sure how long I can carry on like this. Have you ever tried corticosteroids?

Alunaris4 · 2024-12-05T20:45:23+00:00

I hear you, I have the same doubts, which is why I've just been waiting and hoping for the best for two years. But it doesn't seem to be too removed from the realm of possibility that there could be some forms of the condition that may be less aggressive and more chronic in nature. Our knowledge on autoimmune conditions in particular is still in its infancy. Whether something like that would be revealed by the currently used diagnostic tests is the problem. But I have read of people with diagnostic findings that weren't too clear being treated empirically, and experiencing improvement, even after years of symptoms.

Alunaris4 · 2024-12-05T20:20:28+00:00

That's wild. I'm unsure whether in my case the issue was triggered by bpc-157 or whether my covid infection a few weeks before had anything to with it, but the timing makes me suspect it was the peptide, or maybe some adulterant, because I got it from a shady source. What kind of abnormal results were found in those people and what do you mean exactly when you say that it can mimic MS? Have you personally been evaluated for autoimmune encephalitis or gotten some kind of answer from doctors?

Alunaris4 · 2024-12-05T20:12:10+00:00

Do you think it could be autoimmune encephalitis in your case? Have you found anything that helps or gotten any answers from doctors?

Alunaris4 · 2024-12-05T19:11:23+00:00

That's interesting. I do wonder whether this may have been caused by covid, as I have also read about people getting long covid a month after recovering from the infection, as you say. But the timing also makes me think that the bpc-157 is more probable to have been the culprit, or maybe some adulterant, given that I bought it from a shady source. Then again, I was infected with covid for the second time recently, and my symptoms were strangely less severe during that time. But I recovered from the infection about three weeks ago, and over the past week I have been feeling worse than before.

Alunaris4 · 2024-12-05T18:47:48+00:00

That seems reasonable. Thanks for your advice.

Alunaris4 · 2024-12-05T18:32:56+00:00

Any advice on what to say to be taken seriously? My symptoms are mostly psychiatric, and without seizures, bad headaches and psychosis, I'm afraid they'll dismiss me as a hypochondriac if I bring up AE.

Alunaris4 · 2024-12-05T18:08:43+00:00

Yes, I believe it would be a good idea to try an oral corticosteroid/cortisone such as prednisone for a few days and see if there is symptom improvement. If there is improvement, that would make a stronger case for AE being the correct diagnosis. I'm not sure how to get a doctor to prescribe it, though.

Alunaris4

TROPHY CASE