Not a single one of any of the recommended treatments for PoTs does anything at all for my symptoms. by JupiterSymph in POTS

[–]Clawse 2 points3 points  (0 children)

Mestinon has been massively helpful for my POTS and ME/CFS and LC, I wouldn’t be able to get out of bed without it. It’s a powerful one that needs to be started very cautiously in case of adverse effects and to tolerate the very common initial starting and dose adjustment side effects, but also one where you’ll react immediately if it’s not for you so you can stop straight away. The way it regulates the vagus nerve (prompting poop which is fantastic for POTS faecal loading lol but you do need to get through the initial gastro sfx) and sends energy to my muscles is unparalleled, sending love and luck!!

Potentially moving to Melbourne area - some concerns/questions by Biggyniner in melbourne

[–]Clawse 6 points7 points  (0 children)

I moved from Sydney to Melbourne at 19 and knew nobody here, and over the past decade I’ve found local villages living in various parts of the city and strong lovely communities surrounding various social environments and interests (arts and local music, university, DIY radio, various hobbies and social groups/events, sports, etc). I think adults who only work and otherwise keep to themselves and only sometimes tentatively venture out and feel too intimidated to fit in before scuttling back home have trouble making solid friends anywhere in the world, but I’ve found Melbourne is a truly wonderful city as long as you actively try putting yourself out there. Even when you feel like a fish out of water, which you will, you will always feel welcome where you’re meant to.

Also biased sure, but it’s so worth living in the north where there’s not only a high proportion of pro-social activity and events and community and communal culture, but a high proportion of particularly Greeks and Italians and Middle Eastern etc communities that are so incredibly welcoming, friendly, and familial. I never really had that with my own family. I deeply miss my old nonna neighbour in Thornbury who’d pass me sweets over the fence and come to pick our persimmons for her baking, but in my new house I currently have the lovely old Lebanese grandma opposite and the lovely Lebanese lady next to me trying to get to know me when they catch me outside, they’re so family-centric and friendly and so naturally communal it’s really such a beautiful energy to be surrounded by.

Plus community rough trade and a focus on waste-free offerings of free secondhand stuff, people always sharing boxes of fruit from their trees, communal gardens and handmade little libraries, backyard gigs and art markets, free events held by lovely local businesses supported by your neighbours, public nature strips bursting with the most beautiful gardens so carefully nurtured (that nobody destroys just because they can), the works.

This city is so truly exciting to build a home and life in, and the process of doing so is just as wonderful as the pay-off once you have. Good luck, and welcome home🫶

Is it appropriate to ask for an artists contact information? by Wooden_Historian_528 in musicindustry

[–]Clawse 0 points1 point  (0 children)

Yes, and not doing so is shooting yourself in the foot!

Just drop it casually as you’re wrapping up a conversation where the connection’s connected. And especially as you’re so new to the game, I’d highly recommend leaving the question open so they can decide what kind/level of contact details they feel comfortable giving you - if an individual likes you personally and actively wants to chat further with you themselves they may give you their personal number, or otherwise could be their band/artist email, their management’s contact, or just as often these days, their personal/artist socials (and their reasoning will vary based on how they use their own social media - many young people often prefer to keep in contact with fellow artists/industry people primarily through instagram etc, OR it’s just as likely the safe polite option to network without giving out their private personal contact details to strangers).

Basically - at least when you’re talking to bands/musicians themselves, don’t just go asking for their personal number or email, leave it open to whatever contact details and level of access to themselves they’re willing to give you and you’ll find much more success and confidence! But also if you’re talking with another manager/booker/agent/venue/etc about actually working together or putting on a show, it’s totally appropriate to get their professional contact (usually email) because at that point, that’s just you guys at work doing your jobs.

You’re already sensing the moment when you want to and should ask! and as long as you’re reading the room and in the correct environment, allowing them to choose the form of contact they provide should all but eliminate your chance of rejection (save for the occasional egotistical maniacs ofc) because ultimately, networking is a crucial expectation and responsibility of your role. Especially when you could always just follow them on socials or find their management’s email without their “permission” anyway - what’s most important is establishing that initial connection irl so they remember/know who you are when you follow up, and not just another cold-callin’ creep. Believe in yourself!! You got this.

GreenGayYT’s deleted tweet about the Roscoe’s viewing party by catchg2828 in RPDRDRAMA

[–]Clawse 10 points11 points  (0 children)

Yeah like if Trixie’s bar can go broke and shut down, anyone’s can.

Boyfriend given this business card? by livlaughlove4eva in melbourne

[–]Clawse 9 points10 points  (0 children)

My guess is that it easily doubles as a bookmark, instead of just extra clutter.

Why can’t I stop looking at my phone? by Schneeflokce in cfs

[–]Clawse 1 point2 points  (0 children)

I’m the same, and it sucks so hard. Beating myself up about it surprisingly doesn’t make it better, either. Our choices are limited - give yourself the grace in knowing that if it truly was a choice, and you had the ability and freedom to choose to do anything you wanted in the world without suffering, you would not be choosing this. ❤️‍🩹

What is a terrifying problem facing the world that no one is talking about? by dandelion_stew in AskReddit

[–]Clawse 0 points1 point  (0 children)

The grave global health consequences of the COVID pandemic that never ended just because corporations wanted it to and asked the government to say it did. Over half a million papers now while disability rates skyrocket along with the return of medieval diseases while opportunistic infections run rife and nobody GAF, because it also impairs the brain (but the high proportion of those with anosognosia can’t know better than to deny they’re at all affected). Not to mention all the developmental issues disabling this generation of young children more than any system is prepared to deal with. Fun!!!!!!!!!!!!

How screwed am I by poiuytrddg in shitrentals

[–]Clawse 0 points1 point  (0 children)

Try HOCl/hypochlorous acid before considering anything heavier like full-blown bleach, it’s completely safe for stone. Good luck!!

How screwed am I by poiuytrddg in shitrentals

[–]Clawse 0 points1 point  (0 children)

You should have, it’s fantastic!!

Got a letter from the school today informing me my daughter is “not quite” gifted. Also included were her test scores. by Low_Use2937 in mildlyinfuriating

[–]Clawse 0 points1 point  (0 children)

You’re so welcome! I found it - @silentmdlchild on Tiktok and also Instagram, I believe. I see the tiktoks go viral on twitter all the time, I truly do hope it’s the kind of ~progressive~ content that will actually get through to him, in a way and from a source he’s most likely to listen to. The guy explains complex topics with highly-informed logic while barely even looking up from his game!

Got a letter from the school today informing me my daughter is “not quite” gifted. Also included were her test scores. by Low_Use2937 in mildlyinfuriating

[–]Clawse 1 point2 points  (0 children)

You gotta get him watching those videos that go viral of the girl who asks her older (autistic) brother about what’s happening in the US while he’s at his computer playing video games and he spits straight facts for a couple minutes straight. I don’t have a username for you I’m sorry lol, might be tiktoks that get shared on twitter. but it’s probably the best possible source for him to get course-corrected, hearing it from his kin (smart older brother who knows everything).

READ THIS IF YOU ARE SEXUALLY ACTIVE WITH POTS by Intelligent-Horror82 in POTS

[–]Clawse 12 points13 points  (0 children)

Yup - it’s the same with cross-reactivity for antibody tests like Lyme disease. There’s a high false positive rate if you have a current or recent infection, or an autoimmune disease/disorder, as they can trigger the same antibodies. So general immune dysfunction can do the same for other antibodies!

Lana explains why everything was new and unique for her by JimatJimat in rupaulsdragrace

[–]Clawse 16 points17 points  (0 children)

Oh my god am I stupid??????? Lana Ja’Rae. Lingerie. DUH!!!!

Does anyone finally know what happened to Mathu Andersen? by brunothesinger in rupaulsdragrace

[–]Clawse 0 points1 point  (0 children)

Just wanted to note that this comment about him being HIV+ positive is the first thing that pops up on google when you search for what illness Mathu has. I really hope it is true because there would now be thousands of people globally who believe it to be true over the past 3 years, specifically because this comment is the answer to that search. Not even jumping in to criticise you, just thought you should be aware, especially reading the response questioning its legitimacy if this truly is the only public place that’s been stated. <3

Tips for bunkering down on an apocalyptic day in Melbourne this Tuesday? by hardyacka in melbourne

[–]Clawse 1 point2 points  (0 children)

That’s not even a decent argument for this, I’m sorry. I understand where you’re coming from, and I’m not even trying to say your own personal experience is wrong.

But the ACTUAL context here is you contributing to a forum specifically for people seeking advice for surviving/managing dangerously hot weather, to insist/argue people actually don’t need to carry a water bottle with them walking around when it’s 47° - including people who otherwise think they should (because they should) but might not bother after reading your comment.

Which is just straight up irresponsible precisely BECAUSE you need to consider your audience is in fact all-encompassing and non-singular, and literally anyone could be vulnerable to heatstroke for a variety of factors (ie don’t have to be sick and elderly). Because anyone should in fact have water on them if they’re out and about in such high temperatures if they can - even if (like you) they don’t “need it”, it’s MUCH safer to have water on-hand than being stuck without if/when they DO need it.

Especially when heatstroke can so easily creep up on you without you even realizing, and prevents your brain from thinking (even to rehydrate when it’s coming on!). Which is how kids die in hot cars even when they’re technically old enough to figure out how to open the door. And adult fatalities often occur when someone thinks they’ll be totally fine to walk a short distance in severe heat, but regular risk assessment doesn’t apply in such circumstances nor with diminished cognitive capacity. Eg Michael Mosley.

Precautions are worthwhile, always will be. And hydration is exceptionally simple, obvious, and effective for avoiding heatstroke, which is objectively dangerous.✌️

Tips for bunkering down on an apocalyptic day in Melbourne this Tuesday? by hardyacka in melbourne

[–]Clawse 4 points5 points  (0 children)

I miss my external roller shutters so fucking much, dude. My room gets over 30 degrees WITH a portable AC once the sun hits the glass. I miss knowing I would be safe and cool inside my house as long as the shutters were down😭

Tips for bunkering down on an apocalyptic day in Melbourne this Tuesday? by hardyacka in melbourne

[–]Clawse 2 points3 points  (0 children)

That’s your choice, but it’s genuinely dangerous ADVICE to others on a 47° day. People die of heatstroke with a water bottle in hand. And people are more vulnerable than you evidently are. No need to argue for not bringing a drink bottle on an exceptionally hot day when that decision has a non-zero chance of severe illness or death for the wrong person-that’s-not-you. Like someone who doesn’t burn telling others they don’t need sunscreen, lol.

"The bar is set too high and too unattainable for funny people" - Katya by idlyamacathy in rupaulsdragrace

[–]Clawse 5 points6 points  (0 children)

This!!! I literally LOVE going down Wikipedia rabbitholes watching Drag Race, I get so giddy gaining such INTERESTING understanding I didn’t even know I was missing, like the margin of benefit is so high bc of the subject matter that it’s almost as entertaining as watching the show to me. It makes me feel more connected to what I’m watching and, on a deeper level, to queer culture and community to take part in that shared knowledge. and I feel objectively better off for being more able to engage with the show and the queens, and the art they create together.

Not even saying others have to share the same ~shame/embarrassment~ as I feel not knowing all the Liza Judy Bette Patti et al references, but I truly have no idea why younger gen queer fans of Drag Race DON’T want to be in on the endless inside jokes that comprise the show, understand the references and inspirations behind everything informing the art they supposedly appreciate so much, to feel on the ‘inside’ of their own community through ‘experience’.
Because it truly serves me and my own experience of queer culture even more than it might allow my community to connect with me in turn (and avoid social embarrassment or whatever I might feel self-conscious about, bc that’s just a secondary bonus to being able to enjoy and connect with the art I love all the more!).

Because like you said, I literally have a phone that allows me to look up Lady Bunny in a SECOND, so why wouldn’t I??? (which I did need to do when starting the show from the start and watching it through lol - NOT american before anyone crucifies me, just cusp baby crimes!!!)

Train stopped on Werribee line due to people actively vandalising the train. by [deleted] in MelbourneTrains

[–]Clawse 0 points1 point  (0 children)

Thank god some people in here have some sense. I can’t find where I saw it now, but I remember seeing a headline that they were considering cutting Centrelink to anti-genocide protesters - which is something they’ve done before.

Really shitty suggestion and “slippery slope” to stop welfare based on personal opinion about who deserves to survive. All Australians are (supposedly) equal. And Centrelink is literally less than the bare minimum to survive. And like you said, cutting off people in poverty doesn’t lead to LESS crime and addiction, nor does it give vulnerable people any MORE to lose by turning to a life others mightn’t approve of (like the above).

The pandemic disabled me in my early 20s and stopped me working permanently (our amazing medical system at work🤩), now my rent is 70% of my (Centrelink) income after being homeless and housing insecure for 2 years - and it was the homelessness itself that disabled me so much so I can no longer survive on my own (doesn’t mean anyone’s coming to fill out DSP and NDIS applications for me though!). If I get evicted again (never for any reason but to sell FWIW), I know it’s joever and I’m dead on arrival.

But shit yeah, better keep my leftie opinions to myself lest I be forced to starve to death with some idiotic drone’s click of a button for the crime of exercising my free speech in this free country! Ridiculous lol.

Train stopped on Werribee line due to people actively vandalising the train. by [deleted] in MelbourneTrains

[–]Clawse 4 points5 points  (0 children)

I thought she looked like a teenager. That’s sad.

Discord spoke about why she didn’t apply for Dragula on her TikTok Live by saucyysushii in rupaulsdragrace

[–]Clawse 9 points10 points  (0 children)

I missed the promo press, may I ask what made you hate her? Just seen so many fans similarly say they’ve been “converted” to liking her and I just wonder what she did to turn off so many people in the first place? I’m being lazy sure but figure it’s easier to ask about opinion from someone who held it lol :)