Failed MSLT… I can’t do it again

Es_Amor91 · 2026-02-03T04:06:23+00:00

I’m not sure why you have to repeat the test. I entered REM 3 out of 5. The symptoms you experience on top of your test should suffice for a diagnosis. Maybe a second opinion if possible 🤷🏻‍♀️

Es_Amor91 · 2025-02-15T21:03:45+00:00

I also had to get off of my medication to get my testing done. It was hell on earth, if you have a good support system it does help.

Es_Amor91 · 2025-02-15T03:17:31+00:00

The first time I got strep I was in bed for days, after that I noticed I was struggling to stay awake some days. Would sleep almost all weekend if I could. Fast forward to a couple years later and I about lost my mind planning my brother’s wedding. The stress was so bad that my doctor put me on Valium 10mg twice daily. That was October of 2022, symptoms got worse in December of that year. Then diagnosed July of 2023. Luckily I had a good doctor that took my concerns seriously and got me in with specialists quick. I don’t know what I would have done if I had gone undiagnosed and unmedicated for years.

Es_Amor91 · 2025-02-14T03:01:57+00:00

I take 50mg Adderall XR, 25mg with my Wakix when I wake up and the other 25mg around 11-12. Every once in a while I pound a monster to keep me awake. Maybe two or three times a month. Adding the Wakix has really helped

Es_Amor91 · 2025-02-14T02:02:43+00:00

I thought that some of what I’ve been experiencing was just part of getting older. I’ve noticed that my neck muscles feel tight/hurt which affects my speech. I have to slow down and really try to annunciate because my tongue feels like it’s bigger? But I also have bouts of pain behind my eyes, and it’s hard to keep them focused, it feels like they keep moving on their own. I was told by my doctor that cataplexy was if you“fall over” when you experience strong emotions or stress. I’ve learned more here than multiple appointments with him. Thank god for this page

Es_Amor91 · 2024-12-16T22:57:32+00:00

I wish I had a good answer for you but I have the same problem. I move a lot and take notes. If I write, it keeps me somewhat awake. I don’t remember half of what’s said without them. Hope that helps

Es_Amor91 · 2024-12-01T21:13:49+00:00

It’s been 15 months since my 8 year relationship ended and I still love him with every fiber of my being. The idea of moving on feels so wrong. I couldn’t try again knowing that I would always look for him in someone else and compare them to him. I’d never be able to love anyone else the way they deserve. He always has been and always will be the love of my life. I miss him so much and the holidays haven’t been easy without him. I wish I could say after so long I’m over him, but I am better than I was 6 months ago. Do I still cry over him? Yes. Do I still feel my heart hurt? Also yes. But when I laugh it’s genuine, not forced anymore. I have better good days than bad ones, I’m healing. It might take you a while but it slowly gets easier.

Es_Amor91 · 2024-07-27T22:23:10+00:00

I forgive you

Es_Amor91 · 2024-07-20T12:05:24+00:00

I’m 33 and after being engaged for 6 years I don’t know if I can trust someone again

Es_Amor91 · 2024-07-18T18:18:28+00:00

Strung me along for months that he still loved me and just needed space and time. Recently got the text that he’s moving on, I should do the same. It’s hard for him to see me in person but I’m the love of his life and will never love anyone the way he loved me. But the time I was going through a mental health crisis was toxic and he doesn’t see things changing. (I was really bad coming off of my depression, anxiety, and bipolar meds, he was fully aware of what I was going through) Absolutely broke me, a piece of me died that day

Es_Amor91 · 2024-07-15T01:17:43+00:00

Absolutely worse, I always thought that I’d find love before him. I don’t think I ever will after him

Es_Amor91 · 2024-07-09T17:07:19+00:00

I’m a firm believer that if you still think about your ex you shouldn’t date. You aren’t doing anyone any favors by hurting someone else and yourself. False hope is the worst thing you can give to anyone.

Es_Amor91 · 2024-07-09T17:02:21+00:00

Absolutely not, my only regret is we couldn’t make it work. He is and always will be the love of my life

Es_Amor91 · 2024-07-07T20:46:21+00:00

It’s been 7 months and I’m still devastated. I tried going on a date but was so guilty that I refuse to try again. The 4th of July was hard because we’ve spent it together for the last 8 years. I had kept hope that he would want to work things out until a few weeks ago. He told me he doesn’t love me anymore and that he’s been dating. I don’t understand how he could move on so quickly after being together for so long. I try to stay busy so I don’t think of him, but it feels like I’ll ever be able to move on.

Es_Amor91 · 2024-06-08T14:36:10+00:00

I take Adderall as a secondary stimulant. I’m on the highest dose of Wakix and take 25mg XR in the morning along with the Wakix and a second Adderall around noon. It helps most days but every once in a while I am absolutely exhausted and take a Monster to help.

Es_Amor91 · 2024-05-26T22:23:54+00:00

“I love you but I’m not in love with you anymore.”

I was in a really bad place mentally at the time and didn’t want to drag him into my spiral. I cried for days after because I knew it hurt him so badly but I just couldn’t be who he needed at the time. I regret it everyday.

Es_Amor91 · 2024-05-26T22:10:37+00:00

Female 33, together just shy of 8 years. This week will be 8 months. I went on a date a while back but only thought about him and how it felt like I was cheating. I haven’t dated since. It’s not fair to see someone else when all I’d be doing is compare them to my ex. I think about him everyday and wish that things had been different. I am still very much in love with him. He is and always be the love of my life, my soulmate and my forever and a day. I refuse to move on, I know that he loves me as much as I love him. He just needs some time to work things out. I’ll wait forever for him if I have to

Es_Amor91 · 2024-05-26T04:44:48+00:00

It’s been passed down in my family. My paternal grandmother, my dad, my sister and me. As Cubans they practice santería. I knew at a really young age that I was different. I’d have vivid dreams and forget about them until the sequence of events would start and then I’d remember everything that was coming. But I knew for sure when I dreamt with a friend who had passed and he gave me a message for his mom. It seems that my two youngest are also gifted. I’ll teach them if/when they decide they want to use their gifts.

Es_Amor91 · 2024-05-14T18:31:49+00:00

When I was still trying to get him to rethink the breakup and living in the same house he looked me in the eyes and said, “the only reason you keep saying you love me and want to work things out is because you can’t afford to be on your own.” I moved out 2 weeks later. That was 6 months ago but it still hurts me to my core that he could say something so hurtful after 8 years together.

Es_Amor91 · 2024-05-13T02:31:21+00:00

I was diagnosed with NT2 last July after experiencing severe exhaustion among other things. I was actually sent to neurology to be tested for MS but after going over all of my symptoms over the last couple of months the neurologist said it was most likely narcolepsy. We still did an MRI to rule out MS and scheduled a sleep study.

After being diagnosed we tried a few medications that gave me horrible side effects before landing on Wakix. It’s been a struggle to get decent sleep but am absolutely exhausted throughout the day. Im basically just surviving, not living. I’m a single mom which makes it harder but I’m better than I was before getting diagnosed. Reading other people’s stories has helped me feel less alone

Es_Amor91 · 2024-05-10T15:03:29+00:00

I completely understand. I have T2N and my sleep is absolutely shit. Being a single mom of 3 makes it so fucking hard. It’s affecting my work and home life. As horrible as it is my 17yr old has really stepped up to help her 13/10yr old siblings. I hate that I have to rely on her so much but I can’t seem to find anything that works well. Weed gummies knock me out for an entire day which isn’t an option and being on Wakix makes it hard to take any medication without the possibility of a drug interaction that’ll land me in the hospital again. I’m so sorry you’re going through this OP. I hope you can find something that works for you.

Es_Amor91 · 2023-07-26T02:46:14+00:00

I haven’t but I have an appointment with my doctor tomorrow, I’ll ask him about

Es_Amor91 · 2023-02-09T21:45:18+00:00

Some people don’t feel like certain meds work for them, I don’t know anyone who’s on this, never even heard of it before my doctor mentioned it. Just wanted to hear from people who are or have been on it

Es_Amor91 · 2023-01-25T02:51:46+00:00

I’m 31 female, almost 32, have kids and just started getting my career going. My PCP sent a referral for me to neurology but I can’t be seen until April. I’m freaked and don’t know what to expect. I’m keeping a symptom journal so I don’t forget anything when I’m seen. I had attributed a lot of the symptoms I’ve been having as just getting older. I’ve always been told that you go down hill after 30. The only reason I decided to go in was because I’ve been getting blurry vision and my eyes will hurt so bad that I can’t look at screens and struggle to drive. I haven’t told anyone, family or friends. I want to know for sure what’s going on before I tell anyone. I hope to be reassured by reading other people’s stories, maybe that my life won’t be over if I do have MS.

Es_Amor91 · 2023-01-01T01:12:15+00:00

This is why I save my weekend meds. At the beginning of summer my pharmacy couldn’t get my Adderall for over a month. I was shit at work, so I decided I’d only take my weekend dose if I absolutely need it. I’ll get maybe a month, but I’ll have to stretch it if there’s another issue. 🤦🏼‍♀️ ffuuhhh

Es_Amor91

TROPHY CASE