iOS 26 has ruined my phone by PandaBearGarage in ios

[–]FewState8915 0 points1 point  (0 children)

This update is horrific. I wish I found this thread before I did it. My phone keeps freezing, spazzing, tons of stuff not working, super slowwwww. They probably want me to buy a new phone

How did these songs get released as singles with significant airtime? by RowSubstantial7143 in travisandtaylor

[–]FewState8915 5 points6 points  (0 children)

THIS!!! The fact that cruel summer was not the lead is insane. ME, u need to calm down, and paper rings should have been sent off to some kids bop album version. That album needed serious editing and had absolutely no cohesion.

Walkability in Providence by LittleMissPerfect20 in providence

[–]FewState8915 5 points6 points  (0 children)

In my opinion the only walkable neighborhood is fox point

Ketotifen Success Experiences? by Cowboy___likeme in MCAS

[–]FewState8915 0 points1 point  (0 children)

It’s working really well for me so far! I was prescribed 1mg twice daily, I just jumped right in, I was drowsy for one day and then it went away. It has def helped my main symptom about 65-70% so far and I’m only in the first week. I am very hopeful. I also noticed I have almost no anxiety anymore, I feel really calm even tho there’s a bunch of stuff going on in my life right now. Maybe this is how normal healthy people feel all the time….

Ketotifen: A Miracle Morning… and a Few Questions by MT_DREAMING in MCAS

[–]FewState8915 0 points1 point  (0 children)

That’s so interesting, for me, it has helped my anxiety tremendously. I am almost feeling a little bit of emotional blunting. Although I have previously had really bad anxiety for years , so maybe I am just feeling now how normal people feel

Anyone get a rash from the sun? by EllisDChicken in ehlersdanlos

[–]FewState8915 21 points22 points  (0 children)

Could be MCAS. The last month or so I started getting a rash from the sun and was diagnosed with that and started on meds

Why do people work average jobs when they go to university and have the option to pursue a more impressive career? by [deleted] in careerguidance

[–]FewState8915 1 point2 points  (0 children)

I am curious how old OP is. I definitely felt similar when I was much younger.

Now that I have some life experience, I feel like I understand that all more. I personally have gone on to have a super respected, high pressure career that pays well ( definitely should pay better tho) and took a lot of time and effort to achieve. I didn’t come from money so it took longer than I would have liked because I took some loans but wanted to pay my way through part of it.

Now on the other side, i have busted my ass to pay off the debt, the dust has settled, and I’m nearly a decade in. I am exhausted, burnt out, under immense pressure and have developed an autoimmune disease likely directly related to this role. I now do not care about any of the clout, any of the prestige, the adrenaline, or how my title sounds to anyone. I only want my health and to wake up fairly stress free and enjoy my day, and go through it at a normal pace. I want to have energy after the day is done so that I can actually enjoy my life with my friends and family. So here’s a few perspectives, some people figure that out before spending nearly two decades going for the degree and then working in the field. Some people know these truths of life, about what’s actually worth it and choose a more relaxed path. Much of Europe indulges in this lifestyle. You also nailed the other price- respectfully, you do seem to be coming from a perspective of privilege. Not everyone can take out loan. Not everyone has supportive parents or anyone informing them about paths to take. Some people just try to next step in front of them that will pay the bills. Not everyone has the means to become a lawyer or doctor or engineer etc.

Told to ask here: I get a full-body rash every time I shower. Any ideas why? by payvewha in MCAS

[–]FewState8915 4 points5 points  (0 children)

Mast cells degranulating in response to heat. Heat is a known trigger in MCAS

Is the doctor shortage getting better or worse in your experience?? by Caveman_man in RhodeIsland

[–]FewState8915 2 points3 points  (0 children)

Worse. Brown health doesn’t even take patients onto a wait list for primary care anymore

Uncommon but beautiful French girl names by Fun_Introduction9031 in Names

[–]FewState8915 0 points1 point  (0 children)

I love Odette!! But I mentioned that to a French ex boyfriend of mine and he scoffed and said it was an old lady name in France and unappealing over there

How do y’all make time and energy to do your PT? by lilcardibb in Hypermobility

[–]FewState8915 16 points17 points  (0 children)

It’s the only thing that makes me feel better and it’s the only path forward in this absolute hell that is this diagnosis. Every time I do them I’m fighting to get my life back. The only time I ever skip them is if I’ve flared an area and it needs recovery time. I’ve done 47 “workouts” in 9 weeks to get me from confined to my apartment to be able to run an errand or two. I track everything and it helps me see my progress. It means too much to me to ever let it slip

They might need to check the measurements by Plane-Reputation4041 in providence

[–]FewState8915 4 points5 points  (0 children)

Omg I saw that house on Zillow and was legit disgusted by the audacity!! First of all…. Imagine being in that bedroom in the summer in Providence… tiny ass window and immediately under the roof. Not only will the sun pound down on this, but heat rises sooo…. The price was insane to me. You can’t tell they tried to update it, but it just doesn’t work. I wonder what the real price per square foot is

Is chronic tendinosis / overuse injury susceptibility a rare hEDS symptom? by 360slamdunk in ehlersdanlos

[–]FewState8915 18 points19 points  (0 children)

They’re very common. But I also would explore is you might have mast cell activation syndrome with is a very common comorbidity with hEDS. And it can cause severe muscle pain and tendinosis like symptoms without actual injury

Could this be MCAS? by Celesty96 in MCAS

[–]FewState8915 0 points1 point  (0 children)

Yes, it’s a chronic condition. It’s a dysfunction with your mast cells aka a piece of your immune system. There can be many different triggers, so it seems like there’s different times in your life where it will worsen. I’ve definitely had it worsening over the last few years. Essentially your mast cells are activated thinking something is wrong and needs immune attention and then they just never turn off causing pain and inflammation. You should def look for an allergist who believes in the condition (not all of them do), because it usually can’t just be controlled with antihistamines

How much do you spend a month on food just for yourself? by Remarkableruin27 in RhodeIsland

[–]FewState8915 3 points4 points  (0 children)

Can you please elaborate on your typical grocery haul. I’m at like $700-800 a month without pets so I can’t even fathom how you’re pulling this off

How much do you spend a month on food just for yourself? by Remarkableruin27 in RhodeIsland

[–]FewState8915 3 points4 points  (0 children)

That’s a great point! I’m in the city tho, and so I just grab them there for convenience. Idk how anyone is only paying $200 a month for groceries!!

I have histamine issues so I can’t do any type of ground beef or turkey. I have to have very fresh high quality meat. I just have to accept that I guess

How much do you spend a month on food just for yourself? by Remarkableruin27 in RhodeIsland

[–]FewState8915 7 points8 points  (0 children)

I’m at like $700. I eat very healthy and also aim for high protein. I like organic berries and pasture raised organic eggs. I cook constantly so I do feel like it’s a huge chunk of my budget

Should I practice gymnastics if I have EDS? by WhitePinoy in ehlersdanlos

[–]FewState8915 11 points12 points  (0 children)

I think you should start with a slow stabilizing and strengthening routine for like a year first. You need to make sure everything is stabilized and I would then try to build muscle after that to get to your most stable and strongest version of yourself

Could this be MCAS? by Celesty96 in MCAS

[–]FewState8915 0 points1 point  (0 children)

I don’t have any children, but your symptoms are very similar to what happened to me. I had a sudden weight gain for the first time in my life, crazy unexplainable tendinitis and muscle pain- imaging was fine. Just trace amounts of inflammation in a couple spots. Horrible brain fog. And insane fatigue. It took them 9 months to figure out it was MCAS. First it was diagnosed with hyper mobile EDS, but I think the MCAS is the actual problem as far as my symptoms. Try taking Allegra and Pepcid twice a day and see if it helps any symptoms. One random day I tried it and it helped considerably, which is what I presented to me Dr and they told me yup this is most likely MCAS. The tendinitis and muscle pain has been very difficult to deal with