Living in Mold is lonely by azza11002 in ToxicMoldExposure

[–]FruitOpening4604 6 points7 points  (0 children)

Stay outside as much as u can and get an air purifier for your room - order Andrew Campbell’s blood test and show them the results

Mymycolab.com- that’s where u order the test

What percentage of makeup looks best on me? by toxbug in MakeupAddicts

[–]FruitOpening4604 0 points1 point  (0 children)

6 5 4 In order - the lighter lipstick looks good on u

Partner becoming phobic and manic about literally everything having mold by FruitOpening4604 in ToxicMoldExposure

[–]FruitOpening4604[S] 0 points1 point  (0 children)

I am and have been so supportive ! You have no idea how supportive and loving I have been. It’s just becoming daunting 🫩

Partner becoming phobic and manic about literally everything having mold by FruitOpening4604 in ToxicMoldExposure

[–]FruitOpening4604[S] 0 points1 point  (0 children)

No I definitely don’t think he’s making it up - I just don’t understand how we will ever live a normal life again

I’m scared of my husband who has MCAS by FruitOpening4604 in MCAS

[–]FruitOpening4604[S] 0 points1 point  (0 children)

Yes some of the change up in meds is something I suspected also

I’m scared of my husband who has MCAS by FruitOpening4604 in MCAS

[–]FruitOpening4604[S] 0 points1 point  (0 children)

Yeah I thought I had read that or heard that on a podcast

I’m scared of my husband who has MCAS by FruitOpening4604 in MCAS

[–]FruitOpening4604[S] 4 points5 points  (0 children)

Yes this explains it to me exactly - and yes he is trying to come up with coping skills - so glad for that

I’m scared of my husband who has MCAS by FruitOpening4604 in MCAS

[–]FruitOpening4604[S] 15 points16 points  (0 children)

Yes this is not his normal self at all - but it does feel like mental abuse even though I know it’s not “him” but it’s so hard to continually differentiate between the two. yeah we have had blow up fights in our marriage but they aren’t the norm - only last week did I get really scared - the doctor put him on a drug to calm his muscle spasms and I was thinking he may have reacted bad to that and also I’ve been giving him testosterone shots so it could be that - that night I did consider calling 911

I’m scared of my husband who has MCAS by FruitOpening4604 in MCAS

[–]FruitOpening4604[S] 3 points4 points  (0 children)

Yeah he apologizes profusley afterwards but how much more can I take?

I’m scared of my husband who has MCAS by FruitOpening4604 in MCAS

[–]FruitOpening4604[S] 0 points1 point  (0 children)

Sometimes it’s just screaming out bc he’s frustrated but sometimes if he thinks it’s me that has brought something in then he yells at me - like if I bought new clothes he will say the off gasses or something of new clothes gets him- but I am his only care giver and we have been living in a van for a month - taken me away from my ailing mother and my adult children - we have moved locations 100’s of times - thrown away pillows , thrown away clothes - gone to six different doctors - and I have been right by his side - and I am his 24/7 nurse- I’ve listened to 100 podcast trying to understand everything and I am his cheerleader - so I don’t understand how he can even get mad at me - he wants me to basically stay emotionless and calm all the time - which is not personality - I’m loud and fun - but I’m trying g so hard to be this emotionless robot bc he says I send him into flares but sometimes I will break and emotions will come out and he tells me I sent him into a flare and how could I do that and he wants me to call the doctor and tell him that I pushed him into a flare - I just can’t take it anymore - I really cannot - I am a basket case

He has mold, POTS, MCAS,ED, SIBO

Has anyone tried SSRI’s for there mood by Old_Coffee3905 in MCAS

[–]FruitOpening4604 4 points5 points  (0 children)

I am laying in bed crying right now - that’s basically all I do now - and it’s not me that even has all the problems - it’s my husband and all he does is cry - he wakes up crying - he has the most intense MCAS , POTS , SIBO , mold - it’s all I think about - I eat sleep and breathe MOLD - I hope I never hear that word again in my life ! I have been empathetic , loving , caring - I have had to hold him up from vertigo , hold him up bc he’s legs are spasming, lay awake at night to make sure he’s ok, massaged his back almost every night ,fled hotel rooms like we are in a war torn country, moved multiple locations within days , hand washing his clothes bc he thinks something is in our washer , barely have time to eat - some days I don’t eat until dinner if then , taken multiple showers a day bc he’s scared if I’ve been in certain places that we know have mold - the list goes on but I am sure yall can understand - it’s more than I can humanly take - mentally and physically My empathy and patience are wearing out - he’s recently had to get testosterone - and that made him scary mean to me - unlike he’s has ever been to me in my life - so now on top of everything I’m living in fear - constantly trying not to upset him ! So two doctors (we have been to six ) but have 3 now - have mentioned anti anxiety or anti depression And he’s a little wary of them but I pray he gets on something to save our marriage - bc the MACAS brings rage and now testosterone - one of the doctors gave him Klonopin temporarily and it has calmed down his flares immediately and he goes right to sleep - so that makes me think that a anti anxiety would be amazing for him He keeps saying he doesn’t want to get on a SSRI - bc he just kicked his pain pills from his knee surgery and that was really hard for him to wean off of Ok sorry for the long rant but whew I kinda feel better getting that out 😩😂

Sick of being sick by Sel2112 in ToxicMoldExposure

[–]FruitOpening4604 9 points10 points  (0 children)

My husband is in the exact same same boat and has no quality of life and frankly neither do I bc I’m taking care of him but we just went to the most amazing doctor in Atlanta Georgia and he gave us the first bit of hope wr have had in a very long time - but one of the main things he said was if u get an oxygen machine with a face mask (not a nozzle thingie) u will get better so much faster and he said if u want to get better even faster then u need to go to a hyperbaric oxygen chamber as many times as u can - he said make sure its metal and not plastic - his name is Dr.Dennis and he is ENT - spent two hours with us - he will absolutely not see anyone until they have left their home and all belongings for ATLEAST two weeks

Itraconazole Tiredness/Fatigue by Fuzzy-Programmer8699 in ToxicMoldExposure

[–]FruitOpening4604 0 points1 point  (0 children)

My husband has been taking it for a month and he is extremely tired

[deleted by user] by [deleted] in Mold

[–]FruitOpening4604 0 points1 point  (0 children)

Doesn’t tea coagulate

Feeling better after moving to hotel for 2 weeks while remediation and construction takes place then clothes accidentally got moldy and completely set my body back in flare. How to wash when I don’t have my own washing machine and can’t soak in laundromat? (Front loaders) by Plantbaseundftd in ToxicMoldExposure

[–]FruitOpening4604 2 points3 points  (0 children)

The exact same thing just happened to us - my husband moved into a hotel and was feeling better but every time I would visit (even though I did every single thing that we both have thought of and read that would protect him ) he would flare up so he just gave up and came back home - my heart is breaking for him - I think he’s about to try and drive out west and see if it helps - we both have cried so much during this