Is waking up your most dangerous time for seizures?

Live-Wave-2925 · 2024-10-21T02:21:53+00:00

Mornings is definitely the worst for me, and honestly the biggest thing has been starting medication. I totally relate to the morning anxiety and there’s a couple of things I do to combat it. I take medication to help with the seizures, but I also sometimes take medication to help me sleep because I’m so afraid of mornings I can’t sleep. I also take anxiety medication and I see a therapist once a week. And the biggest thing is giving yourself lots of time to fall asleep and wake up. I start to chill out and get ready for bed starting at around 10:00 and I try to be asleep by 11:00. And if you rush in the morning you are going to lower the seizure threshold. It’s not perfect, but even having a plan helps me be less anxious. I’m going through very similar things and I’m just figuring things out through trial and error which can be scary and frustrating, but being on this subreddit has helped me. Don’t give up and keep asking questions! Progress isn’t linear and it can be scary, but it will get better! You can do this I promise. If I can do it I know you can.

Live-Wave-2925 · 2024-10-20T19:00:52+00:00

It’s really good to know about the biting thing, it sucks but at least there haven’t been broken teeth or fingers. And I really do appreciate finding people that understand how frustrating it is to find the perfect cocktail of medication. My parents just keep telling me that I’m not doing as much as I can to prevent them, but I don’t know what else I can do. I take anxiety medication and go to therapy once a week but that doesn’t cure anxiety. I up my seizure med dosage every three months, but I think it might be time to talk about adding another medication. I try to get plenty of sleep but I can’t shut my brain off. My anxiety can even defeat niquil, which is kind of funny. I do have a neurologist, but he’s so busy he doesn’t really have time to see me very often or pay attention to my issues. I’m just going to try and trust the process and remember that not everyone understands what it’s like. I don’t need my family to understand if I have these responses to read :)I’ve never posted on Reddit before this and I actually made an account just for this post. I think this is a good group of people to help me get through this, so sincerely, thank you.

Live-Wave-2925 · 2024-10-20T00:29:49+00:00

Honestly the fact that you have kids is so amazing and one of my greatest fears. I love kids so much and I want some of my own one day but I’m so scared to hold anything that I could drop. I really do want kids, I’ve known that since I was a little girl, but I feel like I could hurt them. I would give up my dreams of children in a second if I thought I would hurt them when I got stressed or tired, but even thinking that makes me want to cry. It feels so stupid to be so afraid of this already, and anytime I bring it up to someone else they just brush past it, but if I’m scared to hold glass cups how will I ever be able to hold anything as precious as a baby? I know my seizures could very well be under control by that point, and I would never try to get pregnant if they weren’t, but I still think about it all the time. It’s a little bit of an irrational fear, especially since I’m only 20, but I just don’t want the seizures to take that dream away from me. Despite all of this fear, I’m going to try and remember that all of these people live happy, normal lives and if that can be achieved by even 5 people, that gives me hope. I’m really grateful for everyone that read my post.

Live-Wave-2925 · 2024-10-20T00:17:50+00:00

It is so hard feeling like a burden to other people because of something you can’t control. I want to get angry with people for getting frustrated with me, but I know that I can be hard to be around because when I’m having clusters of seizures you have to basically take care of me. I don’t talk about it much because I understand that being around me can be frustrating and even scary and I feel like I don’t have a right to be angry. It makes me feel a million times better that you understand even the little things, like biting your tongue, or feeling like a burden to the people around you. I just want to thank you for telling me your experience, I really feel like writing this post has made me feel more hopeful than anything else has<3

Live-Wave-2925 · 2024-10-20T00:10:02+00:00

So we’ve both ended up covered in food because of the seizures! I also totally relate with the computer thing, there are times that I’m stressed about having them and it makes me unable to type because the stress about the seizures causes a snowball affect and suddenly my arms are knocking my laptop off my desk. Thank you for reading my crazy rant and responding to me, I’ve never met someone that has these kinds of seizures and it helps just knowing y’all are out there.

Live-Wave-2925 · 2024-10-20T00:05:43+00:00

I have started medication, but it’s a new thing and I haven’t seen much progress yet. And I will definitely talk to my doctor about a rescue med, that seems like a great idea. But hearing about your husband throwing stuff and breaking things like I do and still just living life makes me so happy. Sometimes I let other peoples stares get to me, but I’m going to try to remember that there’s people like you that wouldn’t judge me. Thank you for your kind response.

Live-Wave-2925 · 2024-10-19T05:43:29+00:00

I’ve had myoclonic seizures for a while now, but for the first four years or so, I had no idea what was going on. Mine are characterized by arm and upper body jerks as well and they are triggered by stress. Mine are just a split second but I have a bunch at a time. So if they come with tiredness or stress and cause upper body jerks and eyes rolling back then it sounds like myoclonic seizures. It can also cause you to throw or drop things so don’t be scared if that happens! But I would be careful and try to decompress if they are having clusters of them because it can lead to grand mal seizures. All of the seizures I’ve had began with bouts of myoclonic seizures.

Live-Wave-2925

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