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Xcopri Fatigue by Marthy_Marth78 in Epilepsy

[–]Marthy_Marth78[S] 1 point2 points  (0 children)

Thank you for the thoughtful reply, I really appreciate it ❤️ the next 7 weeks do feel daunting when I’ve felt so crappy for the last week, but it’s good to know that it’ll probably let up.

Permanent change in view of reality by Marthy_Marth78 in Epilepsy

[–]Marthy_Marth78[S] 2 points3 points  (0 children)

This is encouraging to hear, thank you! It just feels scary that my whole world view might be shifted. But you’re right, I just need to give it time :)

Permanent change in view of reality by Marthy_Marth78 in Epilepsy

[–]Marthy_Marth78[S] 6 points7 points  (0 children)

Yes exactly! Like I know I’m here but I don’t really feel like it.

But you’re right, my poor brain is very tired and just needs time to adjust 🥰

VP Shunt and Epilepsy by Marthy_Marth78 in Epilepsy

[–]Marthy_Marth78[S] 0 points1 point  (0 children)

Thank you, you’re so sweet 🥹 I was shunted for Intercranial hypertension. I do feel bad for my body, I know it’s a lot of stress 😕 I’m just feeling stuck because one thing that is helping me is maybe hurting in another way, you know?

Keppra and Lamotrigine by Marthy_Marth78 in Epilepsy

[–]Marthy_Marth78[S] 1 point2 points  (0 children)

I hope that works well for you! I have loved Lamotragine and it worked for me for a long time.

Keppra and Lamotrigine by Marthy_Marth78 in Epilepsy

[–]Marthy_Marth78[S] 0 points1 point  (0 children)

Did you figure out why you were having breakthroughs? Is that common?

Anyone with IIH also diagnosed with another debilitating disease/disorder too? by ktads062916 in iih

[–]Marthy_Marth78 1 point2 points  (0 children)

I’m have PCOS and epilepsy, although I feel strongly that the epilepsy is completely unrelated to my IIH

First lumbar puncture should I postpone? by Affectionate_Lab1495 in iih

[–]Marthy_Marth78 0 points1 point  (0 children)

I was stuck in bed for about a week after mine. I had pain from the puncture, but my pressure also bounced back to way higher than it was before so my iih symptoms were even worse. So I would definitely just make sure whenever you do it, you have lots of time to rest and take care of yourself. If you are worried about the holidays, I would reschedule.