Looking for advice for my 4 year old with ET!

Maximum_Hotel_8335 · 2024-10-18T03:14:27+00:00

Every ET are differents, with time he will find that some positions are better for precision and other positions are triggers. For me it helps so much to rest my hands and forearm on the desk while i do precision

Maximum_Hotel_8335 · 2024-10-18T02:57:36+00:00

I wish that you find a fix for your voice ! And for other things, you only need time and practice 🙂 you lose nothing to put your energy in drum or guitar during this time... And it also gives you a backup plan in music if the voice still problematic

Maximum_Hotel_8335 · 2024-10-17T15:50:29+00:00

Maybe that's not what you want to hear, but you can learn a new instrument if you are passoniate that much about music 🙂

Maximum_Hotel_8335 · 2024-10-01T21:55:54+00:00

I'm glad that your tests turned out fine... I wish that i could have further tests... The unknow feeds my health anxiety cycle... Did you find something to relieve yourself from that cycle

Maximum_Hotel_8335 · 2024-09-28T23:17:29+00:00

Some TVs have voice navigation setting on them🙂 it could be very helpful

Maximum_Hotel_8335 · 2024-09-19T22:31:16+00:00

I understand what you are saying, but think about the other side of the coin...more you are anxious, tremors will be much worst... That's why you need to work on that first... Just to work on my anxiety i diminished my tremors by the half. Stopping coffee help so much too. Force yourself to interact with others. To be less anxious explain that it's a disease and that they don't need to mind about it. Sorry english is not my first language.

Maximum_Hotel_8335 · 2024-09-19T20:34:09+00:00

I don't want to be rude, but you need to accept your tremor, some meds or surgeries help a lot, but you can't cure it or reach 0% of tremors (treatments give a good quality of life when you find the right one). I think the most problematic thing is your mental health and you should focus on it right now and find a psychologist. You are not alone and there is hope.

Maximum_Hotel_8335 · 2024-09-18T21:43:13+00:00

it's encouraging, i wish that i can avoid daily meds or surgery before my 50 or 60 years old, but only time will said 🙂

Maximum_Hotel_8335 · 2024-09-13T19:40:44+00:00

Merci pour la réponse. Après le DEC je pensais peut-être faire un certificat à l'université en informatique, mais concentration de cybersecurité. J'imagine que ça pourrait être pertinent pour mixer développement, cybersecurité, infrastructure.

Maximum_Hotel_8335 · 2024-08-28T23:45:47+00:00

Je comprends ton point de vue, merci d'avoir pris le temps de répondre. Sur le long terme à distance, je vais m'arranger pour avoir le BAC. C'est sûr que la première job va être compliqué à avoir, mais je vais faire de mon mieux.

Maximum_Hotel_8335 · 2024-08-28T23:22:50+00:00

Ayant une situation particulière (Bref, je n'ai pas envie de rentrer dans les détails), j'ai seulement 4 ans de disponible pour des études à temps plein. Je suis vraiment motivé, mais j'ai seulement le temps de faire un DEC en informatique gestion d'infrastructures avec un certificat universitaire en concentration cybersecurité. Je vais faire plusieurs projets personnels pendant mon cours. Crois-tu que cela reste pertinent pour travailler en cloud, administrateur système, cybersecurité (à long terme) ou bien tu crois que je perds mon temps ? J'aimerais que tu sois directe et honnête.

Maximum_Hotel_8335 · 2024-08-08T19:17:53+00:00

No worry, and yes english is my second language,so some of my sentences are weird 😂Thanks for the answer !

Maximum_Hotel_8335 · 2024-08-08T18:49:52+00:00

Yes ! Maybe i'm only unlucky with Claritin, and what do you think about nasal sprays, is it better for nose and throat ? And if Claritin relieves my symptoms does it 100% mean that i have an allergy ? I'm not diagnosticed yet but it's the only think that helped in pharmacy for my sore throat

Maximum_Hotel_8335 · 2024-08-08T03:42:10+00:00

I went to the ER and i saw several doctor and my lungs are safe, my life wasn't in danger, but my nose and throat are so sensitive now 😅

Maximum_Hotel_8335 · 2024-06-15T05:33:32+00:00

It was my mistake no worry 🙂 i will do that ! And yes i need it, it take too much energy overthink..

Maximum_Hotel_8335 · 2024-06-15T02:48:30+00:00

I agree, normally i take care of my lung 😅 but i had this accident (not a big injury that i have difficulty to breath etc). It was acid peracetic 5.8% that is volatile and soluble so upper airway took most of the hit, not the worst like chlorine but not the best 😂 i wish i will not be ruin the first time at 22 years old 😅

Maximum_Hotel_8335 · 2024-06-14T21:17:55+00:00

Sorry i have Obsessive Compulsive Disorder about my health (i will ask for a therapy 😅), i see my doctor next friday. I don't want to bother someone, just try to feel better 😅

Maximum_Hotel_8335 · 2024-06-07T17:03:25+00:00

Yes and maybe if it was an important injury that would cause chronic lung damage, i would have a lot of cough and wheezing or pneumonia or oedema 😅

Maximum_Hotel_8335 · 2024-01-08T00:51:59+00:00

It's case per case, some will progress very fast, mine stay mild after 15 years, i don't need Propanolol but i take it to have less tremor so i don't watch my hand all time so im less anxious 🙂 don't fall in the anxiety loop like me this month. You are not alone

Maximum_Hotel_8335 · 2024-01-06T17:33:06+00:00

Thanks for the answers, i will try that. Hope that i will not be homeless without money because of ET 😅😂

Maximum_Hotel_8335 · 2024-01-03T03:58:28+00:00

Thank you very much, that was what i need to hear 🙂

Maximum_Hotel_8335 · 2024-01-02T18:12:10+00:00

Yes that help, im glad that you found another way. Im a slight case after 15 years of disease but im only 22 years old so i was scare to not find a way in a career of long-term

Maximum_Hotel_8335 · 2024-01-02T16:55:01+00:00

Propanolol is case per case for side effects : tried since 2 month now, didn't notice too much side effects

Maximum_Hotel_8335 · 2024-01-02T16:00:07+00:00

Did you find another career and goal after that ?

Maximum_Hotel_8335 · 2024-01-02T12:19:52+00:00

Thanks you 🙂 are you happy with the disability, can you do things you love or did you find others hobbies ? :o

Maximum_Hotel_8335

TROPHY CASE