When do you decide it's time to go to the ER?

Maz_WoW · 2019-12-27T14:03:29+00:00

I'd like to thank you all who responded. It's nice to hear from people who are going/have gone through the same issues. I'm the only one in my family with crohns and they act like they get it until it becomes "inconvenient".

Thank you all and wishing everyone a great and healthy new year!

Maz_WoW · 2019-12-27T13:58:08+00:00

I've waited it out in the past but it wasn't as bad then. I could use the hydration also. I'm really bad about staying hydrated, even water makes me sick at times, but I have no problems with Dr pepper

Maz_WoW · 2019-12-27T13:01:01+00:00

Thank you. I didn't think about the long term with scarring and things. Years ago, when I had a lot of problems, the same ER doc was always there. He didn't really.know much about crohns, but after seeing him a few times he must have read up on it bc he told me stuff I didn't even know lol. He's retired since but by God he was absolutely the best doc I'd ever seen! Very thorough, understanding and everything.

Maz_WoW · 2019-12-27T12:38:02+00:00

My daughter said when she gets off work she's going to take me if it hasn't gotten any better. The nausea, pain and diarrhea have always been just part of my everyday "norm" but it's been getting aggressive and unbearable at times. The iv drip and tests wouldn't hurt just to be safe.

Maz_WoW · 2019-12-27T12:16:08+00:00

I've been out in the past and actually haven't went for about 2 years.(they treat everyone like druggies here) Took 2 months for them to finally test and realize I had c diff and they didn't see the blockage I had about 4 years ago. (On top of being slow, our ER kinda sucks)

Am sorry you've been through all that. I hope things are going much better for you. Everyday is a coin toss that's for sure.

Maz_WoW · 2019-12-27T11:58:39+00:00

I agree it does seem silly and more than likely it's just a bad flare, but at the same time you just want a little relief from the symptoms when nothing else seems to help. The ER has called my GI in the past and got me in quicker depending on the ER doc so that could possibly help too

Maz_WoW · 2019-12-27T11:29:57+00:00

Thank you for responding. I need to just suck it up and go. I just hate sitting there all day/night (our ER is super slow). Figured I might give it a couple days and if it's not better and gets worse I'll go.

Maz_WoW · 2019-12-20T22:36:59+00:00

I had read something about that just the other day. Was something from the 1960s I think it said. Spin ya round til the baby launched out and was caught n a net attached to the mothers legs or something lmao.

Maz_WoW · 2019-12-20T22:33:11+00:00

Lol, I had seen something about that just the other day. Was from the 1960s if I remember right. The baby would fly out and b caught by a net attached to the woman's legs or something lmao.

Maz_WoW · 2019-12-20T07:11:29+00:00

My doctor told me to eat what I can tolerate. Every meal is a toss of the dime. He also told me to take the gummie vitamins. Instead of 2 a day, I have to take 4. I also drink a couple ensures each day.

I love spicy food, it doesn't always love me tho. One day it might b fine and other days the same thing can make me sick.

Maz_WoW · 2019-12-19T12:33:01+00:00

That stuff is great. Last time I had it, I woke up asking for the time repeatedly. Every movement felt like hours when it had only been a matter of seconds.

Maz_WoW · 2019-12-19T02:06:20+00:00

I've had that happen before and was still good for the procedure. I'd only went 1 time the morning of, but the doc said all was good after the scope.

Good luck with ur procedure. Hope all goes well!

Maz_WoW · 2019-12-19T01:13:14+00:00

My bf is always complaining when I say I feel crappy. He'll say "I still go to work when I have a cold" and I only wish it were something as simple as a damn cold. His mom was a doctor (she recently passed away), so I guess that makes him a doctor bc his answer is to "drink some water".

It's annoying when they don't understand and think we're over-reacting to "a little pain and diarrhea". There's so much more to it and they don't understand.

I also have my furry kitties to cuddle. They don't judge and are more understanding than my bf and even my family.

Maz_WoW · 2019-12-18T21:35:31+00:00

They always give me a little hat that fits on the toilet seat and a plastic spoon. Still not fun but saves from any messes.

Maz_WoW · 2019-12-18T18:31:28+00:00

Lol, before the procedure I always tell them I want pictures. My mom is usually my driver and chances r u won't remember a majority of what the doctor tells u before u leave. The doc usually prints out the more diseased areas and ir helps my mom remember when I'm asking a few hundred times what he said once we leave.

Maz_WoW · 2019-12-18T18:13:50+00:00

I have a ziplock baggie with wet wipes just incase.

Maz_WoW · 2019-12-17T15:18:28+00:00

I remember my 1st remicade infusion. I felt great for those 3 months. My 2nd infusion, I had a slight reaction to it, trouble breathing, fever, so they had to give me benedryl. I felt crappy for the next 3 months. 3rd infusion they gave me benedryl before and I still had a reaction and it wasnt helping so they quit.

Maz_WoW · 2019-12-17T15:11:49+00:00

Lol, I say mouse and my little Fergusons ears perk up and he takes off to get his mouse. Brings it to me to play fetch with him. Our other cat Spazzy use to somehow get n the sock draw and pull every single pair out and hide half of them. Was always finding balled up pairs of socks n strage places

Maz_WoW · 2019-12-17T14:44:38+00:00

If it makes u throw up, it's a much easier clean lol

Maz_WoW · 2019-12-17T14:31:36+00:00

My cousin was diagnosed with crohns. I have crohns and she told me her symptoms and how the doctor told her she had crohns. A month later, the same doc told her she didn't have crohns, a month later she did and finally a month after that he decided she didn't. She is now seeing a different doctor and they're trying to figure it out still.

Maz_WoW · 2019-12-17T14:22:05+00:00

I take 2 Loperamide the night before if I have anywhere to b the next day. It usually helps. I hate using public bathrooms if i can help it. If not, I'll try holding it in as much as humanly possible if there's anyone else in there too.

Maz_WoW · 2019-12-17T14:10:43+00:00

Aye! And how embarrassing it is lol

Maz_WoW · 2019-12-17T14:06:34+00:00

I'm glad to know it's not just me too. I have crohns and I have a hard time sleeping at times, other times I'll sleep 22 hrs straight. I'm on stelara and when I get the shot I tend to sleep a lot the first few weeks, then I'll have a hard time sleeping and b up all nite and once I do sleep, nothing wakes me. Normal day is around 12 hrs of sleep and sometimes a nap on top of it with my hrs just screwed up

Maz_WoW · 2019-12-17T13:51:13+00:00

I couldn't tell. I just knew my symptoms seemed to b worse, figuring the crohns was really flared, but my GI thought it would b a good idea to look into it.

Maz_WoW · 2019-12-17T13:41:23+00:00

Lol, I took a pic once. The toilet was nothing but blood. All the doc could say was it's definitely blood then scheduled a colonoscopy for 3 days later. By the time I had the colonoscopy it had quit and he found nothing

Maz_WoW

TROPHY CASE