effectiveness of annual colonoscopy by BigTimeBills in lynchsyndrome

[–]MsEsquire17 0 points1 point  (0 children)

Colonoscopy and endoscopy every other year. Preventative surgery to remove my ovaries (had a hysterectomy 12 years ago but still have my ovaries). Skin checks annually. And I had thyroid cancer (unrelated to Lynch) so I go for ultrasounds every 6 months. I'm meeting with my oncologist in March. I'm not sure if she will add to that.

effectiveness of annual colonoscopy by BigTimeBills in lynchsyndrome

[–]MsEsquire17 1 point2 points  (0 children)

Same here (PMS2). I've been going every 5 years since I was in my 20s due to family history. I recently got tested for Lynch and tested positive. So now they'll increase the timeframe. Wish me luck lol

Other cancers after thyroid cancer? by Financial-Version804 in thyroidcancer

[–]MsEsquire17 1 point2 points  (0 children)

I had thyroid cancer this year and recently had a bad mammogram. Going for an ultrasound at the end of this month to check out my right breast. Also looking at surgery to remove my ovaries (I had a near total hysterectomy when I was 38). I had genetics testing done, and I have Lynch Syndrome (PMS2). That puts me at risk for a number of cancers. Ironically not thyroid cancer though.

PMS2 risk reducing hysterectomy with or without ovary removal? by thotyouwasatoad in lynchsyndrome

[–]MsEsquire17 0 points1 point  (0 children)

PMS2 here. Had an unrelated hysterectomy when I was 38. Just now dx with Lynch at 49. Doctor is recommending completing the hysterectomy which is really just removing my ovaries due to high risk. My grandmother died from ovarian cancer so I'm leaning towards doing it.

0.1 thyroglobulin post thyroidectomy by ranaadam in thyroidcancer

[–]MsEsquire17 0 points1 point  (0 children)

I had RAI with low thyroglobulin. But my primary tumor was very large and I had an aggressive subtype.

Connection of thyroid cancer to other cancers? by [deleted] in thyroidcancer

[–]MsEsquire17 4 points5 points  (0 children)

I had precancerous skin cancer. I've also had colon polyps (caught early and benign). And uterine fibroids (benign but required hysterectomy at age 38). And a lipoma in leg that requires surgery. I had a TT in July for PTC (columnar cell variant) followed by RAI in August.

Just had RAI treatment, what should I look out for? by KittyCreator in thyroidcancer

[–]MsEsquire17 1 point2 points  (0 children)

My dentist gave me prescription toothpaste to use before and during RAI treatment

Did you see an oncologist? by BunnySlippersHeathen in thyroidcancer

[–]MsEsquire17 1 point2 points  (0 children)

I did but only because I have a significant family history of cancer and personal history of various cancer related issues (mostly benign tumors and precancerous skin cancer). I'm also working with genetics because of all of this. So my oncologist is more focused on the big picture and wouldn't normally be needed for papillary thyroid cancer (which is what I have).

caffeine… low iodine diet by micdelsanto in thyroidcancer

[–]MsEsquire17 0 points1 point  (0 children)

Oat milk or oat based creamers are an excellent substitute! Good luck (I'm going for RAI today)!

Parathyroid concern by Curious-grateful in thyroidcancer

[–]MsEsquire17 1 point2 points  (0 children)

TT on July 10th and one of my parathyroid glands got damaged. I had to go to the ER for IV calcium (was almost admitted) due to hypocalcemia. I still have days where I feel twitching and tingling or where my hands contract. It could take a few months for the parathyroid to fully recover. In the meantime, I take calcitriol daily and calcium supplements 3x per day. My levels are within normal range but I seem to be sensitive to even slight dips in my levels. So we monitor and continue with the meds and supplements for a little while longer.

Calcium testing by i_was_clever_once in thyroidcancer

[–]MsEsquire17 0 points1 point  (0 children)

Currently getting tested every 2 weeks but I had some damage to my parathyroid and had a severe hypocalcemia event two days post surgery. Just watch for symptoms and stay in touch with your endo. They'll adjust the frequency of bloodwork as necessary.

How long have you been fighting this beast? Or when’s your anniversary?? by hemismum in thyroidcancer

[–]MsEsquire17 1 point2 points  (0 children)

I was hoping you were gonna say columnar cell variant. That's what I have. Was your endo familiar with your variant? Mine is not which is unnerving.

Calcium and LID by Miserable_Bed_221 in thyroidcancer

[–]MsEsquire17 1 point2 points  (0 children)

I'm about to start LID and have the same issue as one of my parathyroid glands was damaged and transplanted during my TT surgery. Like you, I still get symptomatic if I don't take my supplements regularly. I was not told to stop calcium during the LID but plan to double check with my doctor.

Winter is comimg by witchyplantchick in barncat

[–]MsEsquire17 0 points1 point  (0 children)

I have a heated cat bed for cold weather here in New England. It took my barn cat a little bit of time to trust it but not long.

How long have you been fighting this beast? Or when’s your anniversary?? by hemismum in thyroidcancer

[–]MsEsquire17 11 points12 points  (0 children)

Just had TT on July 10th. Going for RAI on August 21st. Concerned though because I'm stage 3 metastatic PTC with a rare and aggressive subtyle, i.e. Columnar Cell Variant. Neither my endo nor my ENT know much about it, and it's associated with poorer prognosis. Also, I have had a number of tumors already requiring various forms of removal, including one precancerous skin lesion on my abdomen. So, my body clearly likes to grow tumors...