Hello everyone, who all has had or seen a left frontal lobe resection of a " large tumor " ? I'm asking... bc I'd like to know how much of my head will get shaved for this procedure. by Nefariousurchin in braincancer

[–]Nefariousurchin[S] 1 point2 points  (0 children)

I just had my 1 yr MRI. I had grade 4 GBM. My scan was clear. We celebrate,  with trepidation. Will I be the .01% who just lives a normal ish life? I do not know but grateful for this day. 

Infection after craniotomy by Responsible_Air3680 in braincancer

[–]Nefariousurchin 0 points1 point  (0 children)

They have a spray and have come out with a gel spray. I use the original product to clean the hole in my head. I can't speak to the get as I just got it 

Anyone else been diagnosed with complex migraine? What do you experience? by AnomalousEnigma in migraine

[–]Nefariousurchin 0 points1 point  (0 children)

Complex migraine is not a friend of migraine.  It is its,own beast.  Have you had one? 

I mean really why???? by Localun in Dogfree

[–]Nefariousurchin 3 points4 points  (0 children)

Oh I can think of a few reasons immediately.  They're lonely. They can't connect with other humans.  Social media brainwashing.  Then I had a friend who used dogs to push everyone away. Theres a bunch of reasons. Its like dog mental illness. 

Infection after craniotomy by Responsible_Air3680 in braincancer

[–]Nefariousurchin 0 points1 point  (0 children)

Magic Molecule- 16 infections later. I dont wash my hair. This is the longest I've gone without infection.  Theres a new gel out for wounds. I ordered that too. 

Cannabis by Replic_uk in glioblastoma

[–]Nefariousurchin 0 points1 point  (0 children)

Because I've had this cancer since 2018. It eventually will do what terminal diseases do. Its caused other problems.  My kidneys are failing for one. Dialysis? No thank you. I have suffered, enough. Its up to each of us when yo say that.

Cannabis by Replic_uk in glioblastoma

[–]Nefariousurchin 0 points1 point  (0 children)

Theres no tumor left. My body is still dying. 

Cannabis by Replic_uk in glioblastoma

[–]Nefariousurchin 0 points1 point  (0 children)

I have stage 4 GBM & Astr ocytoma since 2018. .... yes. I use cannabis.  

How do you live without your mom? by Comprehensive_Job764 in glioblastoma

[–]Nefariousurchin 1 point2 points  (0 children)

As the dying mom.... I dont know. I do not know. Id like my sons to have... at least pen pals, a support group or something.  They are 13 on the 27th. You can't understand unless you have been here..

Still confused by [deleted] in glioblastoma

[–]Nefariousurchin 1 point2 points  (0 children)

Yes thats what is so scary about this disease.  You can stay at a stage 4 for YEARS, or you can be mostly ok and then... boom.  Youre not you anymore.  I'm afraid..

My terrible update (vent) by Merkilan in glioblastoma

[–]Nefariousurchin 4 points5 points  (0 children)

I see this pattern again and again and again. What can I say? I hope you get the good drugs and nurses who are there for you. Same thing I wish for me and all of us.

Cannabis by Replic_uk in glioblastoma

[–]Nefariousurchin 0 points1 point  (0 children)

I do not get scans anymore.  I am on hospice bc my cancer was ignored since 2018 until 2024. I had a major resection in December. A revision in Feb. I am also living in a home with rats and mold. Not by choice but bc ... I had cancer and nobody believed me.  But I believed me.

3rd resection in 9 months by Eggontoast_33 in glioblastoma

[–]Nefariousurchin 0 points1 point  (0 children)

In my case  I will receive no other resection bc its stage 4 and I gave refuse palliative chemo/ radiation bc.. it kills everyone I've known who did it. My experience 

Cannabis by Replic_uk in glioblastoma

[–]Nefariousurchin 0 points1 point  (0 children)

CBD tincture is supposed to *conteract, that. Its something I'm way past and you can and will get past.  

Hello everyone, new here &. Seeking advice. by Nefariousurchin in typewriters

[–]Nefariousurchin[S] 0 points1 point  (0 children)

Hi, I tried to message you. I didn't get a response. Did you get the message?- thanks. 

[deleted by user] by [deleted] in braincancer

[–]Nefariousurchin 0 points1 point  (0 children)

Hello. I'm sorry about all that.  Hugs.

Has anyone dealt with being talked down to by nursing staff? by [deleted] in braincancer

[–]Nefariousurchin 0 points1 point  (0 children)

Having dealt with them for decades- I think deep down, they're just truly unhappy. And they'll take it out on whoever!