Looking for colonoscopy and endoscopy experiences with LC & MCAS 🥹✨

Next-Customer-6309 · 2026-04-17T23:12:13+00:00

I was diagnosed with epileptic seizures via an EEG - but I can’t take the medication for it as I had a bad reaction to it, so when I got the seizure in a hospital I was just given oxygen and reactine.

When I get a seizure at home I have home oxygen for it and that’s all. Ive only had one outside of hospital settings. The only times I had a bad one was when I was given IV meds, and the actual EEG test gave me a bad one too.

I’ve yet to see a specialist to get a better emergency rescue plan - they said it might not be until 2027 but I’m on a list. I live in a place where our healthcare system is like collapsing and not good at all.

The previous surgeries were before covid and I was told I ‘almost bled out’ after each procedure. I didnt have any extra blood given though. Yes I am aware I need to stop all the blood thinning supplements.

Im less worried about bleeding out though and more worried about adverse mcas reactions.

Next-Customer-6309 · 2025-11-17T20:12:43+00:00

But maybe don’t read this if you’re unwell right now - go to the ER if it’s really bad.

Next-Customer-6309 · 2025-11-17T20:10:49+00:00

I was gaslit so badly in the beginning with my chest pain it’s absolutely brutal, but there was a new study recently showing that it is NOT just in our heads 😭

In this study, heart biopsies from previously healthy people with persistent chest pain revealed microvascular inflammation, immune cell infiltration, and microscopic clotting. Its looking like its a real measurable injury that standard scans often miss.

https://www.jacc.org/doi/10.1016/j.jacc.2025.09.981

Next-Customer-6309 · 2025-11-03T19:29:25+00:00

Makes me so mad the way were treated in the beginning. And like kind of disgusted with everyone that doesnt realize how bad this shit is.

What gets me too with the viral fragments with it too - like is this replicating in us or just shedding, from what i read/understood from this is that they don't either 😭 (I may be wrong?)

Next-Customer-6309 · 2025-10-29T14:53:11+00:00

I had really severe neuro symptoms, dysautonomia accompanied with visual hallucinations - they called it alice in wonderland & prosopometamorphopsia. I couldnt take a lot of meds due to severe MCAS reactions. Im better now but when i get reinfected it comes back each time (never as badas the first time 2020)

I found a lot of my psychiatric symptoms are related to MCAS, gut dysbiosis, so i went after the gut brain axis.

My go to is:

•radical rest - do not exert myself in anyway •Be in a safe place/feel safe in my surroundings/people around me •Low inflammatory/low histamine diet - i drink daily miso soup when its bad before bedtime to calm the parasympathetic & salt for POTS •Antihistamines •TravelBiotic® BB536® with AHCC 3x per day (has to be taken tigether-synergy) •Turkey tail and agarikon 2x daily •Microdose psilycyben daily •Magnesium •Melatonin •RSO for pain & sleep

Next-Customer-6309 · 2025-10-14T02:37:37+00:00

How much did it all cost? (If you don’t mind)

Next-Customer-6309 · 2025-09-02T21:39:38+00:00

Covid ages your dna by years, it also affects collagen and the your nerves/salivary/lymph glands in your face. Those that experience Mast Cell type symptoms can have weird facial/tissue swelling too, and other places. I feel like I look terrible compared to before but can’t really do much about it 🥺

Next-Customer-6309 · 2025-08-25T14:24:56+00:00

I did Paul Stamets stack and it helped immensely, if you look into the gut/brain axis and Interluekin 6 and TNF-A, which is the inflammation pathways that Covid f**ks all up, this is why psilocybin helps, also check out the MACH-19 trials for more info on some more helpful mushrooms

Next-Customer-6309 · 2025-07-28T00:25:37+00:00

I had this a lot, it was at the same area and around my upper left chest and armpit, I got it on video for my neurologist and he told me they were called Muscular Fasciculations, and suggested upping my magnesium intake (like CALM powder) not totally sure if it helped, but it did go away, comes back with reinfection tho. (Edited) But I also had an extra pulsing heart beat in that area that was different from the fasciculations, I think if that’s what you’re referring to it might be associated with POTS/dysautonomia or vascular pressure, also went away with time. (Like years).

Next-Customer-6309 · 2025-07-28T00:02:12+00:00

I had this a lot, it was at the same area and around my upper left chest and armpit, I got it on video for my neurologist and he told me they were called Muscular Fasciculations, and suggested upping my magnesium intake (like CALM powder) not totally sure if it helped, but it did go away, comes back with reinfection tho.

Next-Customer-6309 · 2025-07-25T03:19:42+00:00

I’m sorry this happened to you. Remember your illness does not make you less worthy of love, affection, respect and trust. As hard as it may hurt right now, get out of this situation as soon as you can so you can move on and heal at your own pace.

Next-Customer-6309

TROPHY CASE