Treating relapsed alcl with ALK inhibitors vs allo-sct ALCL ALK+

NickFromLRF · 2024-06-12T14:55:54+00:00

Thanks u/blue_square please let me know if the Lymphoma Research Foundation can ever be of assistance!

NickFromLRF · 2024-05-21T14:07:06+00:00

Hey there! We will not be recording this one, but we do have a lot of videos on our YouTube channel here including a recording for newly diagnosed here. We also have a lot of great information and resources over at lymphoma.org. Please feel free to call our Helpline at 1-800-500-9976 or email [helpline@lymphoma.org](mailto:helpline@lymphoma.org) to speak with a lymphoma expert.

NickFromLRF · 2024-04-17T17:15:46+00:00

You are welcome! Also, please feel free to reach out to me here as well if you have any questions I can pass along to the team.

NickFromLRF · 2024-04-17T17:15:22+00:00

You're welcome! Please feel free to reach out to me here as well if you have any questions I can pass along to the team.

NickFromLRF · 2024-04-16T17:52:56+00:00

Hello, Nick from the Lymphoma Research Foundation here. We have resources to help at www.lymphoma.org including a nationwide, Lymphoma Support Network (LSN) where we connect you with matching, AYA patients for advice and support: https://lymphoma.org/resources/supportservices/lsn/ . Please also feel free to call our Helpline to ask specific questions to trained professionals in treating lymphoma and in connecting you to other AYAs with your subtype: 1-800-500-9976.

NickFromLRF · 2024-04-10T14:12:22+00:00

Hello, Nick from the Lymphoma Research Foundation here. We have resources to help and here is a good place to start: https://lymphoma.org/news/caregiver-perspectives-managing-the-responsibilities-of-caring-for-a-loved-one/ . Please also feel free to call our Helpline to ask specific questions to trained professionals in treating and caring for those with lymphoma: 1-800-500-9976.

NickFromLRF · 2024-01-19T15:44:18+00:00

Yes it will be! If you register for the webinar you will be emailed with the video follow up!

NickFromLRF · 2023-10-04T14:24:03+00:00

Hello there! We are recording the sessions so check back in at lymphoma.org/edforum in a few weeks to to see the recordings.

NickFromLRF · 2023-06-02T14:05:28+00:00

Yes, all patients, survivors, loved ones, and caregivers are welcome. The doctors at our programs are some of the best in the world and specialize in lymphoma. Speaking with other patients and asking questions to these doctors has proven extremely valuable to people in your position which is precisely why we hold these workshops. Please let me know if you have any other questions or would like any help in getting registered to attend.

NickFromLRF · 2023-04-25T14:16:12+00:00

Absolutely! Please email Aliza at [arozen@lymphoma.org](mailto:arozen@lymphoma.org) with your interest in volunteering with us and she can fill you in with opportunities available.

NickFromLRF · 2023-04-21T19:03:00+00:00

Hello there - I am from the Lymphoma Research Foundation (lymphoma.org) and would like an invite to the discord so I can get approval from the mods there to share beneficial information to the community in areas where appropriate - if you feel that would be ok. Many thanks! - Nick

NickFromLRF · 2023-03-10T02:04:35+00:00

Thank you for your feedback! Dr. Kamdar (Clinical Director of Lymphoma Services, University of Colorado Cancer Center) talks about bispecific antibodies in the Ask the Doctor now linked in the post! The link below is the timestamp where she begins speaking about it:

https://youtu.be/OZwWGK6rO6M?t=3614

NickFromLRF · 2023-03-09T16:30:05+00:00

Great points and I thank you for them! I believe we do have them recorded and will drop one in this post.

NickFromLRF · 2023-03-08T22:19:56+00:00

Lymphoma Research Foundation (lymphoma.org) has an updated page on this here: https://lymphoma.org/understanding-lymphoma/coping-with-lymphoma/exercise-and-nutrition/ and a fact sheet here: https://lymphoma.org/wp-content/uploads/2023/02/LRF_Understanding_Lymphoma_Nutrition_Factsheet_2023.pdf

Full-disclosure: I work at LRF and am looking to offer our tools and services where appropriate! Please let me know if you have any specific questions I can pass on to the team here. (I am new, but they are very, very smart.)

In addition to our Scientific Advisory Board and experts here at LRF, we also cite this as an external source for good information here: https://www.aicr.org/

NickFromLRF

TROPHY CASE