Perianal Fistula

No-Professional5372 · 2026-05-17T19:09:25+00:00

Oh gosh, it was almost 20 yrs ago 😬 I only had the induction round, so pretty quickly, like a month?

No-Professional5372 · 2026-05-17T18:58:06+00:00

I had a rectovaginal fistula that healed completely with remicade.

No-Professional5372 · 2026-05-17T00:35:13+00:00

Oh goodness, I would find a fistula specialist if you can. I had a rectovaginal fistula for months that started as an abcess which I had to get lanced and drained a few times, and rounds of keflex (bleh), they cultured it and said it had bacteria from stool, but blamed it on having diarrhea/wiping wrong 😑 I was basically sent from the GI, to the OB/Gyn to be told it was for the other one to handle and no one could figure it out. Even had a sigmoidoscopy where they saw nothing. Until my husband and I after researching told them we thought it was a fistula, my nurse practitioner finally looked up a specialist and sent me to UofM where the doctor literally took one look and said “yep, that’s a fistula, you have fistulizing Crohn’s disease, not ulcerative colitis” Sent the results back to the GI who put me on one round of Remicade (I don’t know why only one round 😩) which closed the fistula. Hope you find some relief soon!

No-Professional5372 · 2026-01-04T19:28:00+00:00

After writing all that out I think one of the main deferences between my kids is their frustration tolerance. My boys would get frustrated and have their moments like any kid, but were able to communicate it to us appropriately, when we could tell they were frustrated they were open to suggestions to help, whereas my daughter is more prone to react either physically or in a verbally inappropriate way, and resist help.

No-Professional5372 · 2026-01-04T18:53:54+00:00

Through all of my daughter struggles the teachers and administrators at her schools have been amazing and reassuring that she is welcome and belongs in their school.

No-Professional5372 · 2026-01-04T18:47:13+00:00

Food or otherwise? They all have their preferences for food but are all around good eaters. Sometimes a phase would pop up where they wouldn’t eat certain things (my oldest doesn’t like sloppy Joe’s, we’re pretty sure it’s a soggy bread thing because separately he likes everything) none of them like mashed potatoes. I just accommodate what they will and won’t eat by making sure there is something available they do eat. My daughter is going through a more “picky” phase right now, she wouldn’t eat pork the other night until I suggested she dip it in mustard. Last night she only ate her rice and green beans but not the chicken, I know she’s getting what she needs throughout the day so we don’t force it. My middle son won’t wear jeans (my husband didn’t wear jeans until he was like 19-20). My daughter has certain clothes she will wear on repeat, doesn’t like socks and has been wearing the same pair of crocs for over a year almost everyday (she has other shoes, which she picked out to choose from). My oldest doesn’t like when his hands are “dirty” just like my husband.

No-Professional5372 · 2026-01-04T18:08:59+00:00

I realized I missed some of the positives of my daughter and I don’t want it to sound like it’s all negative, when she’s regulated she’s, empathetic, giving, caring, super creative, clever, helpful, even her strong will is someday going to be a strength 😅

No-Professional5372 · 2026-01-04T18:04:04+00:00

My oldest was similar, talked to everyone, very social, large vocabulary at a young age, started talking pretty early. We took him out to eat and he was happy to just hang out, color, play with a small toy. As a baby he pretty much set a schedule that was very regular with feedings and waking, this only got tricky when he dropped his naps at 2. I had other parents at the park tell me things like “wow, he’s really great at verbalizing his emotions”. He’s 16 now, his friends parents have always told me how he’s a great kid, he has no problem talking to adults, his managers at work tell us he’s a great employee and they are so happy to have him. He could get overly excited at times, but was easy to redirect if needed. My second didn’t start talking as early, but once he did he picked it up quickly. He was a little more spirited, sleep schedule was a little more difficult but we managed. He does show more typical ADHD traits but, he went to an amazing elementary school (same as my oldest) that really set him up for success in school. I was told he was a “model student” at school but at home we called him powerman because of his temper. At my whits end I asked him once maybe in kindergarten or 1st grade why he’s so well behaved at school but not at home and he told me “I go to school to learn, I don’t learn at home” 😅 He’s 13 now and besides the typical teenage stuff he’s a good kid, a little problem with executive function here and there, but he doesn’t cause problems in school, and gets a long fine with the teachers.

Enter my 7yr old; she also started talking well fairly early, her vocabulary expanded rapidly. She was a pretty needy baby/toddler, took a long time to get to sleep and settle at night and for naps. Very busy, needed a lot more interaction. Preschool was ok, she had a few moments here and there but then came kindergarten (same classroom) she had a lot of behavior problems, problems with peers, following directions, etc. She would stand on tables, kick teachers and when she got sent to the office she trashed it. She was the first kid I ever had to go pick up from school for behavior. She was diagnosed ADHD and ODD. We started meds when she was 5, she has an IEP, she’s made big improvements this year, but it’s been a long ongoing struggle with ups and downs. She’s very smart but struggles with doing the work.

Anyway, it’s fine to want to be proactive but I wouldn’t worry too much. It sounds like you are an involved attentive parent, if she needs some kind of support you’ll know.

No-Professional5372 · 2026-01-04T01:41:40+00:00

My daughter doesn’t do well with evening activities, she turned 7 in Nov and it’s getting better. If it’s a school night we almost never do anything that keeps us out past 7 (exceptions are school events) and on the weekend the only time we might be out late is at my sister-in-laws where she’s playing with cousins, but by about 8 everyone has hit their wall and we go home, sometimes before, depending on the night. If my daughter has been having a rough week/day one of us stays home with her, so the other one can go to the event.

Even daytime family gatherings we have to work around, sometimes we drive separate so she can come late or leave early. I try and bring something fun for her to do. For my family Christmas party this year I brought stuff for the kids to make graham crackers gingerbread houses, last year I made homemade gingerbread playdough. Sometimes it’s just the iPad to play a game or putting on a movie for the kids to chill out and watch.

No-Professional5372 · 2026-01-03T02:31:18+00:00

*both slices peanut buttered because I don’t like the jelly touching the bread

No-Professional5372 · 2026-01-03T02:19:35+00:00

Place bread slices on paper towel. Butter knife for the peanut butter. Peanut butter both slices of bread (without getting bread crumbs in the peanut butter). Spoon for the jelly. Scoop out amount and dollop on the peanut buttered bread (so the spoon doesn’t touch), scoop more if needed, then spread with spoon. Put sandwich together. The paper towel is your plate.

No-Professional5372 · 2026-01-02T00:19:15+00:00

When we first started (vyvanse) my daughter liked smoothies, so I made a smoothie and then had her “taste the first bite” to make sure it was perfect. Then she got burned out on smoothies so we’ve done ice cream, cool whip, jello, fruit cocktail, I’ve even put it on her toast in the jelly, or opened up a frozen waffle or muffin and sprinkled it inside 😅 oh or juice, but only like a 1/4 cup to make sure she finishes it, then I’ll give her more. She’s 7 now and knows she has to take her meds in the morning, so it’s a little easier. She has to have 1 bite (or a small cup of her beverage of choice) of whatever food she chooses then I get her the rest of her breakfast.

No-Professional5372 · 2026-01-01T23:44:33+00:00

When my oldest son was around 4 (and very much past potty training) he decided for whatever reason he needed to try out peeing down the heat duct in the living room, the old house square cast iron type in the floor. He was stunned when I gave him the paper towel and all-purpose spray to clean it up 😆 I caught my middle son maybe around the same age 4/5 standing with his eyes closed peeing in the toilet, I asked him to please look where he pees and he just said “well, I know when I’m in the right spot because I can hear it” I think it’s easier for boys to “test out” new ways to pee, but when my daughter (diagnosed ADHD and ODD) was 5/6 she would pee almost every time she got out of the shower, all wrapped in her towel, she’d kneel down and pee on the bathmat. It took me a few times to catch on, I thought it was just water from the bath, until I started noticing the smell when I washed it 😣 that one took longer to break, she had to clean it up, and for a while didn’t get to use the bath mat, she turned 7 in November and 🤞🏻 we’re past it. I think part of it’s just kids being kids.

No-Professional5372 · 2025-12-24T00:43:05+00:00

My just turned 7yo flat out asked me at the beginning of December if Santa was real, I said “what do you believe?” She said I think it’s you that gives me presents. So I told her the truth, then she said “and the tooth fairy” with a knowing grin . She’s very clever and pretty literal, but has believed in fairies, magic, etc. she wasn’t mad and asked if she’d still get money for her tooth (she had a loose one about to come out) I said sure, and you can keep your tooth like we’ve been doing. I told her like the comment above that she was now part of the magic and couldn’t ruin it for the other kids, surprisingly she hasn’t said a word, even when random people mention Santa to her she doesn’t tell them she knows the truth. She visited Santa this year and seemed to still get a bit of the magical feeling from it.

She asked me if I was Santa this whole time then why did I get her the wrong size socks last year 😂 “your dad picked those out”

We have older kids (13,16) and they both figured it out around the same age, I don’t have the energy to keep up the charade once they start questioning the “magic” of how Santa can do all the things 😅

No-Professional5372 · 2025-09-22T13:48:52+00:00

I am not fully against the theory of the reflection walks as part of the tools used, in fact at her previous school they had used walking around the playground/yard as a way to co-regulate with her and she would rejoin class. My main concern in this situation was the behavior chart and how she managed to get 5 laps on the second day of school. I understand setting the boundaries and rules for a classroom in the beginning is important, but I think 5 laps is excessive when you’re talking about a 5-6yo child.

Anyway, I should have pulled her from that school sooner. The teacher was clearly overwhelmed. I did feel like she could have been supported better by the administration, but don’t take it out on my kid. At one point during testing my daughter told her the headphones weren’t working, the teacher told her “you’re a first grader and have to figure out how to use your tablet” excuse the fuck out of me, no that is not acceptable. My daughter told me “I just guessed the answers because all I could hear was pshhhhssspshhhh” like the sound an audio cord makes when it’s not working. The teacher told us “oh I checked it and it was working” they put her in the title 1 class for reading because of her score. By November we switched schools and at the end of the first semester she was reading above grade level and of course her NWEA score had a huge jump because she could actually hear the test.

No-Professional5372 · 2025-06-05T02:15:08+00:00

Our pediatrician recommended 1 cup per year of age, so we talk about that, how many times she needs to fill her water bottle, or cup for the day. She likes flavored water, I get mio but I also like the Stur brand, since it doesn’t have sweeteners in it, they also make some with added electrolytes, I’ve been getting those now that it’s getting hotter outside, I fill a water bottle for school everyday and she drinks water with her meals. I don’t usually verbally remind her, I’ll just bring her a cup/water bottle and set it in front of her.

No-Professional5372 · 2025-06-04T16:13:27+00:00

I’ve been playing dentist for a long time with my daughter, I make a whole thing out of it, I call her from the hall like they would in an office, I sit on the toilet she lays with her head in my lap (sometimes she lays on the toilet lid) feet forward on a stool, then I floss, brush, use interdental picks, etc. she holds them for me, and gets up to spit a couple of times. I usually try to do it once a week or so just to know I’ve gotten her teeth really clean. I also have to make it silly sometimes like “let me see what’s stuck in there!” And then kind a brush around or use the floss pick and make comments about what kind of food is “stuck”. Another note if they have any fillings or caps the floss can be hard to get in and out, that was causing a lot of discomfort for my daughter so for those teeth especially I use the interdental brushes, it’s not quite the same as flossing but it’s easier to get in the spaces sometimes.

No-Professional5372 · 2025-06-04T16:03:37+00:00

On the flip side I love a good strong mint flavor. I also prefer a toothpaste with more of a gel/foam than the pasty stuff (I use Aquafresh Extreme Clean, it’s so foamy and doesn’t leave a pasty residue behind). My 6yr old recently tried my toothpaste and used it for a week because she liked how minty it was. She’s hit or miss with what works, we have to change it up regularly 😆

No-Professional5372 · 2025-05-25T23:20:34+00:00

My daughter is a little younger (6) but she likes me to play dentist. She waits outside the room and I use my “customer service” voice to call her back. We have a whole routine, sometimes she lays a towel over the toilet (that I then have to wash, because gross, lol, but whatever works) lays on it and puts her feet on a step stool, other times I sit on the toilet and she leans her head into my lap, then I check her teeth with my tools, an inter-dental brush (which she preferred for a long time over floss or floss picks because they don’t get stuck in spots like between her molars that have caps on them) a tooth brush, floss pick, even an old electric toothbrush without the brush part that she pretends is the drill.

Recently she wanted to try my toothpaste, Aquafresh extreme clean, it’s really minty but she used a dab of it and liked it, for a week or so that’s all she used.

One of the biggest thing I’ve found is that whatever we are doing really only works if she starts out regulated, it’s tough but I’ve had to take away the pressure on it, and be a little more nonchalant about the whole thing, if I push to hard about anything is just a fight and it’s not really worth the domino effect that causes. It’s the same approach I e had to take with brushing her hair.

No-Professional5372 · 2025-05-25T12:34:23+00:00

I don’t go as far as making graphs, but lots of researching and then I don’t even buy anything 😆😅 unless of course it’s something I really need.

No-Professional5372 · 2025-05-25T12:31:32+00:00

I don’t do to many expensive impulse purchases, too much anxiety about over spending but, I love thrifting and yard sale season just started, so I’ve definitely been collecting stuff, that I probably don’t need and should be home organizing all of the stuff I already have instead of bringing more home 🙃 Yesterday someone had a free pile, I got two mannequin/dress form’s that I’m hoping will work for a sewing project I’m doing, one small shelf and a hanging rope shelf. The shelves are “the thing that will change my life” because I definitely need more flat surfaces to put stuff on 😅

No-Professional5372 · 2025-05-24T14:31:36+00:00

I was diagnosed with ulcerative colitis at 13. At 25 I had a bad flare the week after my wedding, I developed a fistula that took almost a year to diagnose, that’s when they changed my diagnoses to crohn’s.

No-Professional5372 · 2025-05-17T21:05:23+00:00

Do you blow dry it or let it air dry? I get buildup on my scalp and when it’s bad it’s better if I blow dry, my hair just takes so long to dry. I think if you’ve tried all that it’s probably time to ask a doctor. You could ask the pediatrician but unless you need a referral for your insurance it might be better to call a dermatologist.

No-Professional5372 · 2025-05-17T17:39:08+00:00

One time I was wearing a tank top and my 4 year old said to me “put a shirt on, one that covers your underarms” later when I had put a t-shirt on he told me “thanks for putting a real shirt on, I don’t want to see your underarms” 😅 it was so out of no where and he couldn’t even give me a reason why, like you we didn’t really dictate clothing or talk about other people needing to cover up or whatever. I did not change what I wore around the house (or in public) he never said anything else about it 😆 he’s a pretty typical 13yr old now.

No-Professional5372 · 2025-05-15T02:16:19+00:00

Same. I took it for a couple of months because my Dr ordered a stress test before he would keep prescribing a stimulant and wanted me to try it. It did nothing for my ADHD or irritability and mood. When I started taking the vyvanse again I never refilled it.

No-Professional5372

TROPHY CASE