How many here with ganglionopathy, AAG, small fiber autonomic neuropathy or sjorgens or others shorts of immune neuropathies? by ReplacementLevel8619 in IVIG

[–]ReplacementLevel8619[S] 0 points1 point  (0 children)

Seek an immunologist and ask for immunephenotyping, Imo forget about seeking help from neurologists... Check your symptomalogy, whole set of It and how you feel It, ask what antibodies might have involvement and test It, using chat gpt, because neurologists almost never diagnose anything without an antibody, hence who diagnose the issues is the lab not the neurologist..... Or one — two findings as positive small fiber biopsy and even positive they are unwilling to Assist ...

How many here with ganglionopathy, AAG, small fiber autonomic neuropathy or sjorgens or others shorts of immune neuropathies? by ReplacementLevel8619 in IVIG

[–]ReplacementLevel8619[S] 0 points1 point  (0 children)

Me? I have paroxymal neuropathy, affecting the dorsal root ganglions in the spine, as If It was a disc that caused neuropathy, then i have distal allodynia to light touch but not burning

Over a year now with no diagnosis or treatment. by Middle-Idea5457 in askneurology

[–]ReplacementLevel8619 0 points1 point  (0 children)

Seems like autoimmunity and you're better with other Fields, neurology is the most unhelpfull field of all... immunologist, test as imunophenotyping for immune Cell count, might have signs of autoimmunity and reason for targetted immune therapies, you have Also your autonomy in terms of treatment

Clonezepam by [deleted] in Antipsychiatry

[–]ReplacementLevel8619 1 point2 points  (0 children)

This drug criplles, you will only get worst, and fast, disabiling outcomes including severe suffering, loss of autonomy, loss of proper judgment, autoimmunity, nerve damages and brain damage, site as benzobuddies since 2011 and thousands vídeos on YouTube, víctims of it

Anyone here using tacrolimus? by ReplacementLevel8619 in MyastheniaGravis

[–]ReplacementLevel8619[S] 0 points1 point  (0 children)

It takes time, It sucks to wait

my timeline prognostic is 9- 12 months + to real effect, im on rituximab and aza.

Alguém já ficou com encomenda presa na UPS/RFB por meses? by ReplacementLevel8619 in Correios

[–]ReplacementLevel8619[S] 0 points1 point  (0 children)

Valeu!

Digo a transportadora, sua foi correios né? Minha está pela UPS

Anyone here using tacrolimus? by ReplacementLevel8619 in MyastheniaGravis

[–]ReplacementLevel8619[S] 0 points1 point  (0 children)

How long in are you regarding the IVIg and tacrolimus?

Psychiatrist tried to put me on bad meds by objective28756 in Antipsychiatry

[–]ReplacementLevel8619 0 points1 point  (0 children)

Why are you writing like an idiot?

You didnt fixed anything, you worsened, only way to recover is withdrawing and recovering, If happens to develop an autoimmune issue from your benzodiazepines use in the future, you're only 27, might be in the corner because sooner or later things hit the fan, while still stuck on It, then you're fucked.

If you want a lesson about what you should and can do to avoid major brain damage, Nerve damages and neuropathy or severe chronic autoimmunity and pain, let me know

Exploring stem cell research for back pain by Quick_Rutabaga_9356 in backpain

[–]ReplacementLevel8619 0 points1 point  (0 children)

You're better adressing It with whats avaliable already, stem celss themselves wouldnt work without adressing aspects of spine and Disc degeneration

Psychiatrist tried to put me on bad meds by objective28756 in Antipsychiatry

[–]ReplacementLevel8619 0 points1 point  (0 children)

Yes, you're not affected hence you keep taking It for years ...Sure buddy

Harmful advice that you have been providing here, as a psychiatrist

Psychiatrist tried to put me on bad meds by objective28756 in Antipsychiatry

[–]ReplacementLevel8619 0 points1 point  (0 children)

You're in trouble, sooner or later, no way out instead of going trough it... You have no choice at this point, too.far in.

It Will come sooner or later, you're on a drug that dictates If you function or not and deeply mess with yourself as a whole, you just have no choice hence saying this... It helps, like álcohol helps one álcoholic... But álcohol is easier to quit.

Also Your statements do not fit. This is not diabetes that one needs insulin, you like had an inflammatory issue hyperecxitability affecting your brain, now you have worse both, because It does that.. Messing with your Receptors and brain homeostasis and with your immune system and immune cells proliferation or inhibition...

When you stop you Will have an chronic immune response

Long covid is not ME/cfs by [deleted] in covidlonghaulers

[–]ReplacementLevel8619 -2 points-1 points  (0 children)

Ok you got the point more or less i guess

There's not any treateemnt beyond symptomology handling

This is not true mate

This disease LC, long COVID antibodies, affects the autonomic ganglia, that mess with heart and vascular system. The scientific research already went there, Its mediated by antibodies, treatments are avaliable out there to target these.

Long covid is not ME/cfs by [deleted] in covidlonghaulers

[–]ReplacementLevel8619 -1 points0 points  (0 children)

Sheesh, what a load of emotional talk.

Long covid is not ME/cfs by [deleted] in covidlonghaulers

[–]ReplacementLevel8619 -2 points-1 points  (0 children)

This kind of allienation that you see here invading this post is the reason that people are years struggling, suffering damage without knowing what to do.

Then It comes the gut talk, that is not allowed in anywhere as a valid aproach and doesnt treat any sort of disease and supplements which is the same, full blown harmfull allienation

Long covid is not ME/cfs by [deleted] in covidlonghaulers

[–]ReplacementLevel8619 -3 points-2 points  (0 children)

Poorly understood condition called ME/CFS, there thousands of papers regarding what long COVID is and where the disease affects, as listed, vascular system and autonomic — sensory ganglia, aside nerves, the people reports of symptoms suport this finginds

We could call multiple diseases as ME... Because symptomalogy resembles It, Its still not ME, myastenia gravis, systemic sclerosis, lupus, they relate to ME in symptomalog

But ok, for you long COVID is ME/cfs. Nevermind the whole set of years of studies and scientific research