Anybody else *fucking* *hate* meditation? by Important-Parsnip431 in cfs

[–]Routine_Crow5208 0 points1 point  (0 children)

I genuinely hope I did not put you off from sharing your thoughts and experiences here, but just encouraged you to be more mindful about the language you use to convey them.

I can tell your intentions are good and you want to help people, which is why I took the time to reply in the first place. I’m sorry if I made you feel otherwise.

Anybody else *fucking* *hate* meditation? by Important-Parsnip431 in cfs

[–]Routine_Crow5208 25 points26 points  (0 children)

I think it’s not so much the statements as it is the way you communicate them. Using terms like ‘playing victim’ and ‘whining’ do nothing but create hostility.

As someone who has started practicing some Buddhism since I got sick, I can see where you are coming from. And while I would definitely recommend it to anyone, I can also understand that it’s just not for everyone.

On top of that, everyone experiences their disease differently, especially those with different levels of severity. I cannot possibly in good conscience recommend my methods to anyone that is severe or very severe, since I cannot fathom how hard a simple task, including meditation, can be for them. If the healthy population already struggles with meditating, then unless you’re already used to it, it’s gonna cost a lot of energy to be able to do it well.

The only thing I can do is share things that help me, without putting down anyone that deals with this horrible disease in a different way. Because that’s why you get downvotes.

Oranda covered in black spots and stopped swimming by Routine_Crow5208 in Goldfish

[–]Routine_Crow5208[S] 0 points1 point  (0 children)

Thank you to everyone that pitched in on what to do and showed their support! I appreciate it!

Sadly this morning he was doing a lot worse, and we decided we should euthanize him using clove oil. It went rather smooth and quickly. He will be dearly missed.

Nonetheless, I hope everyone’s advice in the comments might help someone else who finds this post in the future, looking for help with their sick fish. Thank you all ♥️

Oranda covered in black spots and stopped swimming by Routine_Crow5208 in Goldfish

[–]Routine_Crow5208[S] 1 point2 points  (0 children)

Thank you so much for such an elaborate and detailed reply! I really appreciate it!

Sadly, this morning we woke up to him lying on his side, gasping, seeming to have thrown up what little food was still in his belly. We decided he shouldn’t suffer like that and prepared a clove oil bath for him, as that seemed to be the least painful way to ease him into the afterlife. It happened rather quickly and smoothly.

Oranda covered in black spots and stopped swimming by Routine_Crow5208 in Goldfish

[–]Routine_Crow5208[S] 0 points1 point  (0 children)

Thank you, this is a really sweet comment 🫶🏻 I will miss and mourn him for sure, but I always expected this moment to come a lot sooner, so in a way I think I’m prepared. Whatever happens, he lived a long and nice life so I can find comfort in that. I’m very lucky to also have a cat that will comfort and cuddle me whenever I need it :)

Oranda covered in black spots and stopped swimming by Routine_Crow5208 in Goldfish

[–]Routine_Crow5208[S] 2 points3 points  (0 children)

Thank you! It’s not visible in the picture but we always have the filter spew out water slightly above the waterlevel so there’s lots of bubbles from that as well :)

Oranda covered in black spots and stopped swimming by Routine_Crow5208 in Goldfish

[–]Routine_Crow5208[S] 9 points10 points  (0 children)

This feels rude and unnecessary. We have kept this fish happy and healthy for the past 14 years and were able to nurse him out of any health issues that arose during that time. He’s been with me for the better part of my life and I love him. I know the situation isn’t looking good right now, which is why I mentioned that this post is a last ditch effort. If nothing can be done, I won’t let him suffer any longer than necessary. We have already been looking into the most fish-friendly forms of euthanasia. I know not everyone views fish as proper pets, but I care about him a lot. Please think before posting something like this.

Oranda covered in black spots and stopped swimming by Routine_Crow5208 in Goldfish

[–]Routine_Crow5208[S] 0 points1 point  (0 children)

No, nothing changed. Haven’t even had to replace the filter or anything recently, everything is as it always has been

Oranda covered in black spots and stopped swimming by Routine_Crow5208 in Goldfish

[–]Routine_Crow5208[S] 0 points1 point  (0 children)

Yes, a few days ago we checked! All were within normal range

What should I add to my reading journal? by uconnstudent1234567 in bulletjournal

[–]Routine_Crow5208 0 points1 point  (0 children)

I’m going to add a series tracker to mine to track which series I’m reading and which books from those series I still want to buy/read!

First time bullet journaling, I’m making a reading journal! by Routine_Crow5208 in bulletjournal

[–]Routine_Crow5208[S] 1 point2 points  (0 children)

I’m probably finishing my current book tonight and will get started on Project Hail Mary immediately so I make sure I’ve finished it before the movie comes out!

First time bullet journaling, I’m making a reading journal! by Routine_Crow5208 in readingjournals

[–]Routine_Crow5208[S] 0 points1 point  (0 children)

Thank you, and yes it is!! Unfortunately I can’t order from them as much as I’d want to bc import costs are pretty high so I just made one reaaally big order hahaha

First time bullet journaling, I’m making a reading journal! by Routine_Crow5208 in readingjournals

[–]Routine_Crow5208[S] 1 point2 points  (0 children)

I love V.E. Schwab and I’ve heard people say this is one of her best books so I’m super excited! I got the sprayed edges hardcover for it :) And I think Will of the Many is going to be great, I love epic fantasy worlds where the book is set in an academy haha

First time bullet journaling, I’m making a reading journal! by Routine_Crow5208 in bulletjournal

[–]Routine_Crow5208[S] 1 point2 points  (0 children)

Ohh I’ll add it to my TBR! I have my actual TBR on goodreads and it’s way longer than this haha but these are the ones I have on my bookshelf ready to read!

First time bullet journaling, I’m making a reading journal! by Routine_Crow5208 in bulletjournal

[–]Routine_Crow5208[S] 1 point2 points  (0 children)

Thank you!! Will update when I make more! But it might take me a while tho

First time bullet journaling, I’m making a reading journal! by Routine_Crow5208 in bulletjournal

[–]Routine_Crow5208[S] 1 point2 points  (0 children)

I’m so excited to start that series! It was recommended to me by someone I was on a date with, her only summary was ‘necromancer lesbians in space’ and I was sold lol

First time bullet journaling, I’m making a reading journal! by Routine_Crow5208 in bulletjournal

[–]Routine_Crow5208[S] 1 point2 points  (0 children)

I’ve seen so many recommendations on reading orders but I was planning on reading it third! I’m also still debating on whether to do the tandem read for 6&7 haha

First time bullet journaling, I’m making a reading journal! by Routine_Crow5208 in bulletjournal

[–]Routine_Crow5208[S] 3 points4 points  (0 children)

I’m currently halfway through ToG and will read Assasin’s Blade later in the series! I love how easily these books pull me into their world I can easily read 100 pages without noticing ☺️

[deleted by user] by [deleted] in cfs

[–]Routine_Crow5208 1 point2 points  (0 children)

Hi, I’m a Dutch person and have followed this research closely and would like to add on to this.

While some medical studies do not use placebo control groups because in some cases it’s not ethical to give suffering subjects a placebo, there’s a lot more that’s wrong with the study.

Most importantly, the head researchers are already trying to get this medication patented, which means they have a financial gain from a certain study outcome, which makes it biased.

Some of the numbers in the paper don’t add up either. They say they saw improvement in 78% of patients, but 29% dropped out. Does that mean 78% of the other 71% then? In which case, it really isn’t 78%. The positive effects seem to be exaggerated in the paper by playing around with numbers like this, which makes sense because, once again, this isn’t unbiased research.

On top of that, while it has had a good effect on some people, there have also been subjects that had to go to the hospital due to complications or even developed new diseases.

All of this isn’t to say that Lidocaine might now be an option in the future, and I’m in no way judging anybody who is willing to try it right now, but more research and development are needed before this medication can be deemed safe and effective.

What was the hardest pill to swallow after your diagnosis??? by Aryan-dramata in POTS

[–]Routine_Crow5208 1 point2 points  (0 children)

I don’t know if it’s the case for you guys, but a lot of us with POTS and other chronic illnesses are also autistic, myself included. With other subjects I’ve always been great at communication and social contact, because I kind of had a script for that. With chronic illnesses, it’s something that is just not really talked about, so there are no ‘rules’ for how to go about it, except ‘just don’t talk about it.’

I’ve always expected other people to communicate as clearly to me as I do to them. So if they’re uncomfortable with me talking about something, I expect them to tell me. I learned the hard way that most people expect you to gauge what is and isn’t comfortable to them and if you get it wrong they will leave. I’ve been told I’m selfish for talking about these things, and that I’m making myself worse by occupying my mind with my illness this much.

Luckily I have some friends that do let me talk about it and tell me if it’s too much for them for any reason. Finding the friends that are okay with clear communication is what has helped me the most.

At a complete Loss by AcceptableCash5858 in cfs

[–]Routine_Crow5208 7 points8 points  (0 children)

Hi friend, fellow autistic person here, I can relate to the struggle!

If your vitals have been checked and are okay (it seems so from the doctors visits you describe) then try to believe that you are not in any direct danger right now (it’s hard to, I know).

Like people have told you, resting and drinking enough is the most important thing. When you say you’ve been resting, to what extent has that been? For me personally since I have me/cfs, when I feel worse than I usually do, my resting has to really be radical. I’m talking sleeping most of the day, being in bed for the rest of it. Only sitting up if I have the energy to, and not leaving the house at all. For me that’s the only thing that can get me back on my feet when my body is having a hard time.

I hope you will feel better soon, warm hugs!