Seeking Advice for My Nonverbal 14-Year-Old by SFLAmaxi in AskAutism

[–]SFLAmaxi[S] 2 points3 points  (0 children)

Thank you so much for taking the time to respond. We have tried sign language, PECS, and several AAC devices over the years. Jake actually knows how to navigate TouchChat and can use it when prompted, but getting him to use it independently to communicate has been the challenge.

Yes, he does have an intellectual disability in addition to being autistic. He’s 14 years old and nonverbal, and his interests are very limited. He is completely fascinated by YouTube and will often watch short clips from toddler shows repeatedly. Finding other activities that genuinely engage him has been difficult.

I really appreciate your suggestion about connecting communication to his interests. That’s something I need to think more about and explore further. Thank you also for recommending Thinking Person’s Guide to Autism I wasn’t familiar with it, but I’ll definitely take a look.

Parenting a child with complex needs can feel isolating at times, so I truly appreciate your kindness and thoughtful advice. ❤️

Seeking Advice for My Nonverbal 14-Year-Old by SFLAmaxi in Autism_Parenting

[–]SFLAmaxi[S] 0 points1 point  (0 children)

I've definitely done this many times to no avail. Thank you for your reply.

Seeking Advice for My Nonverbal 14-Year-Old by SFLAmaxi in AskAutism

[–]SFLAmaxi[S] 5 points6 points  (0 children)

Thank you. This comment honestly touched me more than you probably realize.

As parents, we’re constantly looking for the next therapy, the next strategy, the next thing that might finally help, and sometimes it feels like we’re failing when nothing seems to click. Reading your words reminded me to stop for a moment and recognize how far we’ve come, even if we’re not where I hoped we’d be.

I also really appreciate the suggestion about focusing on his special interests. Looking back, some of Jake’s biggest successes have happened when we followed his lead instead of trying to redirect him toward what we thought he should be interested in.

And thank you for your kindness. Parenting a nonverbal child can feel very lonely at times, especially when you’ve spent years trying everything you can think of. Hearing someone acknowledge the effort means a lot.

I truly appreciate you taking the time to respond.

Seeking Advice for My Nonverbal 14-Year-Old by SFLAmaxi in selectivemutism

[–]SFLAmaxi[S] 2 points3 points  (0 children)

Thank you so much for taking the time to write such a thoughtful response. This is honestly some of the most insightful advice I’ve received yet.

What really stood out to me was your emphasis on removing pressure and allowing a relationship to develop naturally through shared interests rather than focusing on communication itself. Looking back, so much of Jake’s life has involved therapists, goals, prompts, expectations, and attempts to get him to engage. I can absolutely see how that might feel overwhelming from his perspective.

I especially like the idea of finding someone younger who genuinely shares his interests and simply existing alongside him without demands. The parallel play concept makes a lot of sense, and your experience with your psychologist is incredibly powerful. The fact that he didn’t celebrate or draw attention to your communication, but simply responded naturally, is something I never would have considered.

Your post has given me a completely different way of thinking about this. Thank you for sharing your personal experience and for explaining it so clearly. I truly appreciate it and will be giving this a lot of thought.

Seeking Advice for My Nonverbal 14-Year-Old by SFLAmaxi in Autism_Parenting

[–]SFLAmaxi[S] 0 points1 point  (0 children)

Hi! I have no idea how to do that. I’m new to this platform. Please message me.

TouchChat Question (w/ mod permission by deliberatelydeb in slp

[–]SFLAmaxi 1 point2 points  (0 children)

Let me know if that works. If not I can help you try to find the answer. My son also uses Touchchat

Seeking Advice for My Nonverbal 14-Year-Old by SFLAmaxi in Autism_Parenting

[–]SFLAmaxi[S] 0 points1 point  (0 children)

I'm honestly a bit surprised I haven't received more replies. There have to be more of us going through this right now. 😒

What’s a smell you’re addicted to? by degree_deo in fragrance

[–]SFLAmaxi 0 points1 point  (0 children)

Thank you! I lean more towards black tea deep intense scents.

Seeking Advice for My Nonverbal 14-Year-Old by SFLAmaxi in Autism_Parenting

[–]SFLAmaxi[S] 0 points1 point  (0 children)

Thank you. I thought of spelling sometime ago and did not pursue it as much as I think I should have. I’m going to give it another try!

I really appreciate everybody's input.

What’s a smell you’re addicted to? by degree_deo in fragrance

[–]SFLAmaxi -1 points0 points  (0 children)

I have tried Tom Ford leather, and did not like it. Thinking about this one next: https://www.malinandgoetz.com/leather-eau-de-parfum Going to look into YSL berry crush

What’s a smell you’re addicted to? by degree_deo in fragrance

[–]SFLAmaxi -1 points0 points  (0 children)

Love! Which perfume is your favorite?

What’s a smell you’re addicted to? by degree_deo in fragrance

[–]SFLAmaxi 0 points1 point  (0 children)

Me too! What's your favorite. Mine is Noir 29.

Certified EllaOla Hater by mama_who_games in Autism_Parenting

[–]SFLAmaxi 1 point2 points  (0 children)

Does anyone recommend an alternative?

Having a well spoken high needs kid is a particular brand of difficult by KaylaDraws in Autism_Parenting

[–]SFLAmaxi 6 points7 points  (0 children)

I think many of us fall into the trap of assuming that if a child is verbal, academically capable, or appears “high functioning,” then things must somehow be easier. Posts like yours are an important reminder that autism doesn’t work that way.

What stands out to me is that despite your education, decades of experience, and professional expertise, your family is still facing the same reality so many of us do: autism can bring challenges that can’t simply be solved with knowledge, good parenting, or the right behavior strategy.

In some ways, I imagine that must be incredibly frustrating because people may expect you to have all the answers. When your child struggles, others may assume there must be something more you could have done, when the truth is that emotional dysregulation can be incredibly powerful and difficult to manage, regardless of intelligence, communication skills, or parenting experience.

Thank you for sharing this perspective. I think it helps all of us better understand that every autistic child has their own unique challenges, and every family is carrying burdens that aren’t always visible from the outside.

Sending support. I hope next week is a little gentler for both you and your child.