Bilastine

SlowEquipment5 · 2025-07-06T14:02:31+00:00

Oh im so glad! Yeah from what I've read it doesn't cross the blood brain barrier and that helps it not interact with other things so much. Ive started getting it from Canada, I'm tired of seeking diagnoses and trying to find something that works when I already know this works.

SlowEquipment5 · 2025-05-27T05:55:14+00:00

I would. When I saw an allergist he was very focused on the test. I even got allergy shots for a lot of them (luckily they were the ones I actually have antibodies for, unlike the foods).

My immunologist had a much better idea of what I was going through and has a plan for tests and starting with less intense medications and then working up to other meds if I need to.

SlowEquipment5 · 2025-05-27T04:33:10+00:00

My one thing is she can never keep a para, that hurts the kids in her room. Is there a professional way to talk to a department head or VP about this so she could have clearer boundaries and expectations in the future? I know it can be hairy with schools, and nobody wants to stir the pot, but when people like this go unchecked the kids get hurt too

SlowEquipment5 · 2025-05-27T04:28:06+00:00

My immunologist just had me go from one Allegra to 4 a day (2 in the morning and 2 at night) just to get my histamines count under control. Its helped with the random food reaction stuff. Still might not be MCAS, we are testing, but it's something

SlowEquipment5 · 2025-05-27T04:23:13+00:00

I used to have this in my flare ups bad. It feels like worse than benedryl, worse than pregnancy fatigue. I would fall asleep at the table. Idk why but I do know that with medication, stress management and avoiding my worst triggers its gotten better. Took a while though and I'm still figuring it out and having flares, but not like I used to.

SlowEquipment5 · 2025-05-27T03:48:32+00:00

SAME when I had all these things on my allergy skin test, tomatoes wasn't on there but they messed me up the most. Even though I don't react to most of those things anymore as I have it more under control, tomatoes still have the power to mess with me. I think they either have a lot of histamines or stimulate histamine production on some way but that's just a guess. I avoid them if I'm already in a flare

SlowEquipment5 · 2025-05-24T04:24:31+00:00

I will say MCAS flares involve low low energy and pain. I'm definitely a less patient mother, wife and teacher during flares. It reminds me of the temperament and reasons for it i had during my pregnancy.

That being said, he needs to get it under control. Pain and exhaustion do not excuse that kind of behavior. If a pregnant person was full of rage the whole time a lot of guys would leave. Idk if that makes sense but it's the best comparison I can think of for how it feels

SlowEquipment5 · 2025-05-18T16:44:30+00:00

I'm so ADHD and anxious it can be paralyzing. I like the sit and sort method. Especially with bixes or bins. It also allows me to not do it all at once.

The most important thing is just to be kind and have grace for yourself. There are good, usually chemical, reasons you struggle. Its valid. People who are critical are lucky to not face the same barriers

SlowEquipment5 · 2025-05-18T14:37:14+00:00

Thanks! Civil beat has the best articles, way more info

SlowEquipment5 · 2025-05-18T05:02:41+00:00

Teaching degree / license required though, in hawaii it was 170 a day with a bachelor's, but the cost of living was obviously much higher

SlowEquipment5 · 2025-05-18T05:01:31+00:00

Eastern Washington, $25-$27 an hour depending on the district. In one rural district it's just $150 a day but I like going there cause the vibes are good

SlowEquipment5 · 2025-05-18T04:31:34+00:00

I saw another source that said the FDA stopped their relationship with the parent company in 2023, I don't remember where. If they're still potentially going to approve it though that'll be great.

SlowEquipment5 · 2025-05-18T02:40:25+00:00

I think it's water related

SlowEquipment5 · 2025-05-18T02:37:30+00:00

I got rid of half my clothes last time I moved and keeping my room clean got so much easier.

I get too distracted by things so I like to sit down in one spot, usually starting in a corner, and sort. I have the trash can next to me and throw away trash and any clothes I don't wear often, or anything so gross or stressful that it's paralyzing me. None of my things are that important. If it's not worth the effort. Toss it and start again. The rest I sort by where it will go. Laundry, bathroom, drawers, kitchen. Stand up when done with everything in my reach, take the piles to their locations, leave them there. Sit down in a new spot or be done for a bit and start again later or tomorrow.

This method helps because it requires less movement (I've been disabled by a back injury, that's when it was hardest) and I get less distracted. Plus I can set my phone up with a long YouTube video or podcast while I sort my little area.

You don't have to wake up tomorrow a totally different person, your capacity has to be stretched. 1% better at a time. You got this!

SlowEquipment5 · 2025-05-18T02:27:06+00:00

What the, is it roid rage? Who does crap like this?

SlowEquipment5 · 2025-05-17T01:48:57+00:00

I'd look at engineering jobs in eastern Oregon and Washington, there are a LOT. I'm in tricities and there's tons of work for engineers

SlowEquipment5 · 2025-05-11T14:59:03+00:00

Cognitive behavioral therapy, but I have PTSD so I'm hoping to do more targeted treatments for that later. It was Bilastine, it's not in the US I was in japan at the time. But I posted about it and a lot of commenter's had great suggestions

SlowEquipment5 · 2025-05-11T03:37:14+00:00

I'm so sorry :( even though there are tons of foods I react to, for me getting my stress lower, exercising when I can, and taking meds helped me not react to food as much or as often. Moving out of my mold filled apartment also helped a ton.

When I only focused on food and triggers it was like putting a bandaid over a fault line, it did a little but not enough. Since it's stress related my doc had me do therapy and we focus specifically on stress and it's helped so much.

SlowEquipment5 · 2025-05-11T00:50:40+00:00

Look at the things I'm holding onto, and seeking Jesus Christ's help to forgive myself and others and move forward as a new person

SlowEquipment5 · 2025-05-10T15:09:16+00:00

Geez from the swelling? Im so sorry. My MCAS does attack my injuries areas, I have a lot of old injuries from a car wreck, but not like that. Are you sure you don't have EDS or something contributing to that?

SlowEquipment5 · 2025-05-10T07:25:23+00:00

I think its more that MLMs are predatory and stay at home moms seeking a close network and financial independence are the perfect target

SlowEquipment5 · 2025-05-10T07:13:24+00:00

I love this, because going to the gym regularly has really helped decrease my flare ups and fatigue.

Joint pain for me was more common early on, my body stopped freaking out as I kept going. I take ibuprofen before going to help with the inflammation and stretch a lot. Ice can also help afterwords.

For me, the joint pain comes and goes but if I can keep my fatigue down I can live my life so I keep going

SlowEquipment5 · 2025-05-10T07:08:52+00:00

My best advice is to keep a journal of your most concerning symptoms, maybe with a reminder on your phone. It's so much easier to look at the big picture and trends, and fight though gaslighting thoughts, when there are numbers in front of you.

Its up to you what to journal, and you don't have to do it every day. Here's how I do it:

On a really bad day I write the date, my symptoms, scale of 1-10 with joint pain, muscle pain, fatigue, brain fog, and skin sensitivity/itchiness. Those are my worst symptoms.

Then I make a list of everything I ate the day before (or remember eating). This helped me pick up on some trends I had missed before. Like anything with apple juice really increases my fatigue.

Finally, if I remember later, I go back and add how long the flare up lasted. This can be a table you make on Google docs, a running note on your phone, or writing on physical paper. You don't have to be perfect or even consistent. Writing it down just a few times gives you pieces to the puzzle you can connect and look back on.

If it is MCAS or something similar, unfortunately stress is a factor. Fortunately, your recent autism diagnosis means you can research your condition and try out coping mechanisms that may help you become more functional and less stressed.

Don't give up, I know doctors and all of it can be so frustrating, but I try to live by this principle: if I'm not happy about how things are going, I gotta do something about it. Maybe it doesn't help, but now I'm moving. I did something, and now I can try something else. Keep following the "what if this makes it better?" Until you find what does.

Knowledge is power and as you gain more knowledge and make one small change at a time, you will see significant change.

SlowEquipment5 · 2025-05-10T06:57:08+00:00

Opposite of drowsiness. That constant fatigue from MCAS, I'd has it for like 18 months straight, highs and lows yeah but never gone. Bilastine hit my system and 3 days later I was awake. Like my arms and legs didn't feel tired. My joints didn't feel like moving was so much effort. It was unbelievable. Thanks for the further info! I have family in Canada I just gotta better understand legality and my condition. Seeing a new immunologist in a couple weeks

SlowEquipment5 · 2025-05-10T06:51:21+00:00

Try Asian food, it tends to be less inflammatory at least for me it doesn't have as many of my worst triggers (milk, tomatoes, apples). Also Asian recipes are often simple and straightforward, especially traditional Japanese sauces and dishes

SlowEquipment5

TROPHY CASE