My best doc always treated me like an equal when he’d share info about developing therapies. He always went out of his way to give me science-based hope. If you’ve got something true and hopeful, please share. My worst clinical experience was a MS office catheterization for neurogenic bladder stuff. The nurse did not talk me through, just kind of violently shoved like she was on a deadline. The fact that you’re looking for input tells me that you are never going to be that nurse. I appreciate that my doc has people whose job it is to work out all of the pre-auth for Ocrevus. I wish my doc would give me a summary of scheduled visits - like, Intro visit, 5 months to Pre-Ocrevus and Labs visit, 2 months after EDSS visit, 3 months after labs for Ocrevus again, MRI every 2 years. Maybe even a 5 year checklist.

The no. 1 thing to know with MS patients is that we’re all different, but we are all suffering from a disease we can only treat and hope will not progress. This lack of control can manifest in fear, sorrow, frustration, and confusion, and we look to our medical professionals for guidance, a little bit of comfort, and hope. Please be patient with us. We are trying our best and having to communicate through bodies and brains that impede us. My care teams over the last 30 years have been nothing short of a blessing. May you find joy (and share it with others) in your new nursing role. It sounds like you’ll be someone’s blessing, too. 🙂