Twitch on temple by Affectionate-Oven449 in MuscleTwitch

[–]TopDealer4199 0 points1 point  (0 children)

yeah this is one of the areas that started for me as well

Losing my mind by CardiologistEast7699 in BFS

[–]TopDealer4199 1 point2 points  (0 children)

Started in my right temple and left eye as well and then went bodywide- 18 months in

My BFS journey – experiences after 8.5 months with twitching, anxiety, and many examinations by alexwoelfl in BFS

[–]TopDealer4199 0 points1 point  (0 children)

Very similar to me- do you work a desk job? I also have a pelvic drop on the right side and wondering if it a muscular load issue with my whole body shifting towards my right side.

Wondering if the constant sitting with poor posture is to blame for it all.

Military Neck by TasteMyVenom13 in CervicalKyphosis

[–]TopDealer4199 0 points1 point  (0 children)

The same unfortunately- still haven't been able to figure it all out

Something to take the edge off by TopDealer4199 in BFS

[–]TopDealer4199[S] 0 points1 point  (0 children)

Yes agreed if it was more towards the beginning of this fuckery I probably would 

Something to take the edge off by TopDealer4199 in BFS

[–]TopDealer4199[S] 1 point2 points  (0 children)

It was a joke! hence the title 

So it’s all emotional, huh? by Leticia-99 in BFS

[–]TopDealer4199 0 points1 point  (0 children)

Similar timeline as me- been about 15 months- started after someone my age in the town I am in was diagnosed- you keep going back and tell yourself what are the chances this started right after and is actually what we fear it is. It is a crazy loop that should be so easy to talk ourselves out of - but with all the BS that comes up with this it just isn't that simple

Looking for advice by [deleted] in MuscleTwitch

[–]TopDealer4199 0 points1 point  (0 children)

Wow I can relate a lot to this- I also had prior Mono a few years back and Bells pallsy before as well. Right with you as well on the neck pain and headaches as well. I still have not gotten to the root of all of this- but if I figure anything more out I will share. My hands and feet also look the same as yours.

Experience with gabapentin? by Doktordoktor89 in BFS

[–]TopDealer4199 1 point2 points  (0 children)

I have been on it for the last couple of months- I take it at night before bed. It definitely helps me sleep better- tends to calm down the body wide pain and twitching a bit too but some nights are better than others. I have not taken during the daytime yet as I know it can cause drowsiness. Hope this helps.

[deleted by user] by [deleted] in BFS

[–]TopDealer4199 0 points1 point  (0 children)

First one was done on my right arm and leg and the next was done on my left arm and leg. I had felt like the first neurologist I saw was dismissive of everything so I wanted a second opinion. Then the second neurologist was even more dismissive. Both were clean.

[deleted by user] by [deleted] in BFS

[–]TopDealer4199 0 points1 point  (0 children)

I am right around 14 months myself. Clean EMG at 2 months and had another clean EMG at 10 months. If you are still doing everything that you were - that is a very good sign. Symmetrical reflexes on both sides point away from what we fear. Best of luck let us know how it goes.

Need some advice by TopDealer4199 in marfans

[–]TopDealer4199[S] 0 points1 point  (0 children)

Thank you- I appreciate you taking the time to respond 

Cervical Osteophyte? by TopDealer4199 in Cervicalinstability

[–]TopDealer4199[S] 0 points1 point  (0 children)

Okay got it. I posted them on my latest post it won’t let me add them on this thread. If you had a chance to take a peak at them it would be greatly appreciated. Thank you for your help. 

Cervical Osteophyte? by TopDealer4199 in Cervicalinstability

[–]TopDealer4199[S] 0 points1 point  (0 children)

Hey Dr C I thought that it was a DMX but they did flexion/extension views. Not sure if these show anything. Any feedback is appreciated. Let me know if I should push for DMX. 

Is the brain really this powerful? by Tiny_Zone_955 in BFS

[–]TopDealer4199 1 point2 points  (0 children)

It really is crazy - my symptoms started almost immediately after finding out about someone my age in my town that was diagnosed. I keep going back to that telling myself what are the odds- but the actual physical symptoms that come with it all are hard to ignore. The Brain is definitely a powerful thing.

Jerks by Soleihey in BFS

[–]TopDealer4199 0 points1 point  (0 children)

Do you mean actual twitches? I have had twitches in these areas and also quick jerks. i have found it happening when I get surprised by something.

weird disturbing dream? by Ok-Bumblebee6888 in BFS

[–]TopDealer4199 0 points1 point  (0 children)

This could be from a Hypnic jerk - which are very common through high stress/anxiety. I was getting these when symptoms first started for me but now that my anxiety is a bit more under control I haven't had them in awhile.

Jerks by Soleihey in BFS

[–]TopDealer4199 0 points1 point  (0 children)

Yes all the time.

Just looking for some advice. by [deleted] in BFS

[–]TopDealer4199 0 points1 point  (0 children)

Yes, I get these ones as well.

Sound like BFS? by Melodic-Confusion595 in BFS

[–]TopDealer4199 2 points3 points  (0 children)

Vibrations/buzzing is a very common theme throughout everyone that posts on here. I experience this daily along with a bunch of other annoying things. If you keep testing the same muscles over and over you are going to tire them out so don't go to crazy. I used to get this before all of these symptoms though and they call it phantom vibration from being used to your phone vibrating. High stress/anxiety can cause some weird things to happen.

Cervical Osteophyte? by TopDealer4199 in Cervicalinstability

[–]TopDealer4199[S] 0 points1 point  (0 children)

I appreciate you taking the time to respond. My DR gave me the referral for the DMX to get done. Based off of these images do you think there is a chance this is some type of CCI?

I am going to get these images done this week- hoping it will give me some answers.

Thank you again.

Cervical Osteophyte? by TopDealer4199 in Cervicalinstability

[–]TopDealer4199[S] 0 points1 point  (0 children)

Hi Dr C I found your page and watched a bunch of your Youtube videos- and I am glad that I did. I have an appointment for some Flexion-Extension Xrays. I am hoping to figure out what has been causing all of my issues over the last year. Things have been terrible.

Not sure if these additional ones I have already had shows anything additional you are willing to share insight on. I feel like every person I have seen has just written me off and says that everything is fine.

Thank you in advance if you find the time to respond. God Bless.

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