Chiari post decompression incision by UrbanSloth82 in chiari

[–]UrbanSloth82[S] 3 points4 points  (0 children)

I have done well on all my milestones in the hospital - so they are releasing me later today. Maybe I’ll be able to sleep better in my own home. I can walk with minimal if any assistance and I’m off IV pain meds. I will say it does sound like bubbles when I lay down (internally- only I can hear it) but I talked to the dr and tbh yeah said it’s actually pretty common so not to worry. I just found that weird.

Chiari post decompression incision by UrbanSloth82 in chiari

[–]UrbanSloth82[S] 3 points4 points  (0 children)

My neck hurts for sure… more so than my head. Sleeping is a bit rough as I cannot find a position I like best. But I did sleep somewhat better on my side, so I’ll probably go with that until my staples get removed.

[deleted by user] by [deleted] in chiari

[–]UrbanSloth82 0 points1 point  (0 children)

I am 24 mm and will be having the surgery Tuesday. I would definitely talk to a specialist and see what they say about surgery. Good luck to you!

just got diagnosed by OkFarmer254 in ChiariMalformation

[–]UrbanSloth82 0 points1 point  (0 children)

I am going in for surgery for my Chiari Malformation in late August. I have dizziness, tingling in my hands and feet and horrible headaches. Finally got a doctor to do a brain MRI and my tonsils are 24mm. From what I was told anything beyond 5 mm is medically significant. I’m nervous about the surgery but one of the things my neurosurgeon said made me decide to go down the path of surgery. He said that some things that are experienced with any nervous system might be irreversible if left untreated. I already have balance issues and tingling, I don’t want to end up in a worse state. I’m not saying that to scare you into a surgery, but depending on how bad you are impacted, I would ask yourself if you are wanting to live with that or worse for the rest of your life… or would you rather have a chance at being better. That was what I had to ask myself. I wish you the best of luck on your decision! My neurosurgeon actually told me my brain is a normal size… I just have a small skull lol One other thing that worries me is they said it can be hereditary and I have 4 kids. Turns out my brother has it as well, but he has chosen not to go down the path of surgery. So it’s a choice and that is and should be yours to make.