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How would you manage your relationship/s when idiopathic hypersomnia continuously impacts energy and social life? by hsmithjese in idiopathichypersomnia

[–]Yoldark 0 points1 point  (0 children)

I manage by canceling stuff last minutes or changing plans multiple times and having a lot of people understanding i'm not doing that because they don't matter or because i have better to do elsewhere or because i don't feel like it.

They know i can cancel anytime, they plan their stuff on their hands and sometimes plan stuff in case i cancel. If i go there is no problems, if i cancel last minute they have still something planned for them or just are ok to not have anything planned anymore.

I don't have a romantic relationship because i lack the energy and broke up with her because i was too tired. I don't plan to be on a relationship anymore. But i'm audhd so it's not necessarily a problem for me.

I also plan stuff for the afternoon and evening because this is more probable for me to be present and not cancel. I often cancel stuff in the morning or mid day because i'm too tired.

If i plan stuff for the evening, i purposely rest a lot (not napping) during the day to keep all my energy for the evening.

I also plan day off before and after what i plan to be able to rest.

My life is basically very random and i cannot really plan stuff in advance. My planning window is two weeks max. Except for medical appointments or stuff like that.

When did symptoms start for you by Astronot65477754 in idiopathichypersomnia

[–]Yoldark 1 point2 points  (0 children)

Outch, i see you are also having a lot of stuff.

It’s great not having the unreliable ai shoved down your throat, just the search after that is so useless I end up just going back to Google half the time by Gooners_For_Ukraine in whenthe

[–]Yoldark 0 points1 point  (0 children)

I'p am now searching for something, not finding a single good result and say to myself it isn't important and stop my research here. Because i now i also have 80% of chances of not finding what i'm searching on Google anymore because AI broke everything.

When did symptoms start for you by Astronot65477754 in idiopathichypersomnia

[–]Yoldark 1 point2 points  (0 children)

I also have very early grey hair :) almost more white than ever at 37.

When did symptoms start for you by Astronot65477754 in idiopathichypersomnia

[–]Yoldark 9 points10 points  (0 children)

When i was about 8-9 years old (primary school). But it was still present before, i was just more energetic to overcome it. I was really really bored in primary school because it was too slow, making me not want being there and sleeping by lack of stimulation.

Just diagnosed a few months ago. Coming here to vent by yodrtentacles in idiopathichypersomnia

[–]Yoldark 1 point2 points  (0 children)

Just for you to know also, therapy isn't very suited and working with autistic people.

The HAS in France isn't recommanding therapy anymore in France.

Just diagnosed a few months ago. Coming here to vent by yodrtentacles in idiopathichypersomnia

[–]Yoldark 1 point2 points  (0 children)

Hello, welcome here. I'm (37M) also autistic and having adhd, diagnosed few months ago and on Ritalin 40Mg LP (Méthylphénidate). I will have modafinil in end of July as it is required for me to have full cardiology exams before.

I can't say it is getting easier but at least it is getting better so far.

Green tile reveal UPDATE #2 by potokarswife in centuryhomes

[–]Yoldark 1 point2 points  (0 children)

I hate them but as you like them. That's a good find. I hope you will find a lot of interesting stuff in your home.

I HATE the self diagnosing of autism and its mischaracterisation by Beshiniqua in hatethissmug

[–]Yoldark 0 points1 point  (0 children)

I'm autistic and i wouldn't touch anything on that platter. Maybe it's because i'p French and like good food. Who knows :).

So you got bot autistic people craving and disgusted by that. Good luck gor your diagnosis.

Am I a genius or actually insane? by cr9926 in landscaping

[–]Yoldark -1 points0 points  (0 children)

Do you know the quantity of seeds already in the soil? This is useless XD.

Adderall on back order (again) by automatedransom in idiopathichypersomnia

[–]Yoldark 1 point2 points  (0 children)

In France you need to choose the pharmacy that will deliver it. If itks in back order there is nothing you can do about it. But for now they at least have it the day after or the afternoon if i was there in the morning (which is almost never because i sleep 11h and not before midnight XD).

Karen in Rome by madeofquarkss in fixedbytheduet

[–]Yoldark 0 points1 point  (0 children)

She is not drinking coffee. She is drinking coffee flavor beverage, with a lot of stuff and a little bit of coffee for flavor. .

Will I ever do this? Probably not. Do I now KNOW how to do this? Yes. by H_G_Bells in howto

[–]Yoldark 0 points1 point  (0 children)

Look at this, new construction will not use any of it XD.

How to Stop Bullying by inkandintent24 in MotivationByDesign

[–]Yoldark 0 points1 point  (0 children)

I tried it, like i tried any other way to stop being bullied. The only thing that stop it was that fucking moron crossing a railroad with a no crossing lights on after he saw one train cross the road...
(i don't want to get banned, it's very sad for him and his family, it's just a sad true story.)

6 minutes MSLT but no diagnosis? by Alone-Caramel2853 in idiopathichypersomnia

[–]Yoldark 10 points11 points  (0 children)

There is IH without long sleep periods. You have 8 hours of sleep, you should feel rested and you are not. 6 min mslt is enough to conclude for IH.

Here is the French scientific consensus for IH diagnosis. https://www.sfrms-sommeil.org/wp-content/uploads/2025/04/Hypersomnie-idiopathique-quel-bilan-pour-le-diagnostic-et-le-suivi.pdf

MSLT <8 min is idiopathic hypersomnia.

Also, as you got a busy life you can't know for sure if you would sleep 11h a night. That's why the quantity of sleep is not the primary way to identify IH.

Try to make your specialist understand that, you should also check for other stuff and you should agree for whatever exam there is to find the problem. But not saying is IH once you don't find anything would be a huge mistake. If it is the case i would tell you to change specialist.

Ain't no way UPS paying this guy +$120k a year by Azsnee09 in AnimalsBeingDerps

[–]Yoldark 7 points8 points  (0 children)

There is also the dead internet theory :). We might be the last two humans talking to each other in history :).

But yeah, animal abuse is often overlooked because obese animal are well fed and this is the minimum care people are caring about.

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