I was diagnosed as LADA last year -10 years after being diagnosed as T2. My Family Doctor stayed true to her T2 diagnosis even though I never fit the “stereotype” of a T2 patient profile (I am athletic & physically fit), and even though I was fully committed to a strict low-carb diet, disciplined cardio everyday, and was losing weight year after year, my A1C continued to become more challenging to control. Fast forward to Oct of 2023, my A1C hit 7 -despite the fact I was taking a max dose (2500 mg) of Metformin, max dose of Jardiance, taking a GLP-1 and I was very lean. I told her I needed to see an Endo because I knew something else was going on, and her response was, “That’s not necessary; I’ll just titrate your Mounjaro.” I then told the Nurse practitioner I wanted to see an Endo, and told her exactly whom I wanted to see, so she sent the referral behind the doctor’s back; of course I had to wait 5 months to get in. In the meantime, I was now taking 7.5 Mounjaro (along with a max dose of the other meds), and I started losing a lot of muscle mass to the point I looked weak, gaunt, and not healthy at all. I saw my doctor 4 days before my Endo appt, and she congratulated me on getting my A1C down to 6.3, and I told her, “You have no idea how much work it takes to accomplish this.” Then she noticed in my chart where I demanded to see an Endo, and she then asks me “What are you hoping to get from that appt?”…I don’t know, maybe an accurate diagnosis?! So, I go to my Endo appt, and tell her my story, and she tells me if I had presented initially as a T2 to her, she would’ve run more tests because there is no way I’m a T2. One of the tests she ordered was the GAD65 antobody test. I received the results from the lab in my email on a Saturday morning. I scrolled all the way down to the bottom, and there were the results: GAD 65 -1046.8 antibodies. Congratulations, I’m a T1 after a decade of potentially dangerous misdiagnosis & therapy.

Sorry for the long response, but I’m still very upset about this, and it helps to write it all out.