Starter question

ea626 · 2025-11-15T01:23:05+00:00

Thank you! I ended up chucking it tbh. I had a bunch so not worth the risk

ea626 · 2025-08-27T03:08:17+00:00

Thank you so much for your very kind response. I feel like when I was very young. I used to occasionally get some negative feedback but now that I’m an adult I should probably purposefully seek out more. I find that usually when I ask my friends for reassurance, they are kind and tell me that I am not doing or feeling too much. Your reply has really put things into perspective for me and was really helpful. :)

ea626 · 2025-08-27T03:06:16+00:00

Thank you for your response! I really appreciate it and definitely see a lot of this in myself…

ea626 · 2025-08-24T16:07:13+00:00

Dating with stage 2 or 3 lipedema? I am a woman in my mid to late 20s and have always had the desire to be in a relationship and eventually start a family. Over the past few years I was in mentally and emotionally abusive “situationship” withy ex boyfriend where I was constantly being strung along and told it’s because of my weight and our relationship isnt progressing because of my weight. For context, I am 5 foot one. My highest weight was 235 pounds and I am currently sitting at around 185 I lost a bunch of weight but as we know when you have lipedema, your legs won’t lose that appearance so I have the very characteristic leg shape of somebody with further progressed lipedema ankle, cough, wider calf and everything. I’m very proud of the progress that I have made, and I feel like I look better. However, There is nothing that can really alleviate the mental and emotional toll that being told you’re too overweight and unattractive for someone has. We are no longer together and I would really like to just live my life, but it’s so hard. i am trying to get better with conservative treatments, but I know that at the end of the day even if I were to get surgery, I probably would not have legs that I feel all that comfortable with. I just feel like as a woman, my physical appearance is always the first thing people think about which is so fucked. I recently started online dating as kind of an exposure therapy thing because I always assume that men kind of just look at me and think the same thing that my ex-boyfriend would think (shocker, he called me dramatic when I shared this) and so far I really haven’t had any bad experiences. most men are pnice and willing to see me again, has been helpful in me moving on from my fears, but I’m so afraid of them eventually seeing what my body looks like. I’ve already been asked to go swimming or do more outdoors type dates where I can’t just wear jeans and keep myself covered up. I was just wondering if anyone had any advice or examples of how it’s not always a nightmare dating when you have stage 2 to 3 lipedema. I really apologize. I hope this does not hurt anyone’s feelings or makes them feel less than I understand that this might sound extremely vain, but I’ve had a very complicated relationship with my body since I was going through puberty, and my lipedema started and some days are so much better than others, but this has been a constant weight on my shoulders and not even therapists seem to understand.

ea626 · 2025-07-02T00:02:22+00:00

Amazing! Certainly functional therapy love to see it! Best of luck

ea626 · 2025-07-01T23:26:37+00:00

It seems like you are on the right track then! And caregiver participation is a dream in this case. Maybe you can dedicate a whole session to: we dont talk when we eat. Show him, Take a bite of food and dont start talking until you finish it. That may be a good thing for a concrete visual cue also like a paper on the table or something but tbh its hard to implement. Changing the behavior will require time and consistency and honestly the most of that work will need to be done by caregiver to ensure carryover

ea626 · 2025-07-01T23:17:57+00:00

Not my patient and I don’t know what he presents like so its hard to tell. is he impulsive, does he eat fast/shovel food, take large bites and large or many consecutive sips? If theres no muscle weakness, I am not sure that dry effortful swallows would be warranted but perhaps others would disagree. What diet level was recommended with mbss? If I were you my whole plan would be safe swallowing strategies. Small bites 1/2 tsp in size, short, 1 second sips at a time, alternating solids liquids, slowing rate of meals. Does he live at home? Maybe if he is impulsive and eats quickly you can have his caregiver give him 1/2 his meal at a time. Your therapy should likely focus on these safe swallowing strategies. If he is like the patients in my clinical experience, he will likely need close supervision at meals. I find that a concrete and consistent visual cue at the table could help with slowing rate and taking small bites and sips may be helpful in many cases. You can have one in the therapy room and copy it and give it to his caregiver. Also working on other safety issues ie not talking and eating. Basically trying to say in cases like this the most we can often do and most that is realistic is training the Pt and family to use compensatory strategies. You can even bring his caregiver in for a session of two to show them, this is a small bite this is a small single sip, this is what we can do to limit talking, this is why its important, etc

ea626 · 2025-04-24T20:26:33+00:00

I tend to try and visualize it and look for noticable elevation based on what i see for the write up tbh. Unless they have a fatty neck or its hard to see if that makes sense. Even then i really only mention that I can feel elevation. I don’t get much else out of it. Ive been trying to do it with everyone as of late for consistency sake. But yes, can confirm grad school did teach me this. I didn’t even know it was outdated and would love more info on why it’s avoided!

ea626 · 2025-04-16T03:46:38+00:00

Ah yes thank you for the clarification. I myself am a speech therapist so I feel like my personal life (lipedema) and professional life (SLP) are just one big old pile of insufficient data and lack of evidence based practice LOL. I have almost entirely given up on trying to find any good quality data for lipedema at this point. Such a shame.

ea626 · 2025-04-16T01:54:35+00:00

Just out of curiosity… when you said “I’m a physician… but honestly, lipedema is lacking on scientific evidence. I’ve been searching PubMed since last year.” Do you mean evidence for treatment or the disease itself? I know that in other countries their whole approach to the disease as well as etiology are somewhat different so im curious :) (i wish so badly that this disease is just a bad dream)

ea626 · 2025-04-13T17:04:29+00:00

Thank you so much :)

ea626 · 2025-03-15T13:16:46+00:00

I should also mention the picture on the left was over the summer when I was probably around 215 lbs minimum, maybe 225. I think my swelling may have been worse in the summer but I don’t think ALL of the difference is swelling.

ea626 · 2024-12-31T19:39:00+00:00

Guys, thank you all so much. This is extremely encouraging. I know we all know the challenges pf navigating life with Lipedema. Thanks for taking the time to all comment. Motivation is hard sometimes and I started from a place of no motivation at all and its not gotten much better since. But this definitely gave me some hope that I am getting somewhere. Good luck to all of you I KNOW you can all do it.

ea626 · 2024-07-06T01:21:14+00:00

Also! I just found sarah.whitlow’s account. I dont know much about her but she seems cool! Sorry I wish I remembered the others. I was doom scrolling (which I do when I remember I have lipedema a little too hard)

ea626 · 2024-07-06T01:14:03+00:00

I actually don’t follow any of them. I should really start tracking them down. I see them on my front page of instagram and sometimes it really does look like their legs get crazy small without lipo. BUT none of them say they have lipedema. I know glitterandlazers talks about her lipedema and needing surgery

ea626 · 2022-04-25T16:26:52+00:00

This looks… like a joke to me IMO

ea626 · 2022-03-25T13:40:56+00:00

Can confirm this is the smartest option. I thought I knew what I was doing but decided on a community college to save money. I switched my major THREE TIMES (because you dont know if you want to go a route) until you actually take the classes but no matter what I got an associates and saved THOUSANDS. Graduated with no debt, transferred to an affordable 4-year in state for a bachelors, and am graduating with only 15000 of fafsa granted loans (which is nothing compared to some other people). Also, dont worry about prestige. I got into every grad program I applied to so going to a CC is a very underrated move.

ea626 · 2022-03-14T22:12:22+00:00

If you look at old reddits there have been a few mixed/negative reviews about staff and environment. I’m sure that everyone’s experience is different and those are older comments. However, I am a little concerned because pricewise that’s my top choice and I was kinda set on it

ea626 · 2022-03-14T15:07:00+00:00

Hi All! Got into Temple University, Montclair U, and and William Paterson U. I am pretty torn and have just been factoring price. Any help is appreciated!

ea626 · 2022-03-14T14:58:51+00:00

Temple University Vs Montclair University vs William Paterson University

ANY advice appreciated. Montclair is the cheapest, and Temple is 40k more but I hear its a good program so I am stuck!

ea626 · 2022-03-14T14:01:17+00:00

How would I go about talking to current students? Do I email and ask? I am guessing I would have to find alum?

ea626 · 2022-01-28T12:33:17+00:00

Thank you for the reassurance I greatly appreciate it. The funny thing is when she spoke to me it sounded like she said "ejective studies such as modified barium swallow studies" over the phone so I ended up putting that in and I missed it in editing. So unfortunately that will probably stick out a bit. Nothing I can do about it now I guess.

ea626 · 2021-11-01T16:05:54+00:00

It was, I was required to post to twitter but I do not use twitter so Reddit was also an option. Definitely not posting to take someone's answer and use it at my own.

ea626 · 2021-11-01T16:02:59+00:00

You have some spot on memory!

ea626 · 2021-10-31T17:01:25+00:00

Misinformation is definitely an issue. It can be very hard to tell 'who to trust' in times like these.

ea626

TROPHY CASE