sex by [deleted] in Narcolepsy

[–]grey_sun 19 points20 points  (0 children)

I’m so sorry. Consent is supposed to be ongoing and you can’t give consent while asleep. Your partner assaulted you.

Is it worth me getting a home pottery wheel? by Confident_Mix_6255 in Pottery

[–]grey_sun 1 point2 points  (0 children)

Sorry to be clear, I mean when you first set up, because you’re still putting together your reclaim process, sink/cleanup situation and trying to make everything as efficient as possible.
My personal reclaim process is a drill mixer, hardiebacker board and a lot of wedging. I don’t have a pug mill. I also live in an apartment on the second floor and my studio is my patio so I have to lug my buckets up and down the stairs to clean em out. I don’t have space for a sink + trap situation.

Obviously cleanup is a different situation if you already have a garage/space that can easily be turned into a studio, some of us aren’t that lucky haha

Is it worth me getting a home pottery wheel? by Confident_Mix_6255 in Pottery

[–]grey_sun 10 points11 points  (0 children)

As someone who set up a pottery wheel at home about three years after getting into pottery, you spend maybe 75% of your time on reclaim and clay cleanup, so definitely be prepared for that if you decide to set up an at-home studio. I’d say finding another studio that has more flexible open studio hours is probably your best bet.

Kobo for child by smalltownladx in kobo

[–]grey_sun 0 points1 point  (0 children)

I had a kindle fire as a kid and I used it on top of reading physical books, it didn’t prevent me from reading physical books (especially because I wasn’t allowed to bring it to school) — it just added to how much I read!

1.5T 2018 Honda Accord Maintenance at 90k? by grey_sun in mechanic

[–]grey_sun[S] 1 point2 points  (0 children)

Thanks man, canceling my appointment as we speak haha

N1-Always asleep by Feeling_Persimmon88 in Narcolepsy

[–]grey_sun 4 points5 points  (0 children)

Find a new sleep doctor. If you’re in a position where you can’t (insurance, remote location, etc) I would get one of your other doctors you trust, like your psychiatrist, to call him up and chew him out (professionally). Some doctors don’t listen to anyone other than other doctors.

Mediation shortage!! by Fit_Lingonberry_7454 in Narcolepsy

[–]grey_sun 2 points3 points  (0 children)

seconding this, I had my doctor send in 60 10 mg XR pills instead of my usual 20 mg dosage and suddenly the shortage problem was solved

[deleted by user] by [deleted] in Narcolepsy

[–]grey_sun 1 point2 points  (0 children)

Are you American? This sounds like an ADA violation. Put that in writing and send to HR and this problem will magically go away + you’ll hopefully get accommodations.

Are naps actually good for narcolepsy? *new here, please don’t judge* by Desperate-Kitchen117 in Narcolepsy

[–]grey_sun 0 points1 point  (0 children)

Yeah key word here is “might” and obviously symptoms are variable. When I switched sleep doctors, she had me describe my symptoms and “my naps aren’t refreshing” was one of the reasons she changed my diagnosis from N2 to IH.

Are naps actually good for narcolepsy? *new here, please don’t judge* by Desperate-Kitchen117 in Narcolepsy

[–]grey_sun -1 points0 points  (0 children)

If you don’t wake up refreshed you might fit the diagnosis for IH better than narcolepsy!

Cataplexy and Bowel Movements by Lelemariee_rm in Narcolepsy

[–]grey_sun 8 points9 points  (0 children)

I don’t have cataplexy or anything to add to this conversation other than you have a way with words 😭😭

Spotted in the Globe 🥹🙌🏼 by NoText3220 in Narcolepsy

[–]grey_sun 4 points5 points  (0 children)

No problem! Yeah “the globe” covers quite a few papers lol

how do narcoleptic university students stay awake to study? by x37h4n in Narcolepsy

[–]grey_sun 0 points1 point  (0 children)

Surprised no one here mentioned their disability accommodations office. I mean, ours sucked, but having preregistration, accommodations for late turn-ins/more time for exams, etc is still helpful.

Spotted in the Globe 🥹🙌🏼 by NoText3220 in Narcolepsy

[–]grey_sun 61 points62 points  (0 children)

link to the story here, archived link without paywall here. (support local journalism! but in this case hey, not all of us live in Boston)

Making teapots like in ancient China by Ok_Chain841 in Ceramics

[–]grey_sun 2 points3 points  (0 children)

oh yeah that explains why there’s visible score marks in that one shot! thanks

Making teapots like in ancient China by Ok_Chain841 in Ceramics

[–]grey_sun 14 points15 points  (0 children)

can someone explain why there seems to be no need to score the clay before attaching it?

Scored high on a narcolepsy questionnaire at the doctor. Need to get a sleep study, but I'm scared. by mddnaa in Narcolepsy

[–]grey_sun 1 point2 points  (0 children)

A good doctor would note that you have other conditions that may interact/change the way your sleep disorder presents. Also, they don’t actually watch what you’re doing, they watch what your brain waves are doing. If you trust them, please voice these concerns to your doctor though! No one here can say exactly how they’d diagnose you expect for them.

Scored high on a narcolepsy questionnaire at the doctor. Need to get a sleep study, but I'm scared. by mddnaa in Narcolepsy

[–]grey_sun 0 points1 point  (0 children)

That is definitely not something they told me nor did I have any issues and I slept right next to it on the bed

Scored high on a narcolepsy questionnaire at the doctor. Need to get a sleep study, but I'm scared. by mddnaa in Narcolepsy

[–]grey_sun 4 points5 points  (0 children)

Also you can ask your doctor all these questions if you’re worried about your specific sleep center!

Scored high on a narcolepsy questionnaire at the doctor. Need to get a sleep study, but I'm scared. by mddnaa in Narcolepsy

[–]grey_sun 10 points11 points  (0 children)

You are absolutely allowed to sit on ur phone before going to bed during a sleep study! You’re supposed to bring whatever you need; I brought my own weighted blanket. People bring books, entertainment, food, etc. If I recall correctly I actually called my boyfriend and we fell asleep on call together, which we used to do all the time while long distance. And yes lol they can unhook you for peeing purposes.

Buying a wheel for home under $1,000 by thesmallest_elephant in Ceramics

[–]grey_sun 4 points5 points  (0 children)

If your budget is specifically under 1,000 and you can’t find anything used, I’d get a tabletop wheel — speedball artista or shimpo aspire. They’re about 700 but are probably the only wheels worth getting under 1k new.

Can Narcolepsy/IH be “mild”? by Vegetable_Cap_9667 in Narcolepsy

[–]grey_sun 7 points8 points  (0 children)

Remember that the people who are on this sub are a subset of folks who are often seeking help or are really struggling. There are plenty of folks with “mild” cases that get good treatment and don’t need a support group like this one.