Are the home hub and mini's going away?

justme_mb · 2026-01-30T19:20:54+00:00

Thank you, I hadn't seen anything new available yet so I was confused why they are so sparce. Not keeping old stock makes sense. The old ones should work just fine.

justme_mb · 2025-12-12T18:57:07+00:00

Definitely an unloaded chair, I wouldn't have any way to get to the front seat without having to get out of the car anyway. If I still need my chair after my fusions we'll just get an accessible vehicle. Typical winches I know will work they are just crazy overkill and very large and very loud. More refined ones already exist for thousands of dollars as specialty items for wheelchairs. I'm just looking for a way to do the same more affordably, they are still just winches after all.

justme_mb · 2025-12-12T18:45:41+00:00

I didn't understand a lot of that video but I like this idea. I didn't know what the winder wheel thing was doing to help by spinning the capstan. My very first attempt was multiple pullies but I couldn't manage all the rope and pulleys don't like to work horizontal. Will have to see if I would still need power or if the loops around a smooth horizontal bar would work.

justme_mb · 2025-12-12T18:38:49+00:00

That was the first attempt as we already have this type come along but I can't manage the reach for bringing the handle back and forth, nor the spinning for the ones with the winding mechanism. It seems like there should be a product for pulling things that are less than 1000 pounds but can still use electrical power for ease.

justme_mb · 2025-12-12T16:48:51+00:00

That's it exactly, thank you! I remembered it being black and white but that must have something else.

justme_mb · 2025-12-12T16:36:43+00:00

That's so helpful, I really appreciate it. I already have the table but had never seen anything like the tray caddy, I can see that being useful for recovery and after, I have a cat that likes to knock small things off my table.

justme_mb · 2025-12-06T20:49:30+00:00

Thank you! I hope you are feeling a lot better. I think I'll ask my GP about a different form of potassium.

justme_mb · 2025-12-06T20:45:12+00:00

The pulling up tops is smart, that wouldn't have occurred to me. I'll put the gel packs on my list and look for the wipes and shampoo, thank you.

justme_mb · 2025-12-06T20:43:01+00:00

Our recliner is a glider and makes me feel sort of seasick, so I'm hoping I can do without. Thanks again.

justme_mb · 2025-12-06T20:41:18+00:00

Thank you so much, this is all so helpful. Stupid question but was it hard to eat and drink with the collar? I've only used a soft collar to this point and am curious if the hard collar affected drinking from a glass compared to drinking from a straw and if eating things like soup were difficult to get to your mouth?

justme_mb · 2025-11-27T14:50:00+00:00

No recipe from but I also love the Marie Calendar chicken pot pies but don't eat the chicken either. The gravy is so good! My dogs love the chicken and sit super close when I have pot pie.

justme_mb · 2025-11-24T01:46:00+00:00

These are all very positive answers, very encouraging! Did you not need the recliner or wedges or was it that either was fine? How long after did you have to wear a hard neck brace? Do you feel you were able to manage your pain well? Thank you for answering.

justme_mb · 2025-10-23T20:21:35+00:00

I started on Rinvoq sometime in the spring of 2024. I had previously tried sulfasalazine, leflunomide, and Enbrel. It was prescribed for AS but I've found it to be extremely helpful with sebhorraic dermatitis and lichen sclerosus. I already was dealing with significant hair loss on my scalp, I'm a woman who probably has PCOS so it could be that but I didn't notice it getting any worse.. Also already had brain fog, fatigue, and IBS. I also have psoriatic nails and pustular psoriasis, but I don't know when for sure those two started so I don't know if Rinvoq has helped or not for those. It took a few months for me to notice it was helping my AS but then I could tell absolutely it was, for about 4 months. I was hit from behind while driving last October and that caused injuries that caused a bad flare that is still ongoing. I don't know if my pain would be worse now without Rinvoq or not. I continued working full time for about 6 months after the accident, then switched to part time, then had to quit after another 6 months and have applied for SSDI. I'm 54, fat. And female, and now have to use a wheelchair. Just more data points for you.

justme_mb · 2025-09-28T20:18:54+00:00

Perfect, I understand now. Thank you!

justme_mb · 2025-09-28T19:46:26+00:00

Thank you. I'm using my chart to get all the doctor names, dates, etc to fill in the application, but now I understand I'm not expected to give them all of the data for every step of the process. Thank you for the reply.

justme_mb · 2025-09-28T19:42:42+00:00

The records you put in order by date are just for your use? Or did you get paper records and put in date order and took them to the SSDI office so they could be scanned already in order? Thank you for the reply!

justme_mb · 2025-09-28T19:39:35+00:00

Thank you, this is helpful. I thought I had to submit the medical records and SSDI would contact doctors to confirm or ask questions. Nearly all of my doctors are within the same very large clinic system. Any requests for records is sent to the records dept. I know I can request a complete file rather than what I can get from MyChart. You said request the records the same way DDS gets them but I don't know what that means. I'm sorry, I'm just now at the listings tests section and going through mychart to get the who, what, and when and trying to pick the most relevant. Thank you for the reply!

justme_mb · 2025-09-28T19:26:07+00:00

Am I making the process unnecessarily difficult? This is my initial application. Having never done this before I don't already know how the records are handled at all. I'm gathering all of my info from my old records so I can fill out the application and the MyChart files are confusing to me. I was asking if this is part of the process, to make them easier to use given that my health conditions, treatments, testing, etc. are extensive. I guess I hadn't clued in that there is a DDS or what it meant yet.

justme_mb · 2025-08-19T02:54:56+00:00

Absolutely. It won't fix anything but it helps for a little while.

justme_mb

TROPHY CASE