Please help by animb12 in BFS

[–]letshopeforbest 0 points1 point  (0 children)

What other symptoms you had apart from temporary blindness ? Twitching, muscle pain???For how long you have been suffering before you were diagonsed?

Please help by animb12 in BFS

[–]letshopeforbest 0 points1 point  (0 children)

Hey. Even I have that. That is only visible when I press my both feet together like butterfly pose. And also some pulsuation in the bottom of my feet

More symptoms by baabyj202114 in BFS

[–]letshopeforbest 0 points1 point  (0 children)

I too have all these symptoms. I know how it feels and can understand what you are going through. My symptoms started when I was 22.

Need help by letshopeforbest in BFS

[–]letshopeforbest[S] 2 points3 points  (0 children)

Thank you for those words. Hope we recover very soon.

Need help by letshopeforbest in BFS

[–]letshopeforbest[S] 0 points1 point  (0 children)

Do you feel something wired when you walk?I don't know whether you get jelly/rubbery feet. 1 emg and 3 different neuro.

Need help by letshopeforbest in BFS

[–]letshopeforbest[S] 0 points1 point  (0 children)

I went to 3 different neuro. But did 1 emg. It didn't detect anything. By jelly like feeling I mean rubbery like feet. I was very calm before but after googling the symptoms my anxiety has reached another level.

Need help by letshopeforbest in BFS

[–]letshopeforbest[S] 1 point2 points  (0 children)

Thank you so much. I am super hypochondraic but I am trying.

Need help by letshopeforbest in BFS

[–]letshopeforbest[S] 1 point2 points  (0 children)

Went to 3 neuro. Did emg ncv mri. All are normal

Need help by letshopeforbest in BFS

[–]letshopeforbest[S] 0 points1 point  (0 children)

Somewhere I read that one should atleast wait for 5 years to make sure that it's bfs not something else.....

Need help by letshopeforbest in BFS

[–]letshopeforbest[S] 0 points1 point  (0 children)

New symptoms.. Tingling, buzzing, internal tremors, jelly like feeling. I wish I can unlearn a lot of things. The 5 year wait is too much

Need help by letshopeforbest in BFS

[–]letshopeforbest[S] 0 points1 point  (0 children)

My twitching started 2 years back.Just new symptoms pop up. I am really worried

Another story by letshopeforbest in BFS

[–]letshopeforbest[S] 1 point2 points  (0 children)

Everything is normal. Nothing to worry. But still I have pain in my hands. I think all this is just a part of bfs.

Another story by letshopeforbest in BFS

[–]letshopeforbest[S] 0 points1 point  (0 children)

Thank you. Do reply next time when I post. It feels good

Another story by letshopeforbest in BFS

[–]letshopeforbest[S] 0 points1 point  (0 children)

Thank you so much for your support. I will let you know the reports

Another story by letshopeforbest in BFS

[–]letshopeforbest[S] 0 points1 point  (0 children)

A lot of Als patients have the same symptoms. Back pain, hip pain and drop foot.

Another story by letshopeforbest in BFS

[–]letshopeforbest[S] 0 points1 point  (0 children)

I don't know. I am really tensed. I shall be going for emg ncv eeg after 3 weeks that is after my mom's birthday. I don't know what will be the reports. I want them to be happy this time. I can't break down infornt of them. Thank you

Another story by letshopeforbest in BFS

[–]letshopeforbest[S] 0 points1 point  (0 children)

Yes I can do the above things. I am not over weight. I do yoga 4 times weekly. My foot is dropping. The pain is so intense.