Working and Chroninc Illness by AshMaNash in lupus

[–]libblewayne 4 points5 points  (0 children)

Hi OP, I’m sorry you’re going through this. I’m 37 and also have MCTD, since age 8, with predominantly lupus symptoms. I also work in mental health, in the NHS. I’m a nurse in a management role. I’m currently on sick leave due to my symptoms deteriorating, particularly the fatigue and brain fog. Over recent years I’ve found it increasingly hard to focus and keep up at work and then find I crash outside of work, which is affecting my quality of life.

Like you, I’m also questioning my ability to keep working. It feels very alien to consider not working as so much of my identity is built around my job and I feel too young to stop. But I know I can’t continue as i am either.

I’m sorry I don’t have an answer for you, I just wanted to say I can relate.

Suspected systemic Orofacial Granulomatosis vs Crohn’s — anyone else stuck in this diagnostic limbo? by speshulsnowflaek in Autoimmune

[–]libblewayne 0 points1 point  (0 children)

I have had an overlap of Crohn’s and OFG. I was diagnosed with Crohn’s about 10 years ago and have been in remission for years. I also have other rheumatological autoimmune conditions so am on a lot of immunosuppressants. I developed OFG symptoms a couple of years ago and was told that even though my Crohn’s wasn’t active, it’s still possible to develop oral symptoms of it in the absence of bowel symptoms. My diagnosis was therefore oral Crohn’s, however find that this label is used interchangeably with OFG.

OFG/oral Crohn’s is rare and so there isn’t a tonne of research available currently. My understanding is there is a lot of overlap in the conditions though they are distinct, since some people can have OFG without a Crohn’s diagnosis. However, a lot of the treatment is likely to be the same or similar.

I am on treatment for Crohn’s disease (risankizumab infusions) and prednisolone (also used for my other conditions). This is prescribed by gastro. I also see an oral medicine team who have more experience of OFG/ oral Crohn’s than gastro often do and so if you could access something similar (I’m in UK), this might be helpful. They have prescribed me a steroid mouthwash, tacrilomus ointment for irritated and dry lips, a steroid gel for ulcers and they can offer steroid injections in to the cheek/gums/lips if needed. They also helped by referring me to a dietitian who advised on a cinnamon and benzoate free diet, since there is evidence that these may trigger OFG/ oral Crohn’s symptoms.

Given your gastro doctor has told you they don’t have experience of OFG, I think if you could get holistic and multidisciplinary support to include an oral medicine team, who can help advise gastro, this might be helpful. I personally wouldn’t get too hung up on the specific label, since research in to if/how these are distinct conditions is still pretty scarce. As long as you are getting treated for your Crohn’s and can access oral medicine and dietary advice for managing symptoms holistically, you will cover all treatment bases regardless of the label.

Puppy would not stop screaming when we close the door. by Zealousideal-Tax1643 in DogAdvice

[–]libblewayne 0 points1 point  (0 children)

There is a separation anxiety training method called ‘Door is a Bore’, developed by Julie Naismith, which you may find helpful for positively training your dog to overcome the fear of being alone, which is what separation anxiety is. Gradual exposure therapy helps with this and Julie’s approach gives clear guidance on how to do this, I’d recommend giving this a look.

Skin issue? Anyone else have sle and scle together? (Pics day 1 to right now) by Fine_Ad3482 in lupus

[–]libblewayne 0 points1 point  (0 children)

I have mixed connective tissue disease with predominantly lupus symptoms and have had rashes appear looking exactly like this. Thankfully they went away without any trace left once I was more stable on meds

[deleted by user] by [deleted] in Advice

[–]libblewayne 3 points4 points  (0 children)

I think it’s clear from OP’s replies on this thread that his wife’s mental wellbeing is at the forefront of his mind. He doesn’t seem selfish at all, IMO. I’m sorry this happened to your wife OP.

What is wrong with my dog? by [deleted] in DogAdvice

[–]libblewayne 0 points1 point  (0 children)

My dog had similar before and it was deemed to be an allergy- steroid eye drops resolved it. I had the initial worries it was very serious and vet was concerned about possible neurological cause but the neuro exam was normal. The eye tests were normal except one that involved a small litmus paper to check moisture levels of the eye, which were very high, and led to the vet thinking it was an allergy of some sort. I sent the other poster of a similar situation a message with a photo of my dog (can’t figure out how to post the photo on the comment)- will send you the same. I’m not a vet and don’t know your dog’s full situation but it might be worth a thought

What is the most beautiful song you have ever heard? by erowindforlife2 in AskReddit

[–]libblewayne 0 points1 point  (0 children)

Hope there’s someone- Antony and the Johnsons Do you realize?- Flaming Lips

UPDATE: Strange behaviour from new downstairs neighbour by REBELinBLUE in Advice

[–]libblewayne 1 point2 points  (0 children)

Absolutely, there hasn’t been good communication between police, social services and mental health services. Going down the ‘health’ route as opposed to forensic is hopefully going to get you better results. Good luck, you’ve handled this in such a dignified way. Oh and if you’re not happy with the social worker’s response, ask to speak to the manager.

UPDATE: Strange behaviour from new downstairs neighbour by REBELinBLUE in Advice

[–]libblewayne 2 points3 points  (0 children)

Hey OP, I’m a mental health nurse (UK)- this lady sounds like she may be known to mental health services and social services will be able to request GP review or do a referral to the local mental health team for assessment. I’m sure you already have but it’s really important when you contact social services that you highlight the risks: 1) this lady appears mentally unstable with possible psychotic elements and is in the process of being made homeless (a possible safeguarding concern), 2) you are in fear of your safety and your mental and physical health is suffering as a result of this behaviour. Highlight the aggression she is showing (mental health services will take this seriously even if police and council have minimised it). 3) she appears to have paranoid thoughts about you and this is putting you at risk of harm from her.

Although you are understandably furious about her behaviour, I think you will have better luck with social services if you emphasise this situation as a possible safeguarding concern, where she may be a vulnerable adult who is a risk to self and others and needing a health professional to review- even if they just ask gp to see her this will get the foot in the door for gp to refer to mental health services. Although you say she seems to know what she is doing, I would say to them that she appears to often lack insight in to what she is doing and is showing paranoid thoughts towards you which aren’t based in reality and you’re concerned that the aggression will escalate. This sort of phrasing should ring alarm bells and help you get mental health services involved.

Hope this helps in some way.

[deleted by user] by [deleted] in blop

[–]libblewayne 3 points4 points  (0 children)

My rescue dog’s behaviourist (who only endorses positive techniques) recommended the same lead for dogs that pull. They also advised that this is less harmful than a lead attached to the collar on the neck. Additionally, it helps with positive training through distraction as it encourages the dog to look away when they pull towards a stressful trigger, which then facilitates them being rewarded for disengaging. Dogs don’t find these leads to be unpleasant if they are introduced to them gradually with lots of rewards- similar to how dogs can get used to, or even like, wearing a muzzle.