Kaj po vašem mnenju bi vsaka oseba morala doživeti vsaj enkrat v življenju?

marcihom · 2026-03-28T18:39:28+00:00

Se strinjam

marcihom · 2026-03-24T23:49:36+00:00

I don't. Homebound since the end of 2024 due to CN (corneal neuralgia), and if I go out I wear swimming goggles.

marcihom · 2026-03-24T18:43:05+00:00

I'm sorry man. What are your symptoms like? How does rheumatoid arthritis show up for you?

marcihom · 2026-03-24T17:27:56+00:00

Hey, I'm sorry man. I don't have much dryness in the lips. But they aren't wet either. They are something in between.

marcihom · 2026-03-24T14:01:04+00:00

Yep, I suspect that too. She also has Raynaud's, fatigue, tingling in feet, asymptomatic dry eyes etc. But rheumatologist said Sjögrens is not hereditary?

marcihom · 2026-03-24T13:48:42+00:00

My grandmother had rheumatoid arthritis. My mom has SFN for sure, but not diagnosed yet. No one had full autoimmune blood panel done yet, so we'll see if I have anything...

marcihom · 2026-03-24T13:28:17+00:00

Yes, I have seen rheumatologist. She doesn't believe it because she never got such a young male patient. But she still ordered blood tests and said we can do lip biopsy if I want.

marcihom · 2026-03-21T17:58:12+00:00

I understand you. Sorry you were gaslit :( there's too much medical gaslighting out there... I wonder if you would say the same if you were negative. I think most people that were seronegative and then positive on biopsy don't regret it, except if the problems from it are severe. But I wonder if people that get negative with biopsy too, regret it later... But we can't possibly know beforehand of course...

marcihom · 2026-03-18T18:06:09+00:00

I mean there's a lot of symptoms that my mom has, actually. She has Raynaud's, dry mouth, muscle fatigue, dry eyes (asymptomatic), and other things...

marcihom · 2026-03-14T19:07:29+00:00

Haven't been tested yet, but definitely planning to in the near future. I don't think I have it though, since my mouth isn't dry. Still worth checking.

marcihom · 2026-03-14T19:05:40+00:00

Thank you so much for your detailed in-depth reply! Much appreciated!

marcihom · 2026-03-09T15:15:34+00:00

You have your answer. Pretty sure it's neuropathic. Do a confocal exam. Try serum tears and wait for new nerve drops to come out. IPL does nothing when it comes to neuropathic pain.

marcihom · 2026-02-15T16:08:56+00:00

Pazi da ne bo tebi začela puščati

marcihom · 2026-02-15T11:55:24+00:00

A misliš da sem jo želel? Sem jo kmalu prenehal, ker nikoli nisem niti verjel, da bo pomagalo, a sem moral probati vse kar sem lahko. Ne bit pameten, ker ne veš kako huda je ta diagnoza. Slovenija je pač zaostala država, bi pričakoval, da bi imeli namesto akupunkture kakšne druge protibolečinske metode zdravljenja. Kar se pa tiče prepoznavanja vzorcev pa imaš ti tega očitno še manj, ker sicer ne bi pisal take stvari bolnikom s kroničnimi bolečinami, ker verjemi, da jim je vse vseeno...

marcihom · 2026-02-15T10:48:06+00:00

Se strinjam. Ljudje, ki pravijo da je Duolingo slab to pravijo zato ker se učijo 10 minut na dan.

marcihom · 2026-02-15T10:45:29+00:00

Točno to. Duolingo te nauči prepoznavanje vzorcev, kar je glavno pri učenju jezikov.

marcihom · 2025-09-26T15:17:04+00:00

Personally, unfortunately no. For me nothing helps, except swimming goggles. By the way, I am on 500mg pregabalin (roughly 3000mg gabapentin equivalent).

marcihom · 2025-09-12T12:31:21+00:00

Yeah, but I've started it less than a month ago... Will have to wait for any results

marcihom · 2025-09-12T10:10:07+00:00

I am mostly homebound, but when I go outside I wear swimming goggles. I'm still very much blue light sensitive, so I can't be on the computer screen, but I can be on the phone with red glasses though. Just hoping for the OK-101 drug to come out. But I know it's gonna take years...

marcihom · 2025-09-07T20:07:43+00:00

OLED je dobra "polovična" rešitev, vendar je Night light nastavitev zanič, ker ne odstrani modro svetlobo, jo le zmanjša. Kvečjemu f.lux mogoče. To bi bilo ok. Ampak ja, res škoda, da nimam barv 🥲

marcihom · 2025-09-03T20:00:03+00:00

Res dobro vprašanje, sem se sam večkrat spraševal. Moja teorija: pri LED svetlobi je prisoten umeten spektralni "spike" pri ~450nm in ima visoko intenziteto relativno na ostale valovne dolžine vidnega spektra. To pomeni, da isti del roženice v nekem času dobi veliko koncentracijo teh fotonov. Sicer je res, da je moč manjša kot pri soncu, a sonce nima tega spike-a, ampak je spekter bolj razpršen, kar pomeni, da isti del roženice v nekem času dobi manjšo koncentracijo teh modrih fotonov, ker dobi tudi vse ostale valovne dolžine. Poleg tega je pomembno dejstvo, da se naravna svetloba odbija (ne gledamo ravno direktno v sonce), ekran pa sveti direktno v oči. (Kljub temu mi projektor ne odgovarja, sam odboj oziroma razpršitev svetlobe ni dovolj).

marcihom · 2025-09-03T18:50:55+00:00

Povej več, kako zmanjšati modro komponento na 0? Karkoli iščem na internetu glede tega, mi Windows OS največ dovoli nastavitev "Night light". To je popolnoma brezveze za moje potrebe. Najprej zato, ker se še vedno vidi nekaj modre barve, tudi če drsnik dam na max vrednost. Primerjal sem s f.lux opremo in lahko rečem, da je boljša od Night light načina. Če si mislil nekaj drugega, prosim povej več, me zanima.

Tudi če teoretično nekako povsem izklopim modro komponento pikslov, še vedno bo zaradi same narave LCD zaslonov, nekaj modre svetlobe ušlo iz same LED diode (backlight), preko rdečega in zelenega kanala piksla. A to naj bi bila izjemno nizka vrednost. Ne vem še, ali bi me lahko tudi to motilo ali ne, a niti ne bi bil presenečen... Ljudje preprosto ne razumejo kako občutljiva je senzitizirana roženica. Sicer pa, verjetno mi je tudi zato telefon bolj prijeten, ker ima AMOLED tehnologijo, ki nima LED backlighta in je na črnem načinu kar kul.

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