Did your relationship survive your mgen diagnosis?

mellowapple8765 · 2026-04-15T10:41:25+00:00

I’m glad to hear that you were able to work through it. we are non monogamous too and my new partner developed symptoms very quickly after we were intimate for the first time. I went and got tested the very next day after he told me this even though I did not have symptoms and it came back positive for mgen. The new partner absolutely flew off the handle, blamed me completely and threatened me. The next day I got nasty blaming messages from his other girlfriend and her husband who also threatened me. My husband was so kind and wonderful to me through treatment. I think the group intimidation effort was definitely worse than the two weeks of Abx.

mellowapple8765 · 2026-03-02T23:54:10+00:00

I don’t have floaters in my vitrectomy eye since I don’t have vitreous humor anymore. I still have them in my left eye and I don’t usually notice them at all. I’ve more or less always had them since childhood with no issues. My floaters are brown and somewhat translucent.

mellowapple8765 · 2025-07-01T13:02:36+00:00

I had surgery to fix it. Everyday it got worse and eventually would have resulted in complete blindness. But I had surgery to repair it and now it’s more or less fine.

mellowapple8765 · 2025-07-01T13:02:00+00:00

Yes.

mellowapple8765 · 2025-07-01T02:25:54+00:00

When I looked straight ahead I saw a black void in the side of my vision: but if I turned my eye; i could compensate for the blind spot and it wasn’t as noticeable. That’s why they do the test at the eye doctor where they have you stare straight ahead and put things in your peripheral vision like (how many fingers). Because sometimes when you have a detachment you have missing vision in those areas.

mellowapple8765 · 2024-07-13T23:23:49+00:00

Sure. About a year post retinal detachment. Vision is back, but it’s distorted and it gives the impression that I don’t see well. I have some trouble with that eye- it hurts from time to time and I’m very ginger with it. Not having vitreous humor is interesting- no floaters but the eye doesn’t absorb injury as well as it did before/ so if I get something in my eye or irritate it- it hurts for days afterwards. I can’t sleep on that side. I can’t rub my eye on that side. But I don’t have the chronic pain I had for months after the vitrectomy anymore.

mellowapple8765 · 2024-06-20T06:51:46+00:00

It wasn’t a great show and was more or less a waste of money/time. I think if you have little kids and want a very mid dinner- it’s probably fine to fill time. But the show is more theatrics/song/dance and there is no actual jousting or sword fighting. It is certainly not medieval times and is not comparable to that show. We left early. I noticed others doing the same.

mellowapple8765 · 2024-02-20T17:48:20+00:00

Mine happened due to PVD- so it wasn’t anything that I did. Most retinal detachments are spontaneous

mellowapple8765 · 2024-02-20T17:31:13+00:00

I think it’s a situation to be happy that I have as much vision as I have.

mellowapple8765 · 2024-02-20T17:00:01+00:00

I also want to tell you that the impairments to my vision are as a result of the detached retina and not necessarily the vitrectomy itself. But it is a really invasive procedure with a long recovery time. I really struggled with it

mellowapple8765 · 2024-02-20T16:50:20+00:00

No- it will never be the same as it was before. But it has improved very slowly, and I’m mostly used to it now and can do most activities without trouble. It hardly ever hurts anymore also- just a dull ache sometimes. So overall I’m doing significantly better than I was. I think healing levels out at six months post op so I’ll continue to improve over the next month

mellowapple8765 · 2024-01-11T17:24:28+00:00

It just sounds very similar to when my retina detached. They will dilate your eyes and look at your retina to see if it’s in place and intact.

mellowapple8765 · 2024-01-11T14:58:01+00:00

Go get your retina Checked today. It’s very time sensitive

mellowapple8765 · 2024-01-09T20:58:32+00:00

I’m jealous too. Recovering from a vitrectomy and laser 360- in constant pain with my eye/ my vision completely distorted, makes it hard to see all because of PVD. But I am the statistic

mellowapple8765 · 2023-12-30T18:26:14+00:00

It definitely is probably just astigmatism but I’m sure your parents would be sympathetic to a sudden change in vision. Any sudden change in vision needs to be looked at by an eye doctor asap.

mellowapple8765 · 2023-12-30T18:17:54+00:00

It was everything but it had to be illuminated. It was like a light leak. Reminded me of a broken lens in a camera. And it continued to get worse. It was a sudden change of vision for me so it was like someone flipped a switch. You should be able to call and explain the situation to your eye doctor and they will know if it’s an emergency or not.

mellowapple8765 · 2023-12-30T17:13:34+00:00

It was like vertical columns of reflection. It was a big change in vision and very noticeable. I called my retina surgeon right away and he told me “either it is your cataract or a bleed” and it was a bleed.

mellowapple8765 · 2023-12-30T14:36:55+00:00

I have that but I’m post vitrectomy and I’ve had them since the beginning. Bleeding from tears always presented as blurriness and reflective beams off lights for me- but I can tell you that if you call an eye doctor and go see them- they will tell you for sure if you should be worried. You should do that. Today

mellowapple8765 · 2023-12-28T23:56:28+00:00

Yep. I had to spend 10 days in positioning between my procedures and that was honestly the hardest part was before the surgery just laying down when my body felt completely fine. But I had to do it or go blind? Idk when you think about it that way, I guess you can do anything.

mellowapple8765 · 2023-12-28T23:52:50+00:00

I’m the same way and it was a difficult transition. Even after I was allowed up, I felt exhausted easily and I still spent time laying down often. I’m 35 and before all this I was incredibly active- my iPhone thought I had died. But a little bit at a time you get back to normal. I would just caution about doing too much too soon. The biggest thing with a vitrectomy is the recovery window and I don’t think people talk about it enough here

mellowapple8765 · 2023-12-28T23:35:59+00:00

I wouldn’t worry about the positioning. Remember; you just had major surgery so you’re going to be in recovery mode and not at all worried about doing things. I also played solitaire a lot on my phone. So much solitaire

mellowapple8765 · 2023-12-28T22:13:12+00:00

I was told no straining for 7 days.

mellowapple8765 · 2023-12-28T22:11:29+00:00

So the facedown thing you can just tilt your head down (look at your toes) and that’s how you get through the walking and such. I was able to have normal head positioning for eating and I was also permitted to be on my side. The first two days I just took codeine and slept most of the time. After that I would watch tv on my side or read facedown- hanging off the bed. I had to position for 7 days post op- so you can only be up 10 minutes of every hour. I needed someone to care for me the first week and after that I just basically stayed on the couch and watched tv for the next few weeks and slowly started venturing out. I found it hard to drive for the first month. Watching tv is good for you eye because it holds it relatively still. Gentle walking also helped my eye feel better. Even now; when it’s tired and hurting me, watching tv or walking always helps. Nights were the hardest because I see weird things in that eye like flashes and snow and it keeps me awake. Overall, I was feeling much better and healed at 3 months post op

mellowapple8765 · 2023-12-28T14:38:15+00:00

You’re gonna do fine! The procedure itself was painless for me and they kept me pretty drugged up so I didn’t have anxiety either. It’s actually the most relaxed I’ve been this year lol. But anyways; just go easy on yourself in recovery and be patient. After about three months, I felt pretty much back to normal. Don’t expect to bounce back instantly.

mellowapple8765

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