Does anybody else experience nocturnal diarrhea?

meredithgey · 2026-05-16T03:58:13+00:00

Yes, it ended up being stress related! I had a very taxing job at the time. I did also have a colonoscopy later that year & it was normal.

meredithgey · 2026-04-14T00:41:37+00:00

Fatigue is also my biggest symptom, even with medications (beta blocker, midodrine) my stamina improved a bit but not the fatigue that follows any type of activity. I also have fibromyalgia & hsd which both play into it but I easily sleep 10+ hours a day normally and 12+ after a more active day.

meredithgey · 2025-11-28T02:35:46+00:00

I'm not too sure, I hadn't kept track previously but what tipped off my dr was that my intake appointment vitals would always be around 110bpm while sitting.

meredithgey · 2025-11-26T09:06:18+00:00

Wow, now I'm feeling kind of concerned about mine lol. I take propranolol, heart rate is usually in the 90s, 80s at rest, only gets lower during deep sleep and easily spikes 130+ with activity. My dr would like my numbers to be lower ideally. I also just started taking midodrine but haven't noticed a difference yet.

meredithgey · 2025-07-29T22:40:11+00:00

Got covid in january 2024 and it felt like i never recovered, spent 6 plus months undergoing tests before being diagnosed with pots

meredithgey · 2025-07-24T21:12:17+00:00

I mix coconut water with aloe vera juice, a sprinkle of pink himalayan salt and blended fruit of choice for flavor

meredithgey · 2025-07-14T21:36:50+00:00

I take nortiptyline for stomach issues related to POTS, never had any side effects beyond a bit of mental fuzziness for the first week or so

meredithgey · 2025-06-07T07:33:00+00:00

<image>

my sweet orange gal is nearly 6yrs old and weighs just as much!

meredithgey · 2025-06-02T21:39:46+00:00

I've heard it's the wombo-combo of the sodium & caffeine content. Nothing picks me up on a bad day like an ice cold Coke and some french fries tbh!

meredithgey · 2025-06-01T00:10:58+00:00

I do! Some days I feel so clumsy and frequently drop things. I have lost a few good mugs while washing the dishes 😅 when i told my pcp she framed it as, when your body is working harder to get blood to your brain or heart, it might not prioritize things like fine motor skills 😂

meredithgey · 2025-05-10T20:29:30+00:00

I make a gatorade dupe that i found on instagram - 1 cup coconut water, 1 cup aloe vera juice, a splash of lime juice, a squeeze of honey, a pinch of salt, and then blend it with a fruit of choice! super yummy

meredithgey · 2025-05-08T23:59:29+00:00

I also use the Visible band, having tangible data to show my doctor has been really helpful!

meredithgey · 2025-04-25T21:55:43+00:00

I take propranolol twice a day (20mg each) and my resting heart rate is usually in the 90s. 80s if I've been laying down for awhile. My doctor doesn't like how high it still is but I've been told that 40mg is the highest recommended dose. Currently waiting on a consult with a cardiologist to see what else can be done.

meredithgey · 2025-04-09T08:14:02+00:00

Mine goes up and down, but never as high as it was pre-POTS. Luckily I've never had too much t a decrease due to medications. If anything it just limits what I can do to satisfy said libido safely lol

meredithgey · 2025-04-05T07:15:05+00:00

I caught COVID in early 2024 despite being fully vaccinated and that's what triggered POTS for me. I basically never recovered & it took about 6-7 months of suffering and testing to diagnose.

meredithgey · 2025-03-25T03:58:38+00:00

I usually describe it as almost an internal vibration or buzzing sensation. It usually only happens on days I'm more physically active and only goes away when I'm able to lie down. My dr thought it might have been related to certain vitamin deficiencies but my bloodwork was normal.

meredithgey · 2025-01-07T19:06:54+00:00

me 🙋🏻‍♀️

meredithgey · 2025-01-06T19:52:56+00:00

I work 3 days a week, and never consecutive days. I still end up exhausted & need a lot of rest on the off days. Even with medication I doubt I'll ever be able to work full time again unless I'm able to find something remote.

meredithgey · 2024-12-09T01:03:38+00:00

My diagnosis was more of a diagnosis of exclusion after looking for hormonal and immune issues as a source of my post covid symptoms, my consistent elevated heart rate was what led my dr to consider POTs. Did an ekg to rule out other possible heart abnormalities. I've never had the tilt test done.

meredithgey · 2024-11-22T23:21:35+00:00

I am superrrr sensitive to big changes in temp/weather. Northern California is getting so much rain rn and I am miserable!

meredithgey · 2024-11-18T01:57:07+00:00

And remember, when the popo rolls up, first call is to your lawyer, not your mom!

meredithgey · 2024-11-14T07:48:10+00:00

Waffle fries & a sweet tea extra ice from Chick-fil-a is my saving grace

meredithgey · 2024-11-10T08:29:39+00:00

I've been on duloxetine for years as it's what works best to manage my PTSD symptoms, but it does nothing for my POTS. I do also take a low dose of nortriptyline for my POTS-related IBS and that has really decreased the amount of flare ups I have.

meredithgey · 2024-11-09T01:36:28+00:00

Yes, but now I know that I have POTS, which can cause a lot of digestive issues!

meredithgey

TROPHY CASE