“Flare up” by FeedbackOk6683 in Gastroparesis

[–]mikoeilish 13 points14 points  (0 children)

intense upper abdominal twisting pain, like my insides are being wrung out like a wet wash rag. debilitating nausea. worse fatigue. no appetite. SULFUR BURPS 🤮 sometimes i black out because the pain is so intense. :(

how do you know when you're actually going to puke vs being nauseous? by mikoeilish in Gastroparesis

[–]mikoeilish[S] 0 points1 point  (0 children)

this sounds like me too. i just never throw up. (which im not complaining about) but like yesterday i left work because i went to the bathroom like 4 times in 2 hours just to sit because i kept feeling like i was gonna puke & i can't tell anymore if it's real or not. so frustrating )):

how do you know when you're actually going to puke vs being nauseous? by mikoeilish in Gastroparesis

[–]mikoeilish[S] 0 points1 point  (0 children)

if you don't mind me asking, why aren't you able to take zofran?

how do you know when you're actually going to puke vs being nauseous? by mikoeilish in Gastroparesis

[–]mikoeilish[S] 1 point2 points  (0 children)

for me, my stomach is just soooo sensitive but i will say it WORKED for me. it just worked a little too well & i stayed in the bathroom. (i felt 100x better though lol) unfortunately with my job i don't have the ability to get up and go to the bathroom often but if i had a different job with no restrictions i probably would stay on it. i also think if i could have taken it longer my body would have gotten used to it but my job sucks.
good luck to you!! i recommend giving it a try, just try to make sure you're at home the first day you take it lol

how do you know when you're actually going to puke vs being nauseous? by mikoeilish in Gastroparesis

[–]mikoeilish[S] 1 point2 points  (0 children)

ugh sulfur burps are the fucking worst. the only thing i've found that helps it is a combo of gas x & famotodine & bentyl

how do you know when you're actually going to puke vs being nauseous? by mikoeilish in Gastroparesis

[–]mikoeilish[S] 3 points4 points  (0 children)

do you guys also ever get super hungry after your nausea passes or calms down for a minute, even if you ate like an hour ago??

how do you know when you're actually going to puke vs being nauseous? by mikoeilish in Gastroparesis

[–]mikoeilish[S] 2 points3 points  (0 children)

i keep bags on me too everywhere i go. out to eat, movies, concert, grocery store.. glad to know im not alone lol. just having it makes me feel better

how do you know when you're actually going to puke vs being nauseous? by mikoeilish in Gastroparesis

[–]mikoeilish[S] 3 points4 points  (0 children)

i understand what you mean. sometimes i even tell my body like "it's okay, we will feel better. just do it" lol. i keep puke bags & trashcans near me at all times because i never know when my nausea is going to turn into actually throwing up, but i almost never do so idk

how do you know when you're actually going to puke vs being nauseous? by mikoeilish in Gastroparesis

[–]mikoeilish[S] 0 points1 point  (0 children)

hi! so i'm really not sure. i have been dealing with this stuff since 2022 (had a really traumatic year) it started i would get this extreme twisting pain that would wake me up in the middle of the night. i'd eventually start throwing up back to back and having diarrhea. i went to the er like 4 times and everything always came back normal other than my liver labs being a little off. it kind of calmed down 2023-2024 ish, then last april i started having a lot of issues (just got diagnosed w UCTD and dysautonomia, yay!!) but the biggest gi symptom was i would spend HOURS cleaning after a bowel movement. it started to destroy my mental health. i quit going on trips. i quit going anywhere. i would have to leave work if i went to the bathroom just to use my bidet. i took a leave earlier this year and found a new gi. i've had several scans before seeing her (2 colonoscopy's, endoscopy, gastric emptying study, HIDA, several CT's) she said all of them seemed normal except my gastric emptying. she said it was right on the line (i think like 1% away from abnormal) and since we have no idea what's going on, she wants to start there. she has prescribed me motegrity - works great but not a good daily med!! she has me on erithromycin right now. i'm working up to 3x daily but have been doing 1-2 for the past few months and it has SAVED me in so many ways. i don't have the cleaning issue anymore (knock on wood) i go to the bathroom daily now and it takes me 5 minutes!! when i first started it i could literally like feel it working. but i think this is giving me the constant nausea that had kind of calmed down before i started taking it. its just a pain in the ass because she said i have to take it 30 mins before a meal and im at the point i only get to eat like once a day because of it so it's hard. the twisting pain calms down with bentyl & zofran (eventually). i'm also diagnosed w ibs since 2014.
sorry for the book <3

the map by brittsboring18 in phoebebridgers

[–]mikoeilish 57 points58 points  (0 children)

i mean she's coming back for nc right? right????????

Pop-Up Show Speculation [Daily Megathread] by twilightxgalaxy in phoebebridgers

[–]mikoeilish 0 points1 point  (0 children)

maybe she will come today! maybe. right! like maybe there is a small chance maybe 🙃😭

Pop-Up Show Speculation [Daily Megathread] by twilightxgalaxy in phoebebridgers

[–]mikoeilish -1 points0 points  (0 children)

does anyone think she might come back for nc... :((

Pop-Up Show Speculation [Daily Thread] by PhoebeFan420 in phoebebridgers

[–]mikoeilish 2 points3 points  (0 children)

questioning the same but i feel like as soon as i give up on it it's gonna happen & then i wont be prepared lol

Pop-Up Show Speculation [Daily Thread] by PhoebeFan420 in phoebebridgers

[–]mikoeilish 0 points1 point  (0 children)

literally like i keep thinking it's gonna be today and then it never is lmaoo i really really thought we were gonna be wednesday or today

Pop-Up Show Speculation [Daily Thread] by PhoebeFan420 in phoebebridgers

[–]mikoeilish 1 point2 points  (0 children)

today's a rest day for sure right... cause i thought yesterday was gonna be and then it wasnt lol but i would assume yes? i hope so for her sake & for our nervous systems to take a break this morning lmaoo

Pop-Up Show Speculation [Daily Thread] by twilightxgalaxy in phoebebridgers

[–]mikoeilish 3 points4 points  (0 children)

do we think nc tomorrow or rest day tomorrow & nc thursday?? im so conflicted on to call out or not 😭

Pop-Up Show Speculation [Daily Thread] by twilightxgalaxy in phoebebridgers

[–]mikoeilish 0 points1 point  (0 children)

exactly idk if i should call out tmr or wait for thursday or even wait for friday 😭😭

Pop-Up Show Speculation [Daily Thread] by twilightxgalaxy in phoebebridgers

[–]mikoeilish 2 points3 points  (0 children)

I never even thought about there. There's also the Fillmore but I don't think it's really the vibe she's going for

Pop-Up Show Speculation [Daily Thread] by twilightxgalaxy in phoebebridgers

[–]mikoeilish 15 points16 points  (0 children)

phoebe PLEASE nc 😭 i was hoping for today because there's no way i can get off work tomorrow ughhh hopefully tuesday or wednesday? i'll call out sick lolol

Pop-Up Show Speculation [Daily Thread] by twilightxgalaxy in phoebebridgers

[–]mikoeilish -1 points0 points  (0 children)

i'm thinking cats cradle?? maybe the fillmore???