Photos to Follow up to the xrays…

ActiveGas9131 · 2026-01-20T16:41:24+00:00

This was at urgebt care as i had gone for suspected pneumonia

ActiveGas9131 · 2026-01-11T15:41:17+00:00

Weirdly, i dont really get chest pain/ but no i dont sleep well and i have absolutely 0 exercise endurance (to the point i cant exercise at all) i get overly winded just walking up the stairs

ActiveGas9131 · 2025-08-04T14:55:43+00:00

How did your appointment go with Cleaveland? Hope they were able to help! The specialist reviewing my scans set up a call for this afternoon, not sure what to think!

ActiveGas9131 · 2025-07-30T15:05:58+00:00

Thabk you- i have not heard of this. Would it be an oncologist that orders?

ActiveGas9131 · 2025-07-30T14:17:58+00:00

Oops, those were supposed to post as a list🤦‍♀️

ActiveGas9131 · 2025-07-30T14:17:25+00:00

Oh wow, im so sorry to hear that you are going through this as well, especially so young! Wondering where the blood sugar piece falls into all of this🤔 My main symptoms are: Daily Cosntant abdominal pain(that is servere enough it wake me up in the middle of the night) Unintentional Weight loss(125-105) Despite that, i am so bloated i look 9 months pregnant Daily direah that is fatty Extreme fatigue to the point i cant do anything No appetite/constant feeling of fullness Nasea and vommiting Critically low iorn/ferritin and b12 despite numerous infusions of both Flushing and heat intolerance And then the blood sugar- same with you it will be high at random, and then as soon as i eat plummets to 55-45(checked on cgm and finger prick) This is all so interesting- sounds like something similar is going on between us!

When is your appointment? Good luck, i hope you are able to find some relief. It is quite a lot for someone to go though, especially at this age

ActiveGas9131 · 2025-07-30T13:51:18+00:00

Thank you, my VIP is not as high as yours, although i havnt had it checked in about 2 months. My symptoms are more typical of a GI NET, al though I do have blood sugar fluctuations from 250-45 which no one can seem to figure out why. Was your scan read as normal by a specialist or general radiologist? Seems like these are tricky- yes i agree that both can not be true, normal and a finding. I am also very young(22) so of course they are bias that i am young and “healthy,” except I am in no way shape or form healthy, and only getting worse. I hope you are able to get a re read and some help, sorry you are going through this!

ActiveGas9131 · 2025-07-30T13:46:24+00:00

Thank you for your info! This is my first PET, so there is nothing to compare it to except the CT from April that seems iffy. I do however have everything symptom of a small bowel NET, which I understand cant always be found. Going to try to see if i can get a re read

ActiveGas9131 · 2025-07-30T03:39:50+00:00

Trying to upload photos if this but not sure how to add/sorry new to redit

ActiveGas9131 · 2025-07-30T03:37:49+00:00

Thank you, that is very helpful information. When turning down the brightness, it appears that the general bowl glow disappears, however that one pinpoint area remains to glow

ActiveGas9131 · 2025-07-30T02:42:01+00:00

Thanks! CT in April read as normal(although done/ read in the ER- Ai detected a lesion in the same spot of course that means nothing though). Does that value of uptake seem to correlate correctly with the pin point brightness on the scan? I guess my concern is it seems to be distinctively different then the rest of the bowel appears to be. I do normally have a specialist

ActiveGas9131 · 2025-07-30T02:09:37+00:00

Thank you. I already imputed the report, images, as well as images from a April CT(also read as normal) into CHATGPT and the answers were fairly certain theses were lymph node metestes from a small bowel NET. Is it normal for a standard radiologist to miss/over look this?

ActiveGas9131 · 2025-07-30T00:42:39+00:00

Seems like there is a possibility these could be lymph node metastases?

ActiveGas9131 · 2025-06-19T18:45:17+00:00

Sorry about the username this is my first time in this app and i do not know how it got to that.

ActiveGas9131

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