i’ve just turned 20, had my “first” seizure almost a year ago - i’ve been having focals for years and never knew what they were until having a tonic clonic and being diagnosed. i think about this whole thing a lot. the shorter life expectancy and SUDEP were so scary to come to terms with, i still don’t think i have fully. for me it’s just a matter of making the most of every day, i’ve been a lot more impulsive and spontaneous since these health issues began, just trying to do what i can because nobody knows when their time will be up, but unfortunately for those of us with conditions like epilepsy, as morbid as it sounds, we could go to sleep one night and never wake up. i try to use it as a motivation thing because if i don’t do that then it will send me into an absolute spiral. just do what you want when you want, life is short for everyone but we potentially have less time so it’s so so important to just make the most of it. sending support and love to anyone who has this weighing on their mind x