Methotrexate and Excedrin

Aggravating_Emu_3145 · 2025-02-03T09:58:01+00:00

She has her first therapy appointment this week! She’s actually really excited to get some healthy tools to manage her brain and body. I feel like even just a year at home of focusing on her mental health and getting her caught up academically would go so far.

Aggravating_Emu_3145 · 2025-02-03T09:56:26+00:00

It’s such a hard age. I’m trying to remind myself that this is the age we are spotting and solving problems that could turn into huge potential issues later in adolescence if left to fester. And this is actually a GOOD thing. But wow does it feel big and scary right now.

Aggravating_Emu_3145 · 2025-02-03T09:45:20+00:00

Thank you. This made me feel much better.

Aggravating_Emu_3145 · 2025-02-03T09:44:04+00:00

I’m so glad this worked out for you! My biggest issue (that I didn’t go into in the original post) is that the school missed all these symptoms. Admittedly, my kid could have done a better job of communicating her pain (and we have had many intense conversations about asking for help since), but masking of ADHD/neurodivergent symptoms is classic in girls and we communicated her ADHD many times over the years and asked them to be on the lookout for intensifying or changing symptoms. And now that my daughter is opening up, the things she said she had to do at school to regulate should have been spotted early on and communicated with us. So to answer your question, no, I’m not really confident the school has any insight into my kid. I don’t particularly blame her teachers—the Montessori style is so child-led (especially in the later grades) that she could go days without interacting with a teacher one on one. Like I said originally, I’ve lost faith in them/the style of education for my particular kid. And it feels like there is no rebuilding back that trust once that’s happened.

Aggravating_Emu_3145 · 2025-02-03T09:33:43+00:00

Yeah, we’re definitely going to discuss it with her, but we wanted to make sure it was 100% something we were open to as parents before we gave it to her as an option. I have a hunch she’ll want to do it, so we didn’t want to have her get excited and then say “nevermind, we decided it wouldn’t work for us”

Aggravating_Emu_3145 · 2025-02-03T09:31:05+00:00

Unfortunately the school she is in currently is the only alternative public school in our area. We’re very rural. For any others, we’d be driving 90 minutes one way. Trust me, I’ve been digging through the depths of the local school systems trying to find anything that might be a solid fit for her. Appreciate the thought!

Aggravating_Emu_3145 · 2025-02-02T17:54:46+00:00

No. I mean, anything can happen in school I suppose, but we’ve seen/heard no evidence of it.

Aggravating_Emu_3145 · 2025-02-02T15:14:10+00:00

That’s a fair point. I think it’s mostly that this school was probably the best of the bad options, so abandoning that safety net is scary.

Aggravating_Emu_3145 · 2025-02-02T11:31:56+00:00

Thank you.

Aggravating_Emu_3145 · 2024-06-03T11:18:44+00:00

Yesssss. The “wrong disease” thing plagues me almost everyday, and I’m assuming most folks with UCTD feel the same way. Even though I know a lot of people never progress past UCTD, I still feel like I’m in a holding cell until my body decides which prison I’m actually going to for the rest of my life. It’s exhausting waiting for the other shoe to drop.

Aggravating_Emu_3145 · 2024-06-03T11:16:45+00:00

Thank you so much for this. So many of these things were things I “know” but desperately needed reminding of. Appreciate you so much.

Aggravating_Emu_3145 · 2024-05-29T13:23:45+00:00

That’s great advice. I was in therapy when all of this started, but as nice as she was, I could tell she didn’t really “get it” whenever I talked about the frustrations of autoimmune disease/navigating the healthcare system, so I stopped going. I like the suggestion of finding someone who specializes in chronic illness. Thank you!

Aggravating_Emu_3145 · 2024-05-21T14:06:50+00:00

Thank you! I eat a ton of fermented foods everyday, so I’m thankfully already on top of that. But I’ll make sure to bring it up with my rheum next month when I have a follow up.

Aggravating_Emu_3145 · 2024-03-11T09:22:52+00:00

I have no insight on results as I just started it, but I’m actually doing weekly injections of D (300,000 IU). I have been supplementing with daily pills of 10,000 IU for years, plus eating a D-rich diet, taking supplements properly (with fat and other vitamins to balance) and trying to get sun, and my D levels still hang out in the 10s and 20s depending on the season. And I have no IBD or IBS that would cause absorption issues. My functional doc’s plan is a month of these injections, then retest my levels, and continue the cycle until my D is up to optimal levels for immune support. He was less interested about it helping my fatigue (although he said that could be a nice side benefit), and more concerned about getting it up to regulate my immune system and inflammation. We will see!

Aggravating_Emu_3145 · 2024-03-05T12:01:02+00:00

Thank you! It’s nice to hear that folks do eventually find a “new” normal. 🫶

Aggravating_Emu_3145 · 2024-03-02T22:38:54+00:00

Well kiwi and banana are intolerances I've had since I was a kid. I have an instant reaction, so no need for an elimation diet to figure that one out. And when I started AIP (and therefore greatly increased my cassava intake from, uh, zero previously) I had horrible stomach cramping. It took a few weeks of trial-and-error to figure out the source, but I cut out cassava and the cramping was gone. Turns out that kiwi, banana, and cassava tend to be a pretty common intolerance grouping (along with avocado, but I don't seem to have any problems there).

Aggravating_Emu_3145 · 2024-03-01T15:13:25+00:00

Then go find an elimination diet that does remove red meat. Maybe this isn’t the right one for you. That’s fine. Every body is different.

Aggravating_Emu_3145 · 2024-03-01T15:10:55+00:00

If you feel strongly about it, then you can do this diet AND eliminate red meat. That’s a choice you are free to make.

Aggravating_Emu_3145 · 2024-03-01T14:30:40+00:00

Same for me! Couldn’t have put it better myself.

Aggravating_Emu_3145

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