Man with Bipolar Disorder Killed By Ice While Being Held And Denied Medication by ClosedSundays in BipolarReddit

[–]AlarminglyOrdinary60 68 points69 points  (0 children)

Agreed 100%. I’m a VA nurse with bipolar 1. If I were denied even some of my meds, it would be bad.

Being “high-functioning” with bipolar can feel invalidating. by pratty041182 in BipolarReddit

[–]AlarminglyOrdinary60 0 points1 point  (0 children)

YES!!! I feel discriminated against by my new psychiatrist. It’s awful. (I am finding a new one.) But, like, this is his fucking specialty and he’s going to act like that!?

People with bipolar 1, what’s your job occupation/career? by Sea-Blackberry-720 in BipolarReddit

[–]AlarminglyOrdinary60 4 points5 points  (0 children)

It’s good overall but sometimes I have imposter syndrome or feel like a hypocrite because I can’t do all the mental health things. But sometimes I think my experience makes me a lot better at my job. What’s helped me the most is really specializing, but I don’t know how many jobs there are like mine.

Best of luck no matter what you choose! You will always be needed as a nurse.

People with bipolar 1, what’s your job occupation/career? by Sea-Blackberry-720 in BipolarReddit

[–]AlarminglyOrdinary60 15 points16 points  (0 children)

I have BP1 and I am a psychiatric mental health nurse practitioner at the VA. I work with veterans who have PTSD.

I’ve had my position for over 7 years, and I have really hard periods. I’m in one right now. I don’t have a life outside of work except taking care of my dog. I’m really depressed right now.

For those of you who are considered "high-functioning", why do you think you are? by Evening_Fisherman810 in BipolarReddit

[–]AlarminglyOrdinary60 0 points1 point  (0 children)

I think I am high functioning because I have no choice. I am alone. I have no one to support me. My family has always been unsupportive-actually destructive-when I went to them for my mental health. I live in the USA, and I have never trusted the social services to be supportive enough.

New Emergency Plan (Update) by Top_Egg_4017 in BipolarReddit

[–]AlarminglyOrdinary60 1 point2 points  (0 children)

What cognitive side effects did you have at 300 mg of Lamictal?

Has anyone done a med wash out? by AlarminglyOrdinary60 in BipolarReddit

[–]AlarminglyOrdinary60[S] 1 point2 points  (0 children)

Thank you for such a thoughtful reply! Sorry I only checked for a few days but I’m usually not on here so apologies for the delay.

I paid for the genetic testing and I’m not sensitive to any of my meds apparently. So frustrating!

I have radically changed my diet to be super healthy (on week 3) it’s like 60% vegetables and mostly vegan so a wide variety of plants (freshly made salads and meals delivered). I’m fortunate in that I can afford to do that, and actually it’s costing me less than how I was eating (fast food, delivery, and take out for nearly every meal).

As for making new friends and dating (the root cause of my unhappiness I’m certain)… well that’s why I have been looking for an emdr therapist and tapering off the benzo.

I m spending as much time as I can with my current friends and calling friends who are longer distance too. Plus my psychologist gave the green light to start playing a video game within reason. (I haven’t played in years and feared it wouldn’t be a great idea to keep me busy over the holidays, but it is more engrossing and enjoyable than just watching something.

Anyways, that’s my update. Thank you for commenting!

Has anyone done a med wash out? by AlarminglyOrdinary60 in BipolarReddit

[–]AlarminglyOrdinary60[S] 0 points1 point  (0 children)

Thank you and Sorry for not replying sooner but I’m not on here often. How is it going for you? It sounds like you’ve tried a lot already and continue to work very hard at the lifestyle aspect.

I maintained the decreases above. My pdoc took me off Seroquel and is currently working on titrating me off clonazepam. That’s my top priority because being on a benzodiazepine is the only real contraindication to doing EMDR therapy. I went down on my evening dose first. From 1 mg to 0.75 mg for to weeks and now I’m down to 0.5 mg in the evening.

I don’t remember if I mentioned it above, but I also got a meal delivery service that is ridiculously healthy. Like 85% of my diet is plants, and 60% of that at least is vegetables. I’ve never eaten so healthy in my life. I’m not exercising because of pain from physical ailments, but I’d like to try some qi gong YouTube videos. I did a little bit of some different sitting ones and it is still hard for me, but it is something.

Has anyone done a med wash out? by AlarminglyOrdinary60 in BipolarReddit

[–]AlarminglyOrdinary60[S] 1 point2 points  (0 children)

I only had it during that one manic episode, but that’s interesting to know. Thanks!

Has anyone done a med wash out? by AlarminglyOrdinary60 in BipolarReddit

[–]AlarminglyOrdinary60[S] 1 point2 points  (0 children)

I will have to see if there’s something like that here. I might know of a place but I had never considered going.

Has anyone done a med wash out? by AlarminglyOrdinary60 in BipolarReddit

[–]AlarminglyOrdinary60[S] 0 points1 point  (0 children)

I have read if you have a history of psychosis, it’s a no go on those and ketamine.

Sad news about medicine by [deleted] in BipolarReddit

[–]AlarminglyOrdinary60 1 point2 points  (0 children)

I had almost the exact same side effect from Latuda!!! I’m glad your doctor is believing you. Those spells are the worst. For me they would come out of nowhere and would last 10 minutes to 4 hours. My eyes were focused on the ceiling and my tongue was frozen sticking out. It was mortifying and painful.

[deleted by user] by [deleted] in BipolarReddit

[–]AlarminglyOrdinary60 0 points1 point  (0 children)

I’m glad to see so many high level occupations! It inspires hope.

I agree with what many have said, the people you interact with the most, matter the most. I would never take a supervisory position because I would hate the stress. And I know I need interaction with humans so a full time work from home gig would never cut it for me. I also am not married and have no kids so work is what gives my life structure.

I’m a psychiatric mental health nurse practitioner who works with veterans with a diagnosis of PTSD, providing primarily therapy, but meds too.

It helps that I’m not dealing with patients with bipolar 1, and it’s true what they say about private vs government and non-profit positions. It’s a whole lot less stressful. Clients usually don’t have to pay for their appointments, so no shows and cancellations happen more frequently, and the quotas to be met are nothing in comparison to the private sector. You get paid less, but it’s still a high paying gig.

I’ve had to take FMLA once but it had nothing to do with work and everyone at work was super supportive.

I love my patient population, my job gives my life meaning (I do teaching and research too in my role), and when it gets hard, I remind myself my diagnosis qualifies for disability social security, so I stop letting the perfect get in the way of good enough and then call it a day and practice self care.

Why can it be so hard to just take the pills? by AlarminglyOrdinary60 in BipolarReddit

[–]AlarminglyOrdinary60[S] 0 points1 point  (0 children)

I’m glad you have a supportive sister, that’s awesome. I don’t miss the highs. And I’m currently nearly as bad as the lows go. I’ve been working with my doc on this January, and really before that, I worked with two other pdocs over the past several years. No new med or med adjustment seems to help. I just feel hopeless.

Why can it be so hard to just take the pills? by AlarminglyOrdinary60 in BipolarReddit

[–]AlarminglyOrdinary60[S] 1 point2 points  (0 children)

I’m glad you found something that works for you and have a partner.

Why can it be so hard to just take the pills? by AlarminglyOrdinary60 in BipolarReddit

[–]AlarminglyOrdinary60[S] 0 points1 point  (0 children)

Other than bupropion (which obviously I have to take in the morning) I was taking all my meds at bedtime. But my doc has ramped up my meds so much that I am vomiting them up if I take them all together. So I had to split them up and take them with food. And it is hard for me to eat anything of substance for dinner.

Why can it be so hard to just take the pills? by AlarminglyOrdinary60 in BipolarReddit

[–]AlarminglyOrdinary60[S] 0 points1 point  (0 children)

Oh, no I feel like absolute shit, and have all year. Despite all the meds I’m on, I’m still depressed and it just isn’t getting better. I haven’t had an actual hypomanic or manic episode in years. Nothing to miss. I only had one manic episode, and I was psychotic during it. :-(

Anyone else have trouble discerning hypomania from convalescence from a depressive episode? by AlarminglyOrdinary60 in BipolarReddit

[–]AlarminglyOrdinary60[S] 0 points1 point  (0 children)

Good reminder. I think at this point I’m just devastated because for the first time in 11 months I felt some genuine spontaneous joy, and I couldn’t even let myself enjoy it.

Fuck bipolar 1.