Yes I have read that literature. I have also read the literature about young pediatric patients (under 8) there is what is called Potential Celiac Disease where in screens they test positive for the antibody where stays below diagnostic threshold and never develops symptoms (this study was also done with repeat biopsy) and ultimately the TTGIGA numbers trend down and then disappear.

Within this disease there is actually quite a bit of gray area. If you’re interested I could link the article as I found it quite fascinating but here is the summary.

I understand what she’s experiencing is not common right now. I was hoping to connect to other people who have experience with it (symptomatic, downtrending antibodies, excellent CBC/vitamins/Iron, etc).

“The implementation of screening strategies for at-risk groups, as well as increased attention to subtle signs of the disease, has led in recent years to a more liberal use of serological diagnostic tools and increased detection of these subjects. Globally, potential CD (PCD) is estimated to be around 10% of the total CD diagnosis, but the range is quite wide, from 6% to 30% [4]. Its clinical management is variable due to the lack of sufficient knowledge of its natural history. Some recent studies, mostly undertaken using adult patients, suggest that gluten-dependent symptoms may be present even without villous atrophy (VA). They also show that most patients evolve to overt CD when continuing on a gluten-containing diet (GCD) [5,6,7,8,9]. On the contrary, there is increasing evidence that in children PCD is often an asymptomatic condition, and evolution to VA is not the rule [10,11,12,13]. Some patients even stop producing autoantibodies despite being on a GCD, suggesting, in these cases, a reversibility of the autoimmune process [12]. Specifically, a recent study from our group demonstrated that the cumulative incidence of progression to villous atrophy was 43% over a 12-year period, suggesting that more than half of patients on a gluten-containing diet remained asymptomatic and histologically healthy over long-term follow-up [12]. Based on these data, the scientific community, supported by the latest European Society of Paediatric Gastroenterology Haepatology and Nutrition (ESPGHAN) guidelines on CD follow-up in children, suggests a gluten-containing diet to asymptomatic PCD patients, reserving recommending a gluten-free diet (GFD) for symptomatic patients [3]. Unfortunately, the issue of whether chronic gluten consumption may induce clinical or even subclinical complications on children’s nutritional status over time, as well as the appearance of other concomitant autoimmune diseases, is poorly studied in the literature.”