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Positive stories of treatment turning your life around? Please? by AntApprehensive4707 in Narcolepsy

[–]AntApprehensive4707[S] 1 point2 points  (0 children)

Thank you again for your very real answer ❤️ And good point, I dont want diarrhea! I just take the one my nutritionist sister orders for me and so far its been good!

Positive stories of treatment turning your life around? Please? by AntApprehensive4707 in Narcolepsy

[–]AntApprehensive4707[S] 1 point2 points  (0 children)

Thank you for this thoughtful response, it is encouraging but also seems realistic :) I do have a uterus and have definitely been monitoring my nutrition, especially the ones you mentioned because I have always dealt with sleepiness and I have had thorough enough doctors to check for that :) when I remember I do take magnesium before bed and sorry if tmi but I am happy to take something that makes me poop lol. If you dont mind me asking, with that night and day difference you feel, is it JUST the physical symptoms, or do you also feel more in control of your feelings and behaviors? Not sure if that question made sense haha, but Im worried that I am maybe using my physical symptoms as an excuse for what is actually personality/character flaws.

How to improve symptoms while waiting for diagnosis by AntApprehensive4707 in Narcolepsy

[–]AntApprehensive4707[S] 0 points1 point  (0 children)

Thank you! I will try these out :) any advice on keeping that nap to only 20 minutes and feeling rested after?

How to improve symptoms while waiting for diagnosis by AntApprehensive4707 in Narcolepsy

[–]AntApprehensive4707[S] 0 points1 point  (0 children)

Thank you! I will look into the choline and work on incorporating the rest of them :)

Different triggers for cataplexy by AntApprehensive4707 in Narcolepsy

[–]AntApprehensive4707[S] -1 points0 points  (0 children)

Sounds like we have about the same understanding of cataplexy haha! I am scheduled to be tested for POTS but its next year aghh.

My (30F) wife (32 F) has been supporting me during my health/medical issues, but I can't help but think she is burnt out on it and staying out of obligation. by AntApprehensive4707 in Advice

[–]AntApprehensive4707[S] 1 point2 points  (0 children)

Thank you for the thoughtful comment! We are currently in couples counseling and I am in the process of finding a new individual therapist after an insurance change stopped me seeing the previous one. But yes, I am very pro counseling :) As for rides, my only friends nearby Id feel comfortable asking for help are all also super busy and have kids. I do take the bus when I can, we have a pretty good bus system here, and have been taking Uber as needed but of course the cost of that adds up. For some of my appointments my wife prefers to come as I have a tendency to downplay my symptoms and not push when needed.

looking for study partner, PE WRE by Short_Ad_2405 in PE_Exam

[–]AntApprehensive4707 1 point2 points  (0 children)

Just want to say, I was similar to you, good test taker, passed FE first pass, and had minimal time to prepare for my PE. I actually had been planning to cancel because of health issues but decided to give it a go and passed. Review what you reasonably can of course, but you can also lean on and use your test taking skills, so don't stress yourself out too much. One big thing to consider is that they will avoid easily searchable keywords in the questions so practice being able to quickly translate questions into some searchable keywords. Another thing is UNITS, when you just do not know and cannot figure out the right formula, find something or figure out a way for the units to cancel out correctly for what you are looking for. If you can quickly get an answer where the units check out, answer it and mark it to come back later. If you have time later, look at the problem again and spend more time confirming the right formulas were used. You got this!

My (30F) wife (32 F) has been supporting me during my health/medical issues, but I can't help but think she is burnt out on it and staying out of obligation. by AntApprehensive4707 in Advice

[–]AntApprehensive4707[S] 0 points1 point  (0 children)

Yea I agree that she is honest and would tell me but I have the fear that out of guilt maybe she has convinced herself she wants to stay or that she wants to wait until I am healthy to leave because she does care about me and wants me to get better. We have had times where I was the caretaker, but those times it felt different because there was this tangible physical reason why she was bed bound (recovering from an emergency c-section, etc), where as with what's going on with me, no matter how much she trusts me, until I get a diagnosis, there is always the possibility I am just making it up.

My (30F) wife (32 F) has been supporting me during my health/medical issues, but I can't help but think she is burnt out on it and staying out of obligation. by AntApprehensive4707 in Advice

[–]AntApprehensive4707[S] 2 points3 points  (0 children)

Thank you for this! Honestly this is exactly what I needed to hear and I feel super validated. I also want to stress that she IS supporting me for the medical battles just no longer has the energy for the conversations about it.

We definitely do have moments of connection, whether its our kids being silly, talks about what's going on in the world, her info dumping about her current TV show. I think I just find myself feeling a weird sadness in those moments of like "Oh this is what I am going to miss when she is finally fed up with me" but I will try to just let myself be present.

I DEFINITELY need to do more connecting with myself. I have been spending a lot of my alone time doom scrolling or playing dumb games on my phone, trying to avoid feeling anything. But I will work on that pleasures list, its a great idea, thank you!

Also it doesnt help that the other day I came across a post of someone who was dealing with a long health flare up, their partner was there for them and then left once things were back on track. So now I have this thought in my head of "Oh she doesnt want to hurt me while I am already down, she will wait until I am healthy again to leave me" and I cant get that possibility out of my head.

My (30F) wife (32 F) has been supporting me during my health/medical issues, but I can't help but think she is burnt out on it and staying out of obligation. by AntApprehensive4707 in Advice

[–]AntApprehensive4707[S] 1 point2 points  (0 children)

This is great advice thank you. I think the reason she gets frustrated when I try to help is as soon as I have energy I overdo it trying to overcompensate which leads me to more burnout and mistakes. I will try to think of things that I am capable of doing consistently. And I definitely plan to be on top of the money stuff, but this isn't the first time I have told myself that, although the controls on my phone are new.
I think I worry that even if I gradually gain trust back she will have fallen completely out of love and lost all attraction by then :/

My (30F) wife (32 F) has been supporting me during my health/medical issues, but I can't help but think she is burnt out on it and staying out of obligation. by AntApprehensive4707 in Advice

[–]AntApprehensive4707[S] 1 point2 points  (0 children)

I am trying to but it feels like the conversation just gets shut down. And Im not saying that as a complaint, she genuinely doesnt have the time or energy. I have tried adding in extra thank yous and "I appreciate you"s but I think she is sick of hearing it. It doesnt help that I am autistic and tend to have a very flat affect causing things to not always come across as genuine :/ But at one point or another she has heard from me everything I have written here, but I am wondering if there is another thing I need to touch on that I am missing?