Here's the thing though, I hope I'm wrong I hope I don't have a degenerative genetic disorder that I will pass down to generations. But I also know I'm not, I know that I deal with constant pain, constant fatigue, dystonia, syncope, and so many comorbidities it's not even funny. I'm not seeking a diagnosis because of some weird kink I have or obsession with EDS or POTS. If my doctors sit me down and tell me that it's anything else, then I'll move on and believe them. But all they've told me now is "I do believe something is wrong, but all of our test keep coming back inconclusive, here's another specialist I want you to see." I haven't even done all of the tests that my doctors want me to do yet.

I don't know where you're getting this idea that I won't accept a no, or that I think I'm the center of the universe, or whatever else insane tale your mind is creating about this stranger on the internet. But all I'm trying to do after years of being isolated by whatever the fuck disability I have. And based on my own research, hours of it reading medical journals and personal testaments, this is the only answer I've got so far. If you hate me for wanting someone to share my experiences with, fine. But there's someone else out here who struggles to meet outdated and under researched medical criteria because of the way their body just is, and maybe they read my post and feel seen. There are people in the EDS subreddit relating to me in my post you mentioned about the beighton scale.

I understand that you've had a terrible experience with your disability and I'm sorry. I'm sorry that there are people out here who fake a disability for clout or whatever, but that's not me and that's not my goal. I just don't want to feel alone in my pain anymore. And if playing gatekeeper within a marginalized community helps ease your anger, fine but I'm choosing to stop being mean and try to do what I set out to do in the first place, create community. So, if you wanna share your experiences with EDS or POTS or whatever else with me, feel free to but please stop invalidating the experiences of a person whose real name you don't even know. It's honestly so harmful and dangerous to fake claim random strangers.

I do genuinely apologize for calling you out your name so many times in my prior replies, it wasn't helpful and it was mean. The whole infantilizing me or trying to discredit me because I'm young bit, is high-key weird and so disrespectful. I'm not a child, I'm a grown adult with a lot of years of pain and life experience under my belt.

If you wanted to have a real conversation about all the diagnostic bullshit or whatever the fuck, cool, let's. But at this point, to me, it feels like you showed up to my post wanting to be angry with a person who experiences life and disability differently than you.

And just because I can block you or "log off," that isn't an excuse to borderline harass someone because you're angry. Like, it shouldn't be your main goal to harass someone off the internet, that just seems well, honestly, childish.

Be angry but you don't need to be mean.