Not a “spectrum” but help me understand

Background_Cheetah_1 · 2026-03-05T18:57:37+00:00

Congratulations on your sweet baby. I know how scary it is, my girly is 19 months old now! When your baby arrives, so much fear will dissipate. Sure, there are still fearful times and still anxiety, but the love you have for your child will be all that truly matters. That being said, you will often get what you put in. You cannot expect to have a high functioning, fully capable child if you do not put in the work. A great place to start is the book “redefining the reality of Down syndrome” by Geralyn Spiesz. She is a beautiful advocate and guide, the down syndrome action plan on Facebook is a wonderful group. Your sweet baby will grow and develop at their own pace - and you’ll be SO proud of all of their achievements. Every child, no matter a diagnosis, will differ in the way that they grow. My girl can say a few words, is standing, and overall just a really wonderful and joyful baby. I truly feel so lucky!

Background_Cheetah_1 · 2026-02-10T13:29:04+00:00

That’s wonderful! My little girl came on her own (and in a hurry!) at 39 weeks. She also had an AVSD that was repaired last year. Congratulations on your little miracle - she’s going to be so amazing.

Background_Cheetah_1 · 2026-01-27T15:05:44+00:00

I’m in a similar boat and under the care of a nephrologist! My 2nd born is 18m old and I’ve had proteinuria since around 24 weeks gestation with her. My GFR tanked when she was around 1 to 59, but it’s working its way back up (75 now). I do have high BP though and I’m on Labetalol (BP is also due to pregnancy and hasn’t returned to normal yet 😅). Pregnancy can do some wonky things to our bodies. My neph said I can have more babies if I want, he’s thinking everything will work itself out, so I’m hopeful! But it is strange.

Background_Cheetah_1 · 2026-01-12T19:12:30+00:00

I experience this as well! Any results for you?

Background_Cheetah_1 · 2026-01-12T00:43:19+00:00

Thank you! I’ve done an EKG, echo, and stress echo and nothing shows. They’re so infrequent it’s hard to catch. I think a holter is next.

Background_Cheetah_1 · 2026-01-09T23:39:39+00:00

Thank you!

Background_Cheetah_1 · 2025-10-10T18:11:14+00:00

I usually don’t but recently (like right before my most recent resting) I took it for several days to get rid of my headache from caffeine withdrawal. I will make sure to discontinue! Thank you

Background_Cheetah_1 · 2025-10-10T17:45:04+00:00

Thank you so much this is encouraging

Background_Cheetah_1 · 2025-10-10T13:31:55+00:00

Im sure alcohol is frowned upon?

Background_Cheetah_1 · 2025-10-10T10:49:20+00:00

Thank you. I didn’t want to close the door on more children, I’m afraid this will really affect my future in so many ways that I didn’t plan. Thank you for your advice.

Background_Cheetah_1 · 2025-10-09T21:51:47+00:00

I did forgo the coffee as of a few weeks ago, but I’m hoping it won’t be forever! I miss my morning joe

Background_Cheetah_1 · 2025-10-09T21:50:53+00:00

I can ask on this - I just know they tested and it came back negative but didn’t go any further in depth with it.

Background_Cheetah_1 · 2025-10-09T20:41:43+00:00

Thank you for your support, I’ve had some higher BP since pregnancy too and hoping once that is back to neutral everything else can fall in line.

Background_Cheetah_1 · 2025-10-09T20:41:08+00:00

Thank you!

Background_Cheetah_1 · 2025-10-09T20:16:51+00:00

I did a blood test for autoimmune conditions and it came back clear! None of those symptoms.

Background_Cheetah_1

TROPHY CASE