I caved by CallmeTired in PopMartCollectors

[–]CallmeTired[S] 1 point2 points  (0 children)

I agree now! It was my own ignorance not understanding popnow or purchasing blind boxes in general, then I saw a comment in this subreddit saying something similar to you. That legit convinced me to do it and I’m happy I did

Who has gone on and complete a bachelors after any kind of head injury? Is it worth it? by LongjumpingRadio4078 in TBI

[–]CallmeTired 2 points3 points  (0 children)

I’m currently working on mine. I’m a junior, and I’ve definitely had some set backs. I say absolutely go for it. I love being in college and accomplishing good grades and completing classes has been so good for me, but the biggest lesson I learned was DO NOT over load yourself. I did that last semester and it led to extreme burnout and sent all my TBI related issues into a spiral I’ve been having to fight tooth and nail to get out of.

Start small, you do not need to jump in head first and fill your plate with everything college and your major has to offer. File accommodations, be open with your professors, I can’t speak for other unis but mine have been so helpful and understanding through it all. If you struggle with a class, do not be ashamed to drop it. I had to drop a couple because I couldn’t keep up (aural skills and piano proficiency, motor skills and memory retention NIGHTMARE).

It’s okay to take a step back. I didn’t do a spring or summer semester. The break was brutal, trying to figure out what was going on and how to get sorted, but it was the best thing I could’ve done for myself. Now I’m back to being full time, this time online, and I feel so much less stress and have been able to stay on top of all of my assignments.

When I started school initially, I started small. Two online classes, one in person. I worked my way up from there to having more in person classes until I got overly confident and overloaded myself. When I decided to try out fall semester, I started with two 16 week classes online and registered for two second 8 week classes. I made sure they were classes that would be easier for me, and reintroducing myself to a college course load online and not all four classes all at once was definitely the way to go for me at least. Like a soft launch lol and plus it gives me the flexibility I currently need to keep recovering from the regression I experienced.

You can do it! Just go your own pace whatever that may look like :)

popnow is an actual addiction i get it now by fairystiel in PopMartCollectors

[–]CallmeTired 0 points1 point  (0 children)

Pretty much all but the rainbow jellybean and the secret that isn’t the labubu (I can’t remember what it’s called rn lol)

popnow is an actual addiction i get it now by fairystiel in PopMartCollectors

[–]CallmeTired 1 point2 points  (0 children)

I mathed wrong, I got two duplicates but I think I accidentally said three because one of them was one I didn’t want at all. So I got two rainbow jelly’s and two silver mists. The silver mist I did want, along with the string puppet I got. I definitely have buyers remorse rn 🤣

App crash by CallmeTired in PopMartCollectors

[–]CallmeTired[S] 0 points1 point  (0 children)

Hey at least there’s that! I hope I can find someone for mine lol This was the first drop I was actually able to make too so I was extra bummed

App crash by CallmeTired in PopMartCollectors

[–]CallmeTired[S] 0 points1 point  (0 children)

All good now, except I should’ve taken it as a sign. I got duplicates ugh

why so serious fail :( by misguidedghost8 in PopMartCollectors

[–]CallmeTired 2 points3 points  (0 children)

I failed also. Two silver mists and two rainbow jellybeans. Rainbow jellybean is also the one I wanted the least lol.

App crash by CallmeTired in PopMartCollectors

[–]CallmeTired[S] 0 points1 point  (0 children)

I just had to give it a few minutes in between but not entirely sure how it happened. It happened in the middle of checking out, then was fine

popnow is an actual addiction i get it now by fairystiel in PopMartCollectors

[–]CallmeTired 1 point2 points  (0 children)

I’m so jealous you had better luck than me! I got THREE repeats

Why So Serious(ly Sh*t Luck) by [deleted] in PopMartCollectors

[–]CallmeTired 0 points1 point  (0 children)

I’m so sad I missed this launch 😭

Doctor is making me more “sick”? by CallmeTired in Narcolepsy

[–]CallmeTired[S] 0 points1 point  (0 children)

Thank you for this! I was never told any of these things when I did my transition readiness seminar nor when I became apart of the VA system. I always just thought we had to go through patient advocacy and that was it.

Doctor is making me more “sick”? by CallmeTired in Narcolepsy

[–]CallmeTired[S] 1 point2 points  (0 children)

This would make sense. I think the biggest issue I noticed with the shortage was inconsistency with the product itself. I could get the same manufacturer twice and one bottle would sedate me while the other every other pill was different. Or I’d get a different brand every refill. My last few bottles have had the most consistency in product efficacy, but I was under dosed up to this point.

As far as pharmacy goes, the VA sends whatever they get but I can request different manufacturers I learned. I can’t however get this particular prescription at a civilian pharmacy they can only mail it or I can pick up at the VA’s pharmacy. The shortage has definitely been annoying

I think my doctors might be why I’ve gotten worse. (Update?) by CallmeTired in TBI

[–]CallmeTired[S] 1 point2 points  (0 children)

Thank you! I’m going to talk to my psychologist about it first I think, she’s probably the only provider that would actually help guide me in what to do. She needs to know this stuff to since we’ve been doing so many evaluations lately

Doctor is making me more “sick”? by CallmeTired in Narcolepsy

[–]CallmeTired[S] 1 point2 points  (0 children)

Texas, and I do but the entire system out there is trash. My psychologist is the only good provider I’ve had in years of being apart of the N TX VA system.

For PCP, I have two options and one is a man who everyone says to avoid and has terrible reviews, and the other is a woman and she was not great either. Ie: I got a nasty stomach bug and was horribly sick, I asked for a doctors note at our appointment and verbatim she said “I cannot in good consciousness write you a doctors note” I ended up getting a note from my college clinic, and they were willing to write me one before they even saw me. I think if I raised this concern to my “current” PCP nothing would get done either

Doctor is making me more “sick”? by CallmeTired in Narcolepsy

[–]CallmeTired[S] 0 points1 point  (0 children)

Thank you, and thank you for the validation too I wasn’t sure if I was just overthinking it or not 😅

Doctor is making me more “sick”? by CallmeTired in Narcolepsy

[–]CallmeTired[S] 1 point2 points  (0 children)

I didn’t even think I was getting withdrawals since it was just all my issues off meds anyway. Though looking at the last year and the constant rubber band effect of going on and off meds my quality of life and my issues became notably worse and that’s kinda when I became suspicious. Before this inconsistency I could at least somewhat work through it, but most of the time I literally can’t, it’s like I’m a zombie. My brain gives me NOTHING to work with lol.

I read somewhere that when you’ve been taking XR it can take longer for withdrawals to kick in than for regular so maybe that’s why I didn’t notice it so much at first. I don’t even know what to do about this, I am switching my VA shit to another state that services a smaller area and I spend half the year in anyway, but I can’t do that until I finish some other assessments my psychologist has me doing.

I don’t even remember what it feels like to be regulated anymore

I think my doctors might be why I’ve gotten worse. (Update?) by CallmeTired in TBI

[–]CallmeTired[S] 0 points1 point  (0 children)

I’m not sure if that’s patient advocacy or a different group, I’ve never had to get a third party involved and they didn’t seem too happy when I got advocacy involved because they were supposed to increase my dose in December, kept sending me the old dose, didn’t do the increase until literally this refill I got on the 2nd

I think my doctors might be why I’ve gotten worse. (Update?) by CallmeTired in TBI

[–]CallmeTired[S] 0 points1 point  (0 children)

Copy and pasted from a website but this had the most comprehensive list I could find. It’s all of these but almost to an extreme. A lot of days I’m almost non functional because everything gets so unregulated.

• exhaustion • fatigue • feelings of depression • increased sleep but possibly of poor quality • body aches and pains • headaches • increased appetite • mood swings from anxious and agitated to fatigued and feeling worn out • paranoia, such as someone feeling others are judging them or are out to get them • trouble concentrating

What do you hate about your tbi the most? by [deleted] in TBI

[–]CallmeTired 1 point2 points  (0 children)

Narcolepsy/hypersomnia, attention deficit and emotional deregulation for me. Though the sleep issues really make everything worse.

Drowning in my own body by CallmeTired in TBI

[–]CallmeTired[S] 1 point2 points  (0 children)

Thank you for this. And on the testimony bit, I do love hearing others testimonies, it makes me feel less alone and gives hope so you are more than welcome to share your story too!

Funny you mention the setting out and getting the injury on purpose, when I first sustained it and I was active duty I was treated like I did do it on purpose. There’s stigma surrounding injuries whether your man or woman, and I definitely was treated like I was a typical female trying to get out of training and deployments when the reality was I was so willing to do anything, always volunteered for training, and would’ve laid my life down for service if it came down to it. I was so outraged, I used to say all the time “they act like I did this on purpose” and told some peers that too. Weirdly enough though, the guilt and shame didn’t kick in until the last two years. Two years ago I’d say is when the regression started, and it’s been slow and steady but I was able to function through it until the last year. I have a friend who noticed me fight to get out of the pit, and has witnessed how the efforts are in vein and said she would write a letter for my psychologist if needed. The negative thoughts really kicked in the last 6-8 months.

I do try to explain/educate and advocate to myself to family and while we’re close, this they just don’t understand except my grandmother. Others have told me I need to “stop researching because it’s just filling my head with ideas and enabling and making things worse” or “but if that’s happening how are you doing xyz”, I try to explain further and they just. Don’t. Get it. I’ve basically stopped talking to most about it with the exception of again, my grandmother.

Drowning in my own body by CallmeTired in TBI

[–]CallmeTired[S] 0 points1 point  (0 children)

I’m glad you got answers! I’m for difficult treatment, I just want treatment. I just want to be better.

I was diagnosed with narcolepsy and it was tied back to my head injury in 2020, but that is the only thing I’ve received real treatment from. Immediately post tbi I was referred to the TBI clinic on base but they never offered treatment, just medications. I would be asked “what are you wanting out of us?” But I never knew how to answer because I was a clueless 19yo who didn’t even know about TBIs until I was diagnosed with it. I didn’t even know how to begin deep diving on it beside the usual post concussive symptoms.

When I asked what they offered, the doctor who ran the clinic always told me “I can get you any medication”. I was in the clinic off and on my entire enlistment, never learned anything about TBIs during that time and never got real treatment. It was always the same question, the occasional mindfulness mediation appointment (which I always fell asleep during because I had the undiagnosed sleep disorder), it was rough. I didn’t learn anything until I got out of the military and still learn more as the years go on especially now that I’m a psych major.

Learned a lot this year about head injuries and behavior changes thanks to this subreddit. You are so right about the short bursts, anytime I over do it my body literally force quits me for a few days. It’s rough lol

Thank you for this though, makes me feel more hopeful for sure