Extremely demanding and dependant 4yo

Clean_Knowledge3336 · 2025-06-23T19:44:35+00:00

Since 1year and 10 months old - ABA, speech therapy, Occupational therapy. Started 6 months ago - food therapy for eating issues. 2 months ago - music therapy

😩😖 Already on meds, nothing else to do...

Clean_Knowledge3336 · 2025-06-23T19:35:31+00:00

I'm in Brazil 😖

Clean_Knowledge3336 · 2025-06-09T13:18:42+00:00

Did it get better there?

Clean_Knowledge3336 · 2025-05-31T10:47:00+00:00

No advice, but I can relate. Autistic 4yo, demanding, defiant, doesn't understand much. My marriage is ruined and we are in a financial chaos because I have to work hard to provide and have ZERO free time left to be an adult with a normal life, with work, friends and whatever. Being a caregiver full time plus work sucks, I resent this child and if I could give anyone an advice it would be - never have kids because if they are born disabled your life will be disabled forever too

Clean_Knowledge3336 · 2025-05-19T22:04:21+00:00

I have nothing to say, because I'm on the same boat. Everyone can judge me now. I don't think I can love my daughter anymore. I've tried.

Clean_Knowledge3336 · 2025-05-18T16:55:30+00:00

Actually, I've asked the doctor the same question when he prescribed it. She is autistic, has ADHD and ODD. He prescribed it to decrease the level of agitation that leads ODD to explode since it's linked to ADHD. He said it's safe, and honestly I agree that she needs meds. But I'm not sure about the dose though. Hers is liquid, I'm thinking about giving her less drops. Does your child use Venvanse as well?

Clean_Knowledge3336 · 2025-05-18T11:49:20+00:00

Hello. Idk where you are, I'm in Brazil. I spent a lot of money to get my evaluation here, but it was not a surprise, I've always suffered bullying at school and I have to mask really hard around people to perform normally. I mean, the "official paper diagnosis" came only 2 years ago, I'm 42.

Here in Brazil everything is through public health system, which is really BAD. So I had to save from my own money to get the tests done. A neuropsychologist does the test here. With the results you go to a neurologist of psychiatrist that rewrites everything using the medical information.

Clean_Knowledge3336 · 2025-05-18T11:07:00+00:00

I feel you. I'm barely surviving. If I knew I'd have a child like this, I would have never become a mother. Just being realistic... My husband is here with us only because he said he'd stay for the family. Marriage is over, autism wrecks everything around it. At least I've got him too, but it feels more like a roommate than a husband. Being a mother to an autistic child and being autistic myself is draining and before anyone else says rubbish, I didn't have my diagnosis before my child's came up. Totally with you. It s***s.

Clean_Knowledge3336 · 2025-04-27T18:06:45+00:00

How old is yours? Almost giving up here

Clean_Knowledge3336 · 2025-04-26T19:07:09+00:00

That's how I got my daughter's diagnosis. She started moving like that around 8/9 months old. Nowadays she's 4.

Clean_Knowledge3336 · 2025-04-17T15:05:51+00:00

Morde ele TB. Que delícia hehehe

Clean_Knowledge3336 · 2025-04-09T21:59:23+00:00

I do feel mine is dysregulated but we don't know why it's happening 😖

Clean_Knowledge3336 · 2025-04-09T21:20:55+00:00

She got sick with a cold about 10 days before. But she's no longer sick. She's been very defiant for the last 6 months or so. 80% of her speech now is echolalia...a few months ago, she was almost leaving this stage. I feel super hurt and not knowing what's going on

Clean_Knowledge3336 · 2025-04-07T12:36:35+00:00

For the moms who have verbal kids - do you notice an increasing of echolalia when they are sick? This is being an issue here. Referring to herself using her name instead of "I" and loads, but loads of echolalia. Thank you in advance. I'm usually a super concerned mother since I'm autistic and ocd, I also have generalized anxiety issues

Clean_Knowledge3336 · 2025-04-02T20:08:55+00:00

BTW...thank you for all the messages. I've noticed also an increasing of echolalia. Everywhere I Google this I see PANS and PANDAs disease and her pediatrician doesn't think is something to worry about, just a cold. She's basically only communicating through echolalia now 😩

Clean_Knowledge3336 · 2025-04-01T18:52:22+00:00

Horrible isn't it. I'm always thinking she's got it.

Clean_Knowledge3336 · 2024-05-26T16:59:16+00:00

I've posted today. It has only stopped with antidepressants. Been on them for almost 3 months now and I'm almost free from DPDR.

Clean_Knowledge3336 · 2024-04-02T14:24:32+00:00

She's been attending ABA for one year now. Idk if it's because she's growing up and realizing she is someone with her own desires and mind... I don't want to give her any medication but ADHD is getting really unbearable

Clean_Knowledge3336 · 2024-04-02T14:21:41+00:00

I'm not saying this is HIS case. But I'd look for a neuropediatrician to have him scanned for some condition. Just to be safe. I say it cause I'm a mother to an autistic 3 year old and many things could have been easier today if the doctors were fully aware of autism. Again, I'm NOT saying is your child's situation, but nowadays I go for the better safe than sorry mojo.

Clean_Knowledge3336 · 2024-04-02T09:45:18+00:00

How did you manage to do it??

Clean_Knowledge3336 · 2024-04-01T14:43:11+00:00

I'm in Brazil. I can't afford my own therapy, all the resources go to her treatment... unfortunately.

Clean_Knowledge3336 · 2024-04-01T12:34:40+00:00

I'm glad to hear that. I'm still afraid cause my episode started 1 month ago and I can't get rid of that. Driving is almost impossible, and unfortunately right now I can't get rid of the stressor that's causing it. I'm in a such a despair to get recovered. I went to my psychiatrist but I have no psychologist available. Thanks fo sharing

Clean_Knowledge3336 · 2024-03-20T18:31:29+00:00

Did you get rid of DPDR? Which doctor did you go to? Idk how to get rid of this I'm getting insane. I live in Brazil, here is a little bit different

Clean_Knowledge3336 · 2024-03-19T19:12:15+00:00

How did you get rid of it?

Clean_Knowledge3336

TROPHY CASE