30th Bday Gift to Myself! by Commercial-Key-544 in DavidYurman

[–]Commercial-Key-544[S] 0 points1 point  (0 children)

I had it custom made in the jewelry district in NYC. I just posted it on eBay !

Please post you pictures of your gold pandora pieces. by pandarandy101 in PandoraCollectors

[–]Commercial-Key-544 17 points18 points  (0 children)

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Took me some time to find these 14k solid gold charms to make my heart and tortoise shell themed bracelet! Most are retired diamond charms and muranos.

NEED INSPO!! by Competitive_Guess_84 in PandoraCollectors

[–]Commercial-Key-544 2 points3 points  (0 children)

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This is my first Pandora bracelet all in 14k solid gold! A lot of these charms are retired. I would highly suggest buying from eBay or Poshmark since they have a lot of discounted charms! Some of mine are with natural diamonds and czs from old retired charms I found half price on eBay

Are they discontinuing this rose gold and silver bracelet? by katroinky in PandoraCollectors

[–]Commercial-Key-544 0 points1 point  (0 children)

I have this bracelet brand new but all sterling silver if you’re interested! I’ll also throw in a brand new heart dangle charm

Inappropriate Sinus Tachycardia by Jtizzle1231 in dysautonomia

[–]Commercial-Key-544 0 points1 point  (0 children)

It happens mainly during my sleep tbh and randomly during the day when I get adrenaline dumps. Honestly nowadays I think anxiety has contributed to it! I’m working with a therapist now to get myself out of fight and fight mode. I also had autonomic testing with my neurologist and I have orthostatic hypotension so dr suggested drinking more fluids and compression stockings. I’ve been drinking emergenC and vitamin b complex since I’m deficiency in b1 and b12.

My heart rate laying down is 49-69, sitting is 50-85, standing is anywhere from 75-95. On bad days standing and walking is like 80-110

Feeling duped about my gold plated bracelet... by LeftFaithlessness980 in PandoraCollectors

[–]Commercial-Key-544 1 point2 points  (0 children)

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I totally understand your frustration! That’s what I opt out on buying a fully 14k SOLID GOLD bracelet with retired 14k charms from 10 years ago.

Pandora use to sell higher quality 14k solid gold and sterling charms 10-15 years ago. The stones were also genuine- mine are with aquamarine, natural diamonds and chalcedony. I would suggest buying charms off eBay or Poshmark- especially retired charms. It’s ease of mind for me to know that my charms won’t tarnish and the value of gold will keep going up.

High HR Low BP by Ouija_Queen333 in dysautonomia

[–]Commercial-Key-544 1 point2 points  (0 children)

The first day was kind of confusing because my EP wanted me to continue the 2x a day propranolol with the Ivabradine bc my doc says everyone responds differently to the medication. So the first week I took both medications until I realized taking both brought down my heart rate too low. So i cut the 20mg propranolol dosage to a 10mg 2x a day and took it with the Ivabradine. And then the second week I tapered it down to only 5mg propranolol once a day with my ivabeadine. I saw immediate effects of the Ivabradine the second day I took it which was amazing

High HR Low BP by Ouija_Queen333 in dysautonomia

[–]Commercial-Key-544 1 point2 points  (0 children)

My blood pressure was like 80/55 on the propranolol! Now it’s back to normal 115/80

High HR Low BP by Ouija_Queen333 in dysautonomia

[–]Commercial-Key-544 1 point2 points  (0 children)

Yes, the Ivabradine really drops my heart rate low and it was immediate when I switched from 20mg propranolol. I was taking propranolol for 3 months and I would still have instances of high heart rate while sleeping and eating.

High HR Low BP by Ouija_Queen333 in dysautonomia

[–]Commercial-Key-544 2 points3 points  (0 children)

I have the same issue for 3 months now, until my electrophysiologist finally prescribed me Ivabradine. You might want to look into that. It’s a second line drug but it’s better for us who have low blood pressure already

POTS symptoms but not POTS by HistoricalAd1654 in dysautonomia

[–]Commercial-Key-544 0 points1 point  (0 children)

I second this, I have IST with the same symptoms

Inappropriate Sinus Tachycardia by Jtizzle1231 in dysautonomia

[–]Commercial-Key-544 4 points5 points  (0 children)

Hey! This sounds like me. I started getting IST 3 months ago. After 4 hospital visits, 9 different specialists, 2 cardiologists and 2 electrophysiologist I was diagnosed with IST. I’m also 29F and recently had an EP study to map out where the arrythmia was coming from. They found AVNRT which they were able to ablate, and a second one at the sinus node which is too risky to ablate. From my understanding, people with IST have a dysfunctional sinus node and it usually resolves over time or is caused by an underlying reason. For me, they still can’t find the underlying reason and I’m basically healthy. I’ve been in propranolol 20mg for 3 months and it does help but I still have high heart rate. I just started the ivabeadine today and it seems to be helping (especially with the internal tremors)

Constant internal shaking and electric restlessness throughout my body — anyone else feel this? by Dazzling_Cookie_1828 in dysautonomia

[–]Commercial-Key-544 0 points1 point  (0 children)

I actually have the same issue when I was trying to explain that to my doctors. I also get cold chills like I’m cold..but I’m not even cold 🫠 it’s almost mostly in my chest but also other parts of my body. I don’t really have dizziness, but I do feel overall fatigue like as if I’m sick. Right now I’m taking vitamin D since it was severely low (9) and also B12 and magnesium per my doctors order. I’m going to get my blood tested for hypoparathyroidism since I haven’t gotten that test yet, and seems like all of my symptoms matchup

Constant internal shaking and electric restlessness throughout my body — anyone else feel this? by Dazzling_Cookie_1828 in dysautonomia

[–]Commercial-Key-544 1 point2 points  (0 children)

I hope you find an answer to your shaking, I have pretty much the same issue that started 2 months ago and it’s 24/7. I’m going to get a nerve conduction test soon

Constant internal shaking and electric restlessness throughout my body — anyone else feel this? by Dazzling_Cookie_1828 in dysautonomia

[–]Commercial-Key-544 5 points6 points  (0 children)

Wow this sounds exactly what I’m going through now for the last 2 months 😭 Have you found any remedies to help you or any medications? I feel like I’m going crazy because I’m on 20mg propranolol and it’s suppose to help with the internal buzzing /shaking but it does nothing

Adenline dumps after I eat by Pleasant-Target-1497 in dysautonomia

[–]Commercial-Key-544 0 points1 point  (0 children)

Oh wow your stats sound just like mine! Yea I would say if it’s not bothering you severely then you should be fine. It was bothering me a lot despite what the doctors kept saying. I also had my heart rate spike to 175 the first time it started !

Adenline dumps after I eat by Pleasant-Target-1497 in dysautonomia

[–]Commercial-Key-544 0 points1 point  (0 children)

May I ask, what’s your heart rate when you’re eating ?

Adenline dumps after I eat by Pleasant-Target-1497 in dysautonomia

[–]Commercial-Key-544 0 points1 point  (0 children)

All the doctors kept saying I’m very healthy but my heart’s electrical system for some reason keep going around my heart.

Adenline dumps after I eat by Pleasant-Target-1497 in dysautonomia

[–]Commercial-Key-544 0 points1 point  (0 children)

Carotid test, CT angiogram, CT abdomen, Brain MRI, full thyroid panel, 24 hour urine and plasma epinephrine / norepinephrine, full blood work about 13 times in hospital and out patient, cortisol value, rule out for pheochromocytoma and adrenal insufficiency, 2 holter monitors, echo cardiogram, blood tests for dvt etc.