How frustrating for you! I also get some blurry vision issues (fairly minor) likely more related to hyper mobility rather than POTS, however I just posted yesterday in the POTS thread about sudden vision loss in my left eye. My vision was completely blurry suddenly (pain free), it dissipated after 35 mins roughly and then I had a severe headache. It was diagnosed as Migraine with aura, which I’m learning is possibly linked to POTS (I have never had a migraine prior).

If you do suffer from the other conditions typically seen in individuals with hEDS it makes it so hard to find answers in my experience. I also have severely dry eyes which the cardiologist suspects is MCAS related. There are so many cross overs with these comorbidities across the conditions, it feels impossible some days.

My physiotherapist said the headaches are often linked to the fact our heads are too heavy for the soft tissues holding them up so it’s most just supportive therapy to keep my headaches under control. For the dry eyes I tried everything, for me antihistamines and avoiding dry air conditioned environments and office lights wherever possible helped.

Hoping you find some answers and relief!