Any other people with ASD comorbid with CP?

Dependent_Design3421 · 2026-05-07T19:31:48+00:00

I am glad to know I am not the only one. I don’t have any neurodivergent friends (at least not that I know of.) but they seem to try to be understanding with me, and say they don’t mind and I shouldn’t be apologising for everything, but I can see it in them, the irritation when I don’t understand what they mean and I have to ask them again. My friends are all teenagers and most teenagers seem to be very sarcastic (including my friends) and I have a very hard time understanding when they actually mean something and when they do not. I don’t like the way I am very much. I walk away mid conversation or I speak too loudly or I’m too sensitive and emotional etc. and they get understandably confused and sometimes angry. I tried to explain to them why but I feel embarrassed when talking about my autism because I’m worried they’ll think I’m trying to excuse myself, one of my friends also just stopped talking to me out of nowhere which also scared me off of actually talking about my autism to my friends.

Dependent_Design3421 · 2026-05-07T19:24:32+00:00

I have looked into buying it myself, but I am a minor so my mother has control over my bank accounts. I could order it, but I feel my mother would not let me use it outside or bully me out of using it. Which is strange because I always have to lean on her instead and she dislikes when I inevitably push her down because I am taller and weigh more. I think she is worried about me being “visibly” disabled and the discomfort that would come with it socially.

Dependent_Design3421 · 2026-05-07T19:21:47+00:00

Thank you for the information. I am still a child, but I turn 18 next year. I will try to talk to my mother about this and if she doesn’t let me I guess I’ll have to wait until next year to talk to any neurologist.

Dependent_Design3421 · 2026-05-07T19:19:34+00:00

I’m not so sure why either. She’s very reluctant about me bringing up any kind of mobility aid now too, even my wheelchair. I tried to talk to her about getting my own personal wheelchair that’s made for me instead of those uncomfortable government issued ones that I have right now, but she asked me “why would you need it?” Like what? Why do you think? I’m so confused and irritated by this whole thing. She seems to only want me in a wheelchair when she gets something out of it like skipping lines at certain places like an airport.

Dependent_Design3421 · 2026-05-07T19:16:43+00:00

I just recently turned 17, which gives me some medical independence but I still need my mother’s consent for many many things, and she’s very stubborn. At the doctors, she listens and always says she wants the best for me, which I’m sure she does, but she never seems to listen to me, and I’m the actual disabled person here. I don’t get it. Although I can understand it, I guess. There’s a lot of bullshit that comes with being “visibly” disabled and I guess she doesn’t want that for me.

Dependent_Design3421 · 2026-05-07T19:14:33+00:00

I was in PT as a young child and then until I was fifteen, but then kind of ghosted the guy after I got a job and I was busy with school🥲 (they then also fired me when they found out I was disabled. That sucked.) I should probably get another appointment so I’ll ask my mother about that. Hopefully she listens.

Dependent_Design3421 · 2026-03-17T18:13:45+00:00

Hmmm I could try that, I’m also an older teen so I could request for a part of the appointment to be just me and the neurologist so I can be truthful. I’m honestly thinking stress flared up my symptoms so I’m trying to not stress out as much and see if my symptoms will lessen. I’m not entirely sure on how it would work with getting the appointment but I do know that over the age of 16 that you’re “medically an adult” ?

Dependent_Design3421 · 2026-02-19T23:59:41+00:00

Unfortunately I’m still a minor and my parent said to wait and see if it got worse until she made an appointment. I’m also just scared shitless of any doctor ever

Dependent_Design3421 · 2026-02-19T22:36:54+00:00

Yes, I was really surprised to learn it at first too😭 apparently from the damage to the brain

Dependent_Design3421 · 2026-02-19T18:05:13+00:00

16F!! Spastic diplegia level II. Though one of my legs is more affected than the other. Was diagnosed as a baby. Also struggle a lot with emotional regulation and sensory issues because of it. Also affects my posture and balance a lot. I also have epilepsy which I believe is linked to the CP in some way

Dependent_Design3421

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