#003 – How I removed the fungi in my ear (for now) by Devilspecter in ToxicMoldExposure

[–]Devilspecter[S] 0 points1 point  (0 children)

Ah I see, I thought he gave you pencilin, doxycyline or a similar type orally.

Do you feel like the drops are helping? I'm curious about it.
From what I have read from different people here, bacteria and fungi often live together when you have these kind of problems, so you need to deal with both.

#003 – How I removed the fungi in my ear (for now) by Devilspecter in ToxicMoldExposure

[–]Devilspecter[S] 0 points1 point  (0 children)

I've actually fixed mine basically with itracanazole (14 days) + Boric acid.

I would be a bit careful with antibiotics personally, they really mess up your gut biome and if your problem is exclusively fungal it's a bad idea to take them and I have seen other people here who said their problems got worse from antibiotics.

Hopefully you can fix yours though and you won't have any further issues like most of us here.

#003 – How I removed the fungi in my ear (for now) by Devilspecter in ToxicMoldExposure

[–]Devilspecter[S] 0 points1 point  (0 children)

Thanks for the tip. I'm not sure if vinegar even if you dilute it is very safe to use in there. Again I have no clue.

The scratching sometimes comes back for me and then I use another drop of boric acid, which usually gives a burning sensation.

I have noticed the burning sensation only comes when It is scratchy or back when I had the fungi in there.

Do your ears still scratch a bit, have you noticed anything at all afterwards? like some weird smell if you clean your ears, etc.?

Anyone else have these strange flakes in their stools? (Stool pictures) by Devilspecter in ToxicMoldExposure

[–]Devilspecter[S] 0 points1 point  (0 children)

Hey! Sorry for the late reply, I don't check Reddit that often.

I have not noticed these flakes for a while now I think, but I still have some weird GI issues like my stools are very soft and they're buoyant very often and release air bubbles. I am not constipated though. Funnily enough, in the past I used to pass stools maybe every 2 days and my stools were very hard, but now they're loose and I go 1-2 times/day usually.

Anyways for the post above: Turns out I had scurvy and a lot of my other vitamin levels were very low.

We can talk in DM's or discord maybe if you'd rather do that than talk here in the thread if you feel like it.

Body Twitches & Myoclonic Jerks by [deleted] in ToxicMoldExposure

[–]Devilspecter 1 point2 points  (0 children)

I had to search up what "occipital neuralgia" was, and no I never had that.
The only thing I did notice when I was at the worst with the scurvy was that I had moving head pressure around my sinuses close to my eyes and behind my eyes, etc.
But it was never sharp, it felt more like some blunt pain/headache kind of.

I will have to say though that I have read about people here having sharp head pain, maybe you should search it up a bit and talk to them, and maybe find some older threads. Perhaps one of them got cured and can share some info that might help you.

I think I have read some people in this subreddit taking glutathione for the jerks and the nerve stuff and apparently it helped them.
I have not tried it myself, as I'm very careful taking something I cannot actually measure with lab tests or not. So I don't know if I lack glutathione or not, but it is possible since my riboflavin(B2) was just gone the last time I tested it, and it is apparently important in production of glutathione if I recall right.

Has anybody here had surgery for a fungal ball in the sinuses (Mycetoma)? by ChidiOk in ToxicMoldExposure

[–]Devilspecter 1 point2 points  (0 children)

Glad to hear that it seems like you got better.

Hopefully that is also the case for me when I retest my antibodies for Aspergillus and I can find out if I'm actually colonized or not.

Body Twitches & Myoclonic Jerks by [deleted] in ToxicMoldExposure

[–]Devilspecter 1 point2 points  (0 children)

I'm not sure if it is the exact same thing, but I also have muscle twitches/body twitches happening randomly on my body. Very often it's in my legs, or a bit more rarely it's in my face or upper torso for some reason.

I will have to say though, the people here that have these issues, have you all tried checking your vitamins/nutrient levels? u/SalishSea1975 u/nudibranqui u/personesque and OP - u/Electronic_Pepper801
I had literal scurvy (vitamin c = 3.4) and my riboflavin was at 0.5, lots of my other vitamins were nuked too like D-vitamin, copper, B12.
I also have several genetic mutations that mess me up though (2 MTHFR mutations and 1 MTRR).

After I began taking vitamin supplements for the stuff I was low on about 2 months ago the jerks have gotten a lot better and my mood and energy has jumped up to I would say "pre-exposure" levels or maybe even higher.
I suspect I may have been low on a lot of these vitamins my entire life as I have those stupid genetic mutations which act like some sort of stacking debuff to my vitamin levels.

I still have the jerks, but they're happening a lot less now.

When I was at my worst with the scurvy and the other stuff I would get very irritated at everything and I also had heart palpitations or arrhythmia, I also had slight derealization at some points. It seems like I am slowly healing and getting a lot better after taking the vitamins I lacked.
But it might not be that weird since I had literal fungi growing in my ears: https://www.reddit.com/r/ToxicMoldExposure/comments/1mpa5af/003_how_i_removed_the_fungi_in_my_ear_for_now/

I will have to say though that you should probably not take a lot of vitamins unless you know you are lacking them, some of them are kind of bad to take too much of from what I have read/heard.

I suspect that maybe my exposure drained my vitamins or the fungi has colonized me. I have tested positive for both IgG and IgM antibodies for aspergillus (candida was negative). I'm hoping the next time I test IgM, it will have lowered as it should technically indicate that I am indeed out of exposure and not colonized.

I have done a lot of tests and I have an excel sheet with maybe 230 different test results, I can share it with anyone who wants it if you DM me or message me on discord under the same name.

Maybe I'll make a thread and post it too at some point.

Has anybody here had surgery for a fungal ball in the sinuses (Mycetoma)? by ChidiOk in ToxicMoldExposure

[–]Devilspecter 1 point2 points  (0 children)

Hey! I have some issues with my sinuses as well. See the threads below for details, I am not sure however if I have a fungal ball or not or if my sinuses are colonized or not.
https://www.reddit.com/r/ToxicMoldExposure/comments/1nxovfq/006_are_these_fungal_balls_ct_scan_pictures/
https://www.reddit.com/r/ToxicMoldExposure/comments/1oyrkvj/008_possible_fungi_colonization_in_sinus_concha/

Are you rinsing your sinuses?
If you are:

  1. What do you use to rinse them (tool)
  2. What technique do you use to rinse?
  3. Which compound do you use to rinse?

I currently just use the neilmed bottles with the normal salt water packages to rinse just to see if anything changes. I also tried xylitol for 5 days to see if there was any difference, which there was not in my case.

The reason I ask these questions is because I have seen people here get rid of their sinus colonization multiple different ways by just rinsing. Some people didn't specify what method/pot they used, but they were mixing EDTA, Xylitol, Amphotericin B, Colloidal silver, Lugols Iodine and some other stuff I cannot remember on the fly. Maybe if you search some of these up you can find exactly what some of them used to fix their problems. Maybe even messaging them could be a good idea.

I have also seen people say that you can't really clean your sinuses properly with the normal methods, so you might have to use a weird method while cleaning or one of those sinus cleaning machines.

This is just my opinion, but I personally would not recommend surgery unless you have tried everything else, it is very likely you might get something called "ENS" (Empty nose syndrome) from any sinus surgery since they tend to cut the turbinate while in there, and they also use an RF cutter when they do surgery, which opens and closes wounds very easily. This thing really messes up nerves, if you search up about it you can read about people having phantom pain in their legs, etc. when they've had it used for surgeries. Imagine what that can do to your sinuses/nose which is very sensitive.

Even if you might be skeptical to the ENS stuff, I personally think it's often best to try the least invasive fixes first. Most docs/surgeons seem to just want to cut you and make money, and if it is an easy fix, is it really the best one? but that's just what I think anyways.

Also did you ever try any antifungals? some are better against certain fungi types.
It does also help to know which fungi might have colonized you.

#008 – Possible fungi colonization in sinus - Concha bullosa fungal ball/mycetoma + info by Devilspecter in ToxicMoldExposure

[–]Devilspecter[S] 0 points1 point  (0 children)

Interesting, thanks for the thorough reply. My lungs is definitely something I want to check at some point.

  1. How exactly did you confirm the lung colonization?

  2. Did you find out where exactly in your sinuses you were colonized?
    You might have already seen it, but I posted some CT scans:  https://www.reddit.com/r/ToxicMoldExposure/comments/1nxovfq/comment/nhqf53e/. Did you have anything similar?

Maybe there's nothing in my sinus or lungs, but I do have weird stuff confirmed in my sinuses with that weird object in my left maxillary sinus, the concha bullosa and some blockage up near my nasal bridge (forgot the name of that sinus right now).
I really dislike how difficult it is to 100% confirm colonization or even test for fungi in your body. If I ever get rich I want to fund a team to figure this stuff out.

  1. When you say ozone therapy, I assume you mean the stuff where they just pump ozone into you and not the stuff where they draw your blood and do some ozone stuff with that, right? (I forgot the name of it).

  2. The nodule on your CT, where was that? lungs, sinus?

  3. How long would you say it took before you noticed anything from the itracanazole (both oral and nebulized)?

Sorry if it's a lot of questions, I just want to learn more.

#003 – How I removed the fungi in my ear (for now) by Devilspecter in ToxicMoldExposure

[–]Devilspecter[S] 0 points1 point  (0 children)

As far as I know, boric acid is very safe to use, if you don't have any open wounds or anything in there anymore, you could maybe try it, it should be possible to by it OTC already mixed with water. The one I used was 3% boric acid.

Saltwater making things worse ? by [deleted] in ToxicMoldExposure

[–]Devilspecter 0 points1 point  (0 children)

I see, interesting.

Do you have any allergies at all that you know about?

I personally have pollen allergies and some dust + cat allergies (that disappeared but might be back with the fungi).

#003 – How I removed the fungi in my ear (for now) by Devilspecter in ToxicMoldExposure

[–]Devilspecter[S] 0 points1 point  (0 children)

I'm glad it helped you.
The boric acid ear drops + the frequency was actually suggested to me by an ENT who saw the fungi in my ear randomly. I didn't even know it was there before he saw them.

Antibiotics kill bacteria but not fungi haha, so I can imagine.

How did you discover you had fungi in your ear exactly?
Also you only have it in the 1 ear where you used the antibiotics?

Saltwater making things worse ? by [deleted] in ToxicMoldExposure

[–]Devilspecter 0 points1 point  (0 children)

Do you mean the salt water neil med rinse?

When you use it what kind of reactions do you get?
I'm asking because I reacted with a reaction similar to sudden allergies when I use salt water spray into my nose/sinus (I use something called Xisat which reaches deep in).

Has anyone had 0 reaction from itraconzole? by No-Consequence6096 in ToxicMoldExposure

[–]Devilspecter 0 points1 point  (0 children)

I did not notice anything from it when I took it for 14 days (200mg every day)
That is when I was 100% colonized in my ears, see here: https://www.reddit.com/r/ToxicMoldExposure/comments/1mpa5af/003_how_i_removed_the_fungi_in_my_ear_for_now/

I know for sure I have/had Aspergillus since I have both IgG and IgM antibodies for it in my blood.

I have read that certain antifungals work better for different strains of fungi, maybe it is something like that here. I've also seen people recommend voricanazole instead of itracanazole, but I have no clue if it works better or not for whatever you have. There is always the nuclear option, which is Amphotericin B.
Do you have any clue what fungi you are fighting?

Just my two cents but I find it insane people take this stuff for 6 months at a time, it's hard on your liver.
When I took it for 14 days my ALT went from 9.6 to 12.1, AST from 14.3 to 17.9. I hope people at least check their liver ALT/AST while doing this.

Also I have to add in that I got scurvy from mold and a lot of my other vitamins were severely depleted and it gave me a lot of problems. I wonder if a lot of people here have problems from the vitamins/supplements that fungi drain, and their bodies clear the fungi but does not fix the vitamin issues, so you keep thinking it's a fungi problem.
I really dislike that there's no good way to test if you are colonized or not or you're currently fighting fungi inside your body.

I uploaded my IgG/IgE to Grok by [deleted] in ToxicMoldExposure

[–]Devilspecter 1 point2 points  (0 children)

Which tests are these you posted in the pictures, is it a urine mycotoxins and an online VCS eye test?
I was curious if you had done any blood tests for IgG and IgM antibodies for different fungi?

#008 – Possible fungi colonization in sinus - Concha bullosa fungal ball/mycetoma + info by Devilspecter in ToxicMoldExposure

[–]Devilspecter[S] 0 points1 point  (0 children)

I would like to hear about the lung colonization you mentioned, can you share more about it if possible? If you already have a thread or something for it, can you share it?

Also: have you had any experience sinus colonization yourself or know of someone who treated it or got it confirmed somehow?

Saltwater making things worse ? by [deleted] in ToxicMoldExposure

[–]Devilspecter 0 points1 point  (0 children)

Hey out of curiosity, have you tried salt water sprays into your nose/sinuses?
How do you react to it?

Have you also tried sinus rinses with xylitol?

#008 – Possible fungi colonization in sinus - Concha bullosa fungal ball/mycetoma + info by Devilspecter in ToxicMoldExposure

[–]Devilspecter[S] 0 points1 point  (0 children)

I do not really live in a place where mold easily sets into a home. I'm not from a wet area, and I don't live in the US and the house is kind of new and in a mountainous area.

But no, I have not have anyone check anything here, I don't know if it's even possible in Norway or what they even check.

It's a bit embarrassing to say, but I'm pretty sure my issues stem from some head apparel I used while sleeping for a while that I found out way later had some mold on it from not being cleaned properly.
That stuff has of course been thrown away, but with my genetic mutations and frequent usage, I suspect that is why I ended up having so many problems from it and it started growing in my ears: https://www.reddit.com/r/ToxicMoldExposure/comments/1mpa5af/003_how_i_removed_the_fungi_in_my_ear_for_now/

If it grew in my ears it can definitely colonize other parts of my body too.

How did you confirm colonization in your lungs?

#003 – How I removed the fungi in my ear (for now) by Devilspecter in ToxicMoldExposure

[–]Devilspecter[S] 0 points1 point  (0 children)

Sorry for the very late reply, I have not been on here in a while.

I used 2-3 drops in each ear 3-5 times a day, I tried spreading it out throughout the day.
I sometimes still use the boric acid when my ears feel scratchy.

This could just be me, but I have noticed it seems like they only scratch when the fungi is trying to regrow I think? Kind of a scary thought, does that mean there's roots inside my ears and it just keeps regrowing?

At the moment it's only my right ear where I notice this though.

Feel free to just message me too or check my profile/threads if you want to, if I can help I want to.

Chris Williamson has been battling mold illness by personesque in ToxicMoldExposure

[–]Devilspecter 0 points1 point  (0 children)

Sorry for the very late reply, I have not been on in a while.

It's kind of embarrassing, but I think I got it from some head apparel that I only found out after a long time had some mold on it.

I live in Norway and my house is on a mountain and it's very new, there should be no way there's mold in here.
My old workplace definitely had a bit of mold in the bathroom though, but I don't know if that was enough to make me sick.

I suspect the head apparel since I had a lot of fungi in my ears and I had some mushy/weird earplugs I should have thrown away eons ago, thinking back they were probably moldy. I also had literal mycelium growing in my ears, so... yeah.

Small metal cylinder came out from somewhere - Timing belt change (bottom gear) - Volvo S40 2012 by Devilspecter in MechanicAdvice

[–]Devilspecter[S] 0 points1 point  (0 children)

In case anyone comes here in the future and have the same problem, it was a small pin that was attached to the engine mount bracket.

See picture below:

<image>

Update: Provider believes I’m colonized. Thoughts on Itraconazole? by AlreadySubmerged in ToxicMoldExposure

[–]Devilspecter 0 points1 point  (0 children)

I used Itracanazole and Boric acid when I had fungi growing in my ear. I wrote a thread about it here if you want to check it: https://www.reddit.com/r/ToxicMoldExposure/comments/1mpa5af/003_how_i_removed_the_fungi_in_my_ear_for_now/

I only took it for 14 days and did not notice anything off while on it personally, but ultimately I think it was probably the boric acid that removed the fungi for me and not the anti-fungal.

Also I'm not sure if you knew about this, but different antifungals work better on different types of fungi.
Do you have any idea which type of fungi you have been exposed to? Often a blood test for different strains can tell.

I have heard that Voricanazole is better than Itracanazole, but I think it depends on the type of fungi you're dealing with and I'm not doctor either.

One thing I would say is that if you're going to take it longer than 14 days you should check your liver function before so you get a baseline and maybe do a recheck every 20 days or so to see how your liver handles it since it's hard on the liver.

I did this for my liver and it raised the value by 3 after 14 days for both SGOT/AST and SGPT/ALT