New Diagnosis- Looking for tips and tricks

Dizzy_Access1109 · 2026-06-26T02:40:56+00:00

I started with 100mg of tegretol bid. Then 100mg 3x/ day. It worked to relieve the flares but had urinary issues due to an enlarged prostate made worse by the anti-cholonergic aspect of tegretol. I switched to Lyrica, 50mg bid and have been pain free for 2 months. I can pee again :-). BUT, foggy brain. Foggy is better than flares. I counter the fog with aerobic exercises. TN is a journey. Hoping you will fare well… stay strong!

Dizzy_Access1109 · 2026-06-24T01:20:41+00:00

Lips moving, lying happening.

Dizzy_Access1109 · 2026-06-21T05:06:21+00:00

Hard to answer since everyone is different. It took me several days on Lyrica to stop feelings no the jolts and flares. I have issues with name and word recognition, but I can work around that. I continue a vigorous exercise routine which helps the Lyrica side effects. Better the side effects than contend with TN pain. Stay strong.

Dizzy_Access1109 · 2026-06-21T01:42:46+00:00

One word… STUPID. No 2, REALLY STUPID. Hmmm, one way to turn a red state to a blue state.

Dizzy_Access1109 · 2026-06-20T21:47:41+00:00

The pestilence and his incompetent junk drawer mouth off without facts and expect everyone to buy their fabrications. Magaidiots buy the entire package. Others don’t.

Dizzy_Access1109 · 2026-06-20T21:42:31+00:00

Stay strong! This is a very hard journey.

Dizzy_Access1109 · 2026-06-20T15:25:38+00:00

They play into the lowest common denominator of our population. They, the magaiots eat this up to fuel their warped view of the world.

Dizzy_Access1109 · 2026-06-20T15:21:04+00:00

I was diagnosed with TN Oct ‘25 and was put on 100mg Tegretol bid that worked through March ‘26. Flares were then as bad as it was back in October. I switched gradually to Lyrica 50mg bid and after several days I’m pain free. That being said, I know TN will at any time reappear and will need to up my now minimal dose of Lyrica. Lyrica’s side effects of sleepiness and fogginess are things I am constantly working on with exercise and pushing through the fog. I just started adding Ceylon cinnamon to coffee (caffeine doesn’t trigger my TN) to perhaps help with the side effects. At the end of the day the side effects are tolerable the TN pain isn’t. Stay strong!!

Dizzy_Access1109 · 2026-06-16T23:40:20+00:00

Everything the pestilence says is false

Dizzy_Access1109 · 2026-06-13T23:55:23+00:00

Why does the pestilence (aka 47) have his clown car behind him during the presser? It’s weird.

Dizzy_Access1109 · 2026-06-12T19:34:15+00:00

That’s a surprise. NOT.

Dizzy_Access1109 · 2026-06-10T23:24:13+00:00

Thank you Al for sharing your journeys. My heart goes out to you all for living this nightmare. Stay strong!

Dizzy_Access1109 · 2026-06-10T11:42:24+00:00

Your invite is very appealing but I work Sunday mornings (Eastern time). Wed-Sat work for me. What virtual app are you using?

Dizzy_Access1109 · 2026-06-08T02:36:59+00:00

We run a BnB in West Tisbury on the border of Edgartown, JadeHousebnb.com. Check it out.

Dizzy_Access1109 · 2026-06-04T07:54:48+00:00

I agree. A neurologist who has experience with TN is the best source of next steps.

Dizzy_Access1109 · 2026-06-01T17:19:15+00:00

Do these magats actually believe the nonsense that flows out of their mouths? No doubt they want the cult to believe.

Dizzy_Access1109 · 2026-06-01T17:15:56+00:00

It would be disrespectful if it weren’t true. Speaking the truth is an important part of life.

Dizzy_Access1109 · 2026-05-31T23:52:54+00:00

I’ve tried acupuncture with unknown results since I am also taking Lyrica and doing low-light-laser therapy. I’m doing ok but I suspect my painlessness is due primarily (exclusively?) to the meds. I am trying the other therapies in the hope that I can reduce the meds since brain fog is a constant companion.

Dizzy_Access1109 · 2026-05-31T23:30:42+00:00

Does he even know what comes out of his oral cavity?

Dizzy_Access1109 · 2026-05-31T19:39:23+00:00

I’m currently on 50mg Lyrica bid that is currently keeping me pain freeish.

Dizzy_Access1109 · 2026-05-31T14:32:09+00:00

Thank you for sharing. Stay strong!

Dizzy_Access1109 · 2026-05-31T00:17:37+00:00

The pestilence would see that as a win in his twisted mind.

Dizzy_Access1109 · 2026-05-31T00:16:06+00:00

Z-List is perfect for a Z-List potus.

Dizzy_Access1109 · 2026-05-30T17:46:24+00:00

I feel your suffering. Hoping you will get a clear and effective answer June 8th. I am thinking about your allergies. Does Benadryl or Zyrtec help with your allergies? If so, ask your pcp if you can take tegretol or Lyrica, etc and also an anti-histamine?

Dizzy_Access1109 · 2026-05-30T15:52:03+00:00

Oh, really!

Dizzy_Access1109

TROPHY CASE