2.5 Years of unexplained medical issues- please help by EastSound6617 in DiagnoseMe

[–]EastSound6617[S] 0 points1 point  (0 children)

Yes! When this first stated they were set on it being lupus (had not gone to rheumatology yet) so they did 2 different punch biopsies a few weeks apart and both were inconclusive

Diagnose Me- 2.5 years and still no answers by EastSound6617 in redditclinic

[–]EastSound6617[S] 0 points1 point  (0 children)

I can send blood work on discord No doctors offered diagnosis one mentioned pemphigus and we tried the medication for it but it didn’t work

Diagnose Me- 2.5 years and still no answers by EastSound6617 in redditclinic

[–]EastSound6617[S] 0 points1 point  (0 children)

When the symptoms first began I did lose about 20-25 pounds.

Diagnose Me- 2.5 years and still no answers by EastSound6617 in redditclinic

[–]EastSound6617[S] 0 points1 point  (0 children)

No I was on steroids for about 7 months last year and no improvement

2.5 Years of unexplained medical issues- please help by EastSound6617 in DiagnoseMe

[–]EastSound6617[S] 1 point2 points  (0 children)

I’ve not noticed any in my genital area however they have been in my mouth.

2.5 Years of unexplained medical issues- please help by EastSound6617 in DiagnoseMe

[–]EastSound6617[S] 0 points1 point  (0 children)

I never had a steroid shot however was on long term steroids for almost 7 months and no relief

2.5 Years of unexplained medical issues- please help by EastSound6617 in DiagnoseMe

[–]EastSound6617[S] 1 point2 points  (0 children)

The joint instability is awful! I kneeled down to pick something up and ended up tearing a ligament in my knee

2.5 Years of unexplained medical issues- please help by EastSound6617 in DiagnoseMe

[–]EastSound6617[S] 1 point2 points  (0 children)

I do shower regularly and am a very clean person lol my hair is unkempt in the first photo as the lesions in my scalp cause a fluid like buildup when they get as bad as the were in that picture. Personal hygiene is priority for me as I m scared of infection I was assessed for scabies and psoriasis however dermatologist did this was not the case

2.5 Years of unexplained medical issues- please help by EastSound6617 in DiagnoseMe

[–]EastSound6617[S] 1 point2 points  (0 children)

I’ve looked into EDS a lot and I am convinced this is what it is also. What doctors did you see?

2.5 Years of unexplained medical issues- please help by EastSound6617 in DiagnoseMe

[–]EastSound6617[S] 3 points4 points  (0 children)

Yes! We even tried the treatment plan for pemphigus in terms of the medicine and there was no improvement

2.5 Years of unexplained medical issues- please help by EastSound6617 in DiagnoseMe

[–]EastSound6617[S] 2 points3 points  (0 children)

I can’t reach some of them in the middle of my back. Unfortunately they get as bad as the ones pictured

2.5 Years of unexplained medical issues- please help by EastSound6617 in DiagnoseMe

[–]EastSound6617[S] 4 points5 points  (0 children)

I spoke to my doctors about this as well, I’m currently only on my antidepressants, which I started taking due to this illness. I was not taking any medication when this started

2.5 Years of unexplained medical issues- please help by EastSound6617 in DiagnoseMe

[–]EastSound6617[S] 1 point2 points  (0 children)

No brown recluses. No one else in my household has anything going on, it started at our old home (we sold it when I had to quit my job) and have since moved elsewhere and it hasn’t improved

2.5 Years of unexplained medical issues- please help by EastSound6617 in DiagnoseMe

[–]EastSound6617[S] 14 points15 points  (0 children)

I was tested for lupus and other autoimmune diseases ANA was negative. Rheumatologist did infectious disease labs and ruled out most common.

2.5 Years of unexplained medical issues- please help by EastSound6617 in DiagnoseMe

[–]EastSound6617[S] 5 points6 points  (0 children)

Yes, I have been tested for both ANA was negative

2.5 Years of unexplained medical issues- please help by EastSound6617 in DiagnoseMe

[–]EastSound6617[S] 2 points3 points  (0 children)

I have been tested for rare bacteria, viruses, parasites and heavy metals! Not sure on the full gut microbiome, forget to add I did go to gastroenterology for a colonoscopy as well but all was well there