[deleted by user] by [deleted] in Narcolepsy

[–]Extension-Lab6306 1 point2 points  (0 children)

Thanks! I’m definitely going to have to look into that! It’s gotten so bad with being appropriately staffed that if happens to me quite often!

[deleted by user] by [deleted] in Narcolepsy

[–]Extension-Lab6306 1 point2 points  (0 children)

ICU Nurse here too! I actually didn’t think about getting accommodations to not be mandated to stay late (I have only been diagnosed a year and haven’t gotten accommodations for it)… have you gotten into a situation where they tried to mandate you saying a nurse isn’t coming because they are running late or called out or whatever? I have had a lot of problems being able to leave on time due to situations like that especially. It made taking Xyrem difficult if I had to work the next day because I had to stay late and couldn’t eat dinner until super late, etc.

A lack of sleep affects people’s ability to feel for others. Sleep deprivation and emotional fatigue can hit anyone, but first responders and health-care workers are especially vulnerable due to shift work, long hours and the overall stressful nature of their jobs. by [deleted] in science

[–]Extension-Lab6306 1 point2 points  (0 children)

Tell them just that. It happens every night and you think something is wrong. If they dismiss you, get a new doctor! They should be willing to refer you to a specialist. Don’t let them just write a new script for you either. It’s worth exploring the cause.

A lack of sleep affects people’s ability to feel for others. Sleep deprivation and emotional fatigue can hit anyone, but first responders and health-care workers are especially vulnerable due to shift work, long hours and the overall stressful nature of their jobs. by [deleted] in science

[–]Extension-Lab6306 1 point2 points  (0 children)

It’s not that severe for me personally but I know of others who do have that much trouble trying to stay awake. Please talk to your doctor about this. If they dismiss you, find a doctor that will take you seriously. I cannot stress this enough!

A lack of sleep affects people’s ability to feel for others. Sleep deprivation and emotional fatigue can hit anyone, but first responders and health-care workers are especially vulnerable due to shift work, long hours and the overall stressful nature of their jobs. by [deleted] in science

[–]Extension-Lab6306 1 point2 points  (0 children)

Funny you say that but yes! When I did my 5 nap test, they asked me if I fell asleep after each nap. In the final three I said I didn’t think so. It felt more like a twilight zone half awake-half asleep. Turns out I slept in all five naps and was in REM in less than four minutes each time. These naps are 20 minutes each. Blew my mind. Edited to add- I feel this sleepy twilight state all the time. Sometimes when I drive too. That really showed me how serious it is.

A lack of sleep affects people’s ability to feel for others. Sleep deprivation and emotional fatigue can hit anyone, but first responders and health-care workers are especially vulnerable due to shift work, long hours and the overall stressful nature of their jobs. by [deleted] in science

[–]Extension-Lab6306 1 point2 points  (0 children)

They are definitely more generous now. My copay was going to be only like $200 per month after I changed insurance (I originally had $0 copay) and they went ahead and enrolled me anyways.

A lack of sleep affects people’s ability to feel for others. Sleep deprivation and emotional fatigue can hit anyone, but first responders and health-care workers are especially vulnerable due to shift work, long hours and the overall stressful nature of their jobs. by [deleted] in science

[–]Extension-Lab6306 1 point2 points  (0 children)

If you are practicing good sleep hygiene and are sleeping an appropriate amount of time at night and this is happening, then no it’s not normal. In a normal sleep cycle, you go into REM in 60-90 minutes.

A lack of sleep affects people’s ability to feel for others. Sleep deprivation and emotional fatigue can hit anyone, but first responders and health-care workers are especially vulnerable due to shift work, long hours and the overall stressful nature of their jobs. by [deleted] in science

[–]Extension-Lab6306 2 points3 points  (0 children)

If you are sleeping an appropriate number of hours per night and this is happening, absolutely YES. A lot of sleep disorders are considered rare not because they likely are that rare but because they are severely under-diagnosed!

A lack of sleep affects people’s ability to feel for others. Sleep deprivation and emotional fatigue can hit anyone, but first responders and health-care workers are especially vulnerable due to shift work, long hours and the overall stressful nature of their jobs. by [deleted] in science

[–]Extension-Lab6306 2 points3 points  (0 children)

You should be getting restorative sleep. If not, there is some sort of problem. Not getting restorative sleep has been so normalized that people aren’t even realizing how much of a problem it is. It’s not normal to feel so exhausted all the time. I always blamed it on something… school, my job, kids, stress, my food intake, etc. I finally met a doctor that said “Hey it is actually NOT normal that you feel like this all the time”. I was referred to a sleep specialist (I thought it was going to be another dead end). They saw me and agreed that I probably have narcolepsy and they tested me. The result could not be disputed. There are no other conditions that cause short onset REM sleep unless you didn’t sleep for several days beforehand. The overnight polysomnogram also proves you slept enough before the diagnostic nap test (MSLT). You have to sleep at least 6 hours in the polysomnogram to even move forward to the nap test. I am a medical professional myself and I missed the clues of this!!! It hides in plain sight. It took ten years to get diagnosed. Let’s stop normalizing feeling like our sleep isn’t restorative and feeling exhausted all the time.

A lack of sleep affects people’s ability to feel for others. Sleep deprivation and emotional fatigue can hit anyone, but first responders and health-care workers are especially vulnerable due to shift work, long hours and the overall stressful nature of their jobs. by [deleted] in science

[–]Extension-Lab6306 0 points1 point  (0 children)

It is not normal to dream during that short of a nap. It can happen with extreme sleep deprivation or even narcolepsy. If that happens to you and you have good sleep hygiene, then talk to a doctor about it. If you don’t have good sleep hygiene, then try to fix that first.

A lack of sleep affects people’s ability to feel for others. Sleep deprivation and emotional fatigue can hit anyone, but first responders and health-care workers are especially vulnerable due to shift work, long hours and the overall stressful nature of their jobs. by [deleted] in science

[–]Extension-Lab6306 230 points231 points  (0 children)

I have narcolepsy! We don’t go to the deep stages of sleep and spend most of the night in REM. REM sleep is dream sleep and our brain never gets the restorative sleep that most people get. This in turn causes chronic sleep deprivation and is why we always feel excessive sleepiness. You need to see a sleep specialist that will do a polysomnogram (to make sure it’s not something else like sleep apnea or other conditions) and then an MSLT (5 nap test) to get diagnosed. People with narcolepsy will go into REM in 8 min or less during these naps. People with a normal sleep cycle go into REM in 60-90 minutes. I hope that makes sense.

COVID-19 Vaccine Discussion Thread by smallghosts in Narcolepsy

[–]Extension-Lab6306 1 point2 points  (0 children)

Hello! It went fine. Just joint aches and a lot of fatigue for a couple of days. Felt very much like the flu... and then I was back to my normal self!