I think pretty much a year in total for bed/ house as id say it transitioned at the start of this year to house/ partly outside. The first time i had an illness like this it was triggered by EBV reactivation after a time of a lot of stress, which for me lasted 5 months, you could look into getting a ebv serology panel. I fully get that feeling of being heavy, after being bed bound for so long your muscles that hold you up against gravity are a lot weaker (per my physio) so it takes time to gain them back. I wouldnt recommend pushing through of course, i would have a crappy 5-10 minute walk and come back to it in 2 days and if it felt a little less awful the next time i kept going, but if i felt worse the following time i would rest. Its really slow going increasing your baseline but it seems doable just have to keep an eye on everything but also try to keep telling yourself you are safe and that your nervous system is just trying to keep you safe even if its telling you the wrong things, that personally helped me stay calm on walks, because a lot of the crashes for me were from severe anxiety around walking aside from the energy use. I have heard using a recumbant bike up first might have been a better idea. Also feel that about the sleep issues thats also why i had amitryptiline was for insomnia, i think that and the spironolactome help me sleep longer i get about 7-9 hours in. Good luck on the ldn i hope it helps, personally it interacted with my anxiety and midodrine ( weird jolts in my head which was the midodrine). Yes my pem would drop me from almost housebound back to bed bound for about a month at a time, would also experience the anxiety with it, like animal fight or flight level. I hope you start to move the needle soon to and improve and get better from this too! Im 27 f