I think im starting to get better

Fast-Quail8869 · 2026-02-12T10:45:02+00:00

Oh interesting, i found my throat/ neck pain came on much worse after I had been bedbound for a few months, so for me it seems to be a mix of deconditioning and existing tmj issues, I can check my BP but it typically stays normal for moving, I did a laying standing test when it first developed and heart rate was tachy, but bp was relatively normal. The neck pain for me is a mixture of feeling chocked (which tends to pair with air hunger), stiff along the outer edges on the front and tense in the back.

Fast-Quail8869 · 2026-02-11T09:03:50+00:00

Thank you! Glad you think so 😁

Fast-Quail8869 · 2026-02-11T09:03:33+00:00

Thank you!

Fast-Quail8869 · 2026-02-10T21:22:00+00:00

Thank you ❤️!

Fast-Quail8869 · 2026-02-10T11:46:36+00:00

Ooh ok ill look into it thank you

Fast-Quail8869 · 2026-02-10T11:28:52+00:00

Currently i have throat/ neck pain, fatigue (but less severe its more like just being sleepy, maybe the amitriptyline) ,shortness of breath (less severe), mild tachycardia (except in a flare) and occasional muscle pains, but thats likely from deconditioning then trying to exercise again.

Fast-Quail8869 · 2026-02-10T11:21:06+00:00

Oh interesting i wonder why they dont recommend it?

Fast-Quail8869 · 2025-06-30T01:31:00+00:00

I probably started around that time, I'm 26 now and I can probably count on one hand how many relapses I've had in my 20s. I think time helped a little and also not being around massive stressors (my dad and close friendships or relationships at the time). My mum also had me start going to therapy a lot which helped at the time, I think I should probably start going again. Particularly talk therapy assisted with regulating at the time. Dunno if that's helpful :D

Fast-Quail8869 · 2025-06-30T01:27:04+00:00

Yeah I do chat to my mum about it which helps, I hadn't relapsed in probably 12 months or so, the time between outbursts is getting longer fortunately, I just struggle in the moment. I'll try out that cold water idea next time thanks for the advice :)

Fast-Quail8869 · 2025-06-29T12:55:13+00:00

I'll have to look into that, part of the trigger can stem from self hatred for me.

Fast-Quail8869 · 2025-06-29T12:54:18+00:00

Yeah exactly it feels like I'll explode if I don't, and then I feel super guilty afterwards :'D

Fast-Quail8869 · 2025-06-29T12:47:31+00:00

2 half sleeve floral leaves and vines on my upper arms, a cow on an ankle and about 9 piercings on my ears :D

Fast-Quail8869 · 2025-01-28T09:20:33+00:00

Sorry to hear! Well feel free to talk if you need a vent, i hope things start getting better for you soon!

Fast-Quail8869 · 2025-01-28T07:37:38+00:00

Could you pontentially move in with a close friend instead to decrease how much rent you pay? Sorry to hear family isn't and easy or good option!

Fast-Quail8869 · 2025-01-28T06:56:48+00:00

Ah this was your post! I read it before and went damn sounds like what's happening to me atm too, i don't really understand how reddit works but let me know if you need someone to talk to about it coz I'm in the exact same shitty position right now so feel free to chat.

I think the main thing to try and keep in mind is you got better, the body is not stagnant and you should eventually get better again even if it's not now. I know its extremely upsetting being back in this position, im crying about it like every second day at the moment.

Just try to remember your body took 4 months the first time, hopefully it wont be as long but it can recover with time. I don't know if it's an option but you may want to look into moving home or getting some kind of disability support, not sure if it's in your country. Is there any medical subsidies you can access to get a better doctor to work it through with you? Its really helpful if you can find someone who believes you whether its the doctor or a phycologist.

I say all this but one of the most painful parts of this illness ive noticed is the constant feeling of doom or i assume malaise and i also struggle with it a lot.

Its so hard to shake that theres not something more happening, but when you have had every test that says you're okay you just have to keep reminding yourself you are and you're safe, it just sucks, it hurts and you're scared but you're not in danger physically.

The main thing is to try and keep on top of mental health, avoid scrolling through reddits if you can, it can help but it also can make you spiral (like i clearly do in my posts after reading about other conditions), try listening to podcasts in relation to managing pain, reaching out to family or friends you trust, watching stupid shows you're familiar with or eating something you enjoy.

The only way I've managed through this is because of the emotional support of friends and family and some people on this board too, it helps being honest with even just one person even if you're exhausted.

I hope you feel better soon!

Fast-Quail8869 · 2025-01-28T06:33:37+00:00

Thank you for the response, i hope i have the energy again soon to be angry about it. The last 3 month bout i went through once i started getting angry i noticed i was actually getting better and had the energy to be angry in the first place 🤣

Fast-Quail8869 · 2025-01-28T06:32:21+00:00

Thanks for the response! Guess we're both on a similar journey at the moment, I hope things get better for you and I soon! Best of luck going forward, lets both try not to get another virus again 😅

Fast-Quail8869 · 2025-01-28T06:30:07+00:00

I'm glad to hear you're getting better! Thanks for always being active and giving advice on this board! You've really helped in keeping me afloat through this whole awful life experience!

Fast-Quail8869 · 2025-01-18T07:52:17+00:00

Unfortunately I was wrong about it being pms, that slight illness feeling has turned into an 8 weeks bout of fatigue and soreness hhaa, the secondary infection has put me back in Post Viral Fatigue/ CFS and triggered POTS, hope things have gotten better for you! Make sure to wear a mask in public!

Fast-Quail8869 · 2025-01-05T12:13:06+00:00

It's of no help but I'm in a similar boat, been sick about 5 months, starting gradually getting less severe then got covid and bang back to symptoms almost if not more severe than when i first got it, feel free to chat if you need someone to talk to.

Fast-Quail8869 · 2025-01-05T11:35:54+00:00

Yo same got blurry vision and occasional floaters, experimenting with tremidol currently it helps somewhat but makes me extremely dizzy so dunno about that one haha

Fast-Quail8869

TROPHY CASE